Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insomnia Was Improving


bluebonnet

Recommended Posts

bluebonnet Explorer

for me, its been almost 14 years of dealing with insomnia. thankfully though i have noticed that i am sleeping better now a days (avoiding gluten since beginning of this year). i'm still unsure of what each night will bring (fall alseep quickly but wake up way too soon or not sleep at all or only a few restless hours). but its improving A LOT and it has taken me months to notice this difference. i waited and waited because others here reported insomnia will improve. i'm happy to say its a relief to get a good night's sleep (and more of them). :)

unfortunately though, if i eat gluten i don't sleep. i somehow came across gluten again yesterday (cc's happening quite a bit this summer!!!) and last night was awful. no sleep, weird dream with anxiety and racey heart palps. i'm always happy to see the light of a new day when i have nights like this. ugh. something is constantly contaminating me with gluten but i can't figure it out. guess that will always be a challenge. but ending this post on a positive note ... those of you struggling with insomnia, it will improve. :)

  • 5 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

for me, its been almost 14 years of dealing with insomnia. thankfully though i have noticed that i am sleeping better now a days (avoiding gluten since beginning of this year). i'm still unsure of what each night will bring (fall alseep quickly but wake up way too soon or not sleep at all or only a few restless hours). but its improving A LOT and it has taken me months to notice this difference. i waited and waited because others here reported insomnia will improve. i'm happy to say its a relief to get a good night's sleep (and more of them). :)

unfortunately though, if i eat gluten i don't sleep. i somehow came across gluten again yesterday (cc's happening quite a bit this summer!!!) and last night was awful. no sleep, weird dream with anxiety and racey heart palps. i'm always happy to see the light of a new day when i have nights like this. ugh. something is constantly contaminating me with gluten but i can't figure it out. guess that will always be a challenge. but ending this post on a positive note ... those of you struggling with insomnia, it will improve. :)

This DOES make me feel better.Thanks! I have so many horrible symptoms, but years of insomnia--especially ridiculous the past 3 --have taken their toll on me. Some nights, I only got 2 hours. Some nights, I was wide awake the entire time. I was "thrashing around" so much, with anxiety, heart racing and pounding, muscle and joint burning pain, I thought I was going mad! I feel so hopeful reading the posts that say how symptoms resolve after being diagnosed and eliminating gluten. I KNEW in my heart that it was not "just hormones" and "stress".

adab8ca Enthusiast

That is fantastic!

I too had crippling insomnia, days without sleeping. I was literally a crazy person. Dr gave me ativan to sleep and it saved my life. Don't need it now, 5 months gluten-free. I can have coffee and sleep!

Sleep is such a relief and so necessary to heal.

IrishHeart Veteran

That is fantastic!

I too had crippling insomnia, days without sleeping. I was literally a crazy person. Dr gave me ativan to sleep and it saved my life. Don't need it now, 5 months gluten-free. I can have coffee and sleep!

Sleep is such a relief and so necessary to heal.

Another positive post about insomnia improving! THANKS and hooray!! Believe it or not, I even tried ativan, lunesta, seroquel, xanax,and valium...(not all at once LOL) and they left me wide awake, in pain and jittery from the drugs...geesh...no herbal stuff worked either. I gave up.

I can say I do sleep better now, but 5 hours still just isn't enough. I look forward to sleeping better and longer!

It REALLY helps to hear these words!! You guys are great to share so much with others. Helps immensely!!:>)

  • 2 weeks later...
Igg postive Rookie

for me, its been almost 14 years of dealing with insomnia. thankfully though i have noticed that i am sleeping better now a days (avoiding gluten since beginning of this year). i'm still unsure of what each night will bring (fall alseep quickly but wake up way too soon or not sleep at all or only a few restless hours). but its improving A LOT and it has taken me months to notice this difference. i waited and waited because others here reported insomnia will improve. i'm happy to say its a relief to get a good night's sleep (and more of them). :)

unfortunately though, if i eat gluten i don't sleep. i somehow came across gluten again yesterday (cc's happening quite a bit this summer!!!) and last night was awful. no sleep, weird dream with anxiety and racey heart palps. i'm always happy to see the light of a new day when i have nights like this. ugh. something is constantly contaminating me with gluten but i can't figure it out. guess that will always be a challenge. but ending this post on a positive note ... those of you struggling with insomnia, it will improve. :)

Your post is encouraging. I have suffered from insomnia. I never related it to anything. I am waiting till it will get better for me.

  • 3 weeks later...
healinginprogress Enthusiast

Yes, your post is encouraging as I lie here awake since 5am lol But I hope you found out what was glutening you!

jackay Enthusiast

I, too, have severe insomnia issues. I can only say that I am so exhausted it hurts. I get very anxious without sleep (who doesn't). My latest pattern is my body (mind) only allowing sleep every other night. I've tried the drugs and natural remedies and saw no improvement. Some of them made me a lot worse.

I always thought the insomnia didn't get better because of first gluten and then when that was out of my diet, cross contamination. I'm still not positive it isn't. I'm having more testing done to see if anything else shows up. It would be nice to find a cause but I'm not counting on it.

The latest approach I am tring is cognitive behavioral sleep therapy. It is to retrain my brain for sleep. Don't know how successful this will be but I'm giving it a try. I know if cc or some other food intolerance is causing the insomnia, therapy isn't going to help much. However, if it helps a little, it will be worth it.

If anyone is interested in this approach look it up online for more information. This is the basics:

1. Restrict your hours of sleep. Average your sleep for a week and start with that. However, do not go under four hours per night.

2. There can be no light in the bedroom. (I actually taped tagboard over my window.)

3. If you are awake more than 15 minutes, get up and do something else for a while.

4. Always use an alarm clock to wake up.

5. If you sleep 95% of the time, increase your sleep time in 15 minute increments. If you sleep less than 80% of the time, decrease your time in 15 minute increments (not going less than four hours).

6. The designated bedroom for this can be used only for sleep and sex.

I'm just transitioning into this as I have a terrible cold and right now I feel resting in bed is better than nothing. I am getting up if I can't sleep. I gave up reading in bed. Oh now I miss that. :(

If anyone has tried this approach, let me know if it has worked for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 7 months later...
RobinsEggBlue Newbie

That is fantastic!

I too had crippling insomnia, days without sleeping. I was literally a crazy person. Dr gave me ativan to sleep and it saved my life. Don't need it now, 5 months gluten-free. I can have coffee and sleep!

Sleep is such a relief and so necessary to heal.

I was pleased to hear you no longer need the ativan! I begged and my doctor finally gave it to me. I was cautioned to only use it every now and then as it is addicting and the more I used it the sooner my body would build up a tolerance to it. I've been taking it only every third night or so but after last night I am about to go nuts. I have been lying awake until about 3 and then finally sleeping, unable to get up until 10-11. Last night all I did was toss and turn the ENTIRE night. I am 53 and have had insomnia for over 30 years. I used to take Elavil for both pain and insomnia until it stopped working. Now that I have RA pain that isn't responding to the appropriate meds it is keeping me up more and more.

I only have .25 mg tablets which I quarter!!It is enough to make me sleep within 20 minutes and for the whole night. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,005
    • Most Online (within 30 mins)
      7,748

    Ellen Watts
    Newest Member
    Ellen Watts
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • wellthatsfun
      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
×
×
  • Create New...