Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Gluten-Free Road Trip - Any Advice?


notme

Recommended Posts

notme Experienced

so, we are hitting the road - i am nervous as a cat! i am planning to take all my meals (i should probably make some cookies, too, and bring some snackie crackers) it's a 3 hour car ride each way. a group of us travel around and see our favorite band, so we will be sharing the hotel room with other people (that we know very well, thank goodness!) also, as usual, the venue is a club. i am a beer drinker and the redbridge has been kind to me :) should i try to bring my own beer or wine if the venue only serves 'regular' beer? do restaurants frown at people eating food they bring with them? there is a pf changs up there and husband wants to stop at sonny's bbq on the way home... any advice? anything happen to any of y'all that you didn't see beforehand and was a problem? lol i have shared bathrooms with these people before so that's no prob - hopefully they can have equal time this trip :D i'd be grateful for any ideas!

thanx

arlene


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StacyA Enthusiast

I think there's rules against bringing in your own alcoholic beverage - although you could ask (ahead of time). Every restaurant is different regarding food. You could call ahead and say: 'My friends/husband want to spend a lot of money in your establishment on drinks/bbq but I'm on a severe diet restriction and would need to bring my own food/beer. I hope that's okay, since we're sticking together.' If they say it's okay, get the person's name. If they say it isn't, ask for the manager. The manager usually cares more about the business's bottom line. That way you could get take out from PF Chang's then sit down at the bbq place together.

I also agree with packing snacks: nuts, cheese, a Boost, candy, chips, etc. That way if you run into roadblocks at restaurants you still have food, including some yummy snacks so you don't feel deprived. I choose mainstream brands that I trust and that happen to be gluten-free - that way I don't fret over the cost if other people have some (but don't let gluteny hands in your bag of Lay's Salt and Vinegar Chips or Sour Patch Kids!)

Have fun.

CarolinaKip Community Regular

I have been able to take meals into certain places, but a club?? Can you call the club in advance to ask? I don't know if they would like the brought in beer, they may frown upon it. They see it as a cut in their profit. However, you may run across someone who is understanding. There are few places around me that have Redbridge on tap. I have found the more "different beers" a places carries they have Redbridge. You may want to call and ask if they serve that and or wine and go from there. When I traveled I made sure to always have snacks and fruit with me wherever I went. Bottle water and soft soap to wash my hands. Paper towels and baggies were my friend on my vacation. Have fun!

notme Experienced

I think there's rules against bringing in your own alcoholic beverage - although you could ask (ahead of time). Every restaurant is different regarding food. You could call ahead and say: 'My friends/husband want to spend a lot of money in your establishment on drinks/bbq but I'm on a severe diet restriction and would need to bring my own food/beer. I hope that's okay, since we're sticking together.' If they say it's okay, get the person's name. If they say it isn't, ask for the manager. The manager usually cares more about the business's bottom line. That way you could get take out from PF Chang's then sit down at the bbq place together.

I also agree with packing snacks: nuts, cheese, a Boost, candy, chips, etc. That way if you run into roadblocks at restaurants you still have food, including some yummy snacks so you don't feel deprived. I choose mainstream brands that I trust and that happen to be gluten-free - that way I don't fret over the cost if other people have some (but don't let gluteny hands in your bag of Lay's Salt and Vinegar Chips or Sour Patch Kids!)

Have fun.

good call: I'm with the big spender. who doesn't want me pouting all night (lol not a huge pouter - I s'pose I could fake it) also the boost I forgot about them. I thought they were bothering me but I think it was the probiotics - need to read up more. also got some sublingual b-12 (but didn't feel that bad!) today was a goood day :)))

notme Experienced

I have been able to take meals into certain places, but a club?? Can you call the club in advance to ask? I don't know if they would like the brought in beer, they may frown upon it. They see it as a cut in their profit. However, you may run across someone who is understanding. There are few places around me that have Redbridge on tap. I have found the more "different beers" a places carries they have Redbridge. You may want to call and ask if they serve that and or wine and go from there. When I traveled I made sure to always have snacks and fruit with me wherever I went. Bottle water and soft soap to wash my hands. Paper towels and baggies were my friend on my vacation. Have fun!

I was leaning toward bribery lol :) my son had actually bought this brand of beer (he likes unusual and this is made with sorghum) and liked it. I'm going to call the venue tomorrow and see what works. worse comes to worse I drag around ziploks full of goodies and NEVER SHARE lolol *practices hand-smacking*

luvthelake21 Rookie

Take a cooler and some lunch meat, shredded lettuce, head of lettuce and make lettuce wraps. If you have a microwave freeze things to take with you. If you access to a grill take aluminum foil and grill a steak and some veggies and some paper plates, gluten-free cereal and some bowels, crackers. Have fun

I was leaning toward bribery lol :) my son had actually bought this brand of beer (he likes unusual and this is made with sorghum) and liked it. I'm going to call the venue tomorrow and see what works. worse comes to worse I drag around ziploks full of goodies and NEVER SHARE lolol *practices hand-smacking*

SGWhiskers Collaborator

If you know the club you are going to, could you try to get them to special order or pick up from the convenience mart redbridge. Maybe you could talk the bartender into picking up some for an extra tip if you call ahead and talk to him/her.

Regarding food: I've never had a problem with bringing in my own food. I try to keep it to a single container like chili, pancakes, or a loaded salad and pull it out of my oversized purse or gift bag when everyone else is served. I just tell the server "food allergies, so I brought my own." With a confident smile on my face. I don't do this when it is just hubby and I, but rather when it is 3+ people, so the server still makes money. If I used her services at all, I tip well. It's just cruel to run a waitress back and forth for 99 cent iced tea refills and not tip like you had ordered the meal that would have taken one trip to the table. If I can manage it though, I aim for the off hours chef staffed or GIG certified restaraunts so I can finally eat a tasty meal I didn't have to prepare. (Then I order a large portion for tomorrow too).

I do keep my purse stuffed for spontaneous McD's breaks so I don't drool over the crappy hamburger my travel partners are eating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    2. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,835
    • Most Online (within 30 mins)
      7,748

    B Burgos
    Newest Member
    B Burgos
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.