Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Would You Do Or Say If This Happened To You?

VioletBlue

By VioletBlue
in Coping with Celiac Disease

Recommended Posts

VioletBlue Contributor
VioletBlue
Posted

I realize my whole "No gluten" lifestyle is alien to the majority of people. I get that. But I thought I'd been through every possible culture shock since I went gluten-free in 2006. I've weathered them all; the ones I anticipated and even the ones I could never have expected.

My house is gluten-free, 100% no ifs ands or buts. In addition I have maybe a dozen other food allergies I have to watch out for.

And I shop on ebay quite a lot for my business that I run out of my home. I mostly buy from individuals.

I bought a vintage collection from a very nice woman, or so she seemed last week. It arrived today at my PO Box. The box was wrapped in wrapping paper which I thought was odd and it felt kind of soft, like it wasn't a "normal" box. But I never gave it a thought. I cut the wrapping paper off the box when I got home and found my self face to face with the box for "Raisin Bran Granola with Wheat Flakes". I literally froze. Then I panicked. Then I screamed. Then I screamed some more. I left the box on the counter. I haven't opened the box yet. I'm still too stunned.

The thing is, I go to all the trouble and grief to live this life and I don't expect anyone to understand or agree or even participate in it, then some ding bat ebayer sends me a box that once contained poison. I'm beside myself here and I'm lost. I guess I can open the box but the box is surely been CC'd as have most like the contents, one of which is a small book which you can't really scrub clean now can you?

If it were you, what would you do?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

Do you have DH?

Could you have a friend open the box, remove its contents, and do whatever needs to be done with them?

Aphreal Contributor
Aphreal
Posted

What was it you bought? Like an item they used the cereal box to pack and did the seller know about your allergy?

ravenwoodglass Mentor
ravenwoodglass
Posted

Make sure you ding that idiots stars and leave a neutral for the poor packing, no need to mention your allergy in the feedback. I can't believe that someone would ship items in a cereal box. I don't know what you bought other than the book but if you can do without the items if the seller allows refunds you could contact them before you leave feedback and ask if you can send them back. The idea to have someone else open the box would work, as would putting on some rubber gloves and opening it on the porch. Just take your vacuum to the book or any other unwashable stuff in there. I buy second hand books all the time and as sensitive as I am I haven't had any issues. I just wash my hands after reading them and before eating.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Relax. Remember the cereal never touched the box, it was in a plastic bag. You should be fine unless she used the cereal as packing matter. Wait, she may have. One in ten trillion that she'd used the cereal but since it went to someone gluten free.......Have someone else open it outside, just in case. But relax, it's fine.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Relax. Remember the cereal never touched the box, it was in a plastic bag. You should be fine unless she used the cereal as packing matter. Wait, she may have. One in ten trillion that she'd used the cereal but since it went to someone gluten free.......Have someone else open it outside, just in case. But relax, it's fine.

My thoughts exactly. It's probably fine. Ask a friend to open it outside if you are concerned. The book may be wrapped in something else like plastic or paper inside the box, in which case it didn't even touch the box. The box probably never came into contact with much of the cereal anyway.

VioletBlue Contributor
VioletBlue
Posted
  • Author

Perhaps I'm strange then. With every box of cereal I've ever had invariably no matter how hard I try some of the cereal gets out of the bag and slides back into the box when you tip the box back up after pouring.

I read the ingredient list on the box. It mentions wheat five different times, and soy twice. Do these people have a clue what they're eating?

From now on I will apparently have to specify to every seller "Do not ship your product in old food boxes of any kind." What an odd thing to have to say to anyone.

My thoughts exactly. It's probably fine. Ask a friend to open it outside if you are concerned. The book may be wrapped in something else like plastic or paper inside the box, in which case it didn't even touch the box. The box probably never came into contact with much of the cereal anyway.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


vbecton Explorer
vbecton
Posted

Okay, I'm an ebayer and would NEVER ship my goods in old food boxes. GROSS! However, this made me think of my very cheap and frugal husband who would most certainly "recycle" any type of box for shipping and would NEVER even think twice about it....and he TOTALLY gets the Celiac thing. So, go easy on the poor dingbats ratings, but you should definitely mention the poor packaging and possible contamination that was shipped to your poison-free safe zone!!! Some people have zero brain cells :blink:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748
    Kundrey
    Newest Member
    Kundrey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.