Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy & Soy

LauraBeth

By LauraBeth
in Coping with Celiac Disease

Recommended Posts

LauraBeth Rookie
LauraBeth
Posted

It is so worth it if I can finally feel better, but I know it will be hard- especially at first. I'm noticing things that I didn't prior to going gluten-free. Basically it's been almost 6 weeks and my symptoms are not improving a whole lot (severe fatigue is my main one). I am noticing after eating lunch I feel horrendous- I have always felt my worst after eating and/ or in the afternoon but it is becoming more obvious now. I usually have just coffee with a bit of half and half in the morning with something small to eat (handful of gluten free crackers, a banana, or something else about that size). I usually feel decent in the morning (not great, but functioning).

Today at lunch I had a sandwich on Udi's bread with a slice of havarti cheese and a container of greek yogurt. It was about 15 minutes after lunch that I started feeling terrible. Headache-y/ weird heavy sensation in my head, bloated and rumbly tummy, acidic stomach, and the worst part- HORRIBLE bouts of hot flashes/ sweating/ racing heart. I know I didn't eat any gluten. Could this be a dairy and/ or soy reaction? I don't believe I ate any soy today. I see a GI on Friday so we'll see what she has to say about all this. I never would have suspected all of these issues with food even though I probably should have. My symptoms have always flared up after eating but I just never put two and two together. Just hoping to get everyone's thoughts on this. I swear I feel like I am always either on crack or sedatives, there is no in between! (Not that I know what taking crack feels like, but you know what I mean!)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LauraBeth Rookie
LauraBeth
Posted
  • Author

Or, like I am taking crack and sedatives simultaneously! Loads of fun.

Dixiebell Contributor
Dixiebell
Posted

My severe fatigue started going away when I finally got my vit.D where it needs to be and started taking fish oil and B-Complex and weened myself off of prozac. The dairy you are eating migh be upsetting your stomach. I know when I eat the breads it feels like a heavy brick sitting in my belly.

mushroom Proficient
mushroom
Posted

It sure sounds like avoiding dairy would be a good experiment :)

kwylee Apprentice
kwylee
Posted

Headache-y/ weird heavy sensation in my head, bloated and rumbly tummy, acidic stomach, sweating/ racing heart.

I had these symptoms for many years. Blood testing showed OK with lactose so kept on eating dairy over the years, never putting everything together. Testing a few months ago showed I am sensitive to casein, and since I have eliminated all dairy in any form, those symptoms are 98% gone. Also had the same symptoms (just a little milder) with soy when I first went gluten/casein free. I haven't tried in months and I'll be fine waiting a bit longer before I try soy again. Just as with gluten, I have no plans to try casein again.

Skylark Collaborator
Skylark
Posted

I was dairy & soy free at first. Took probably six or nine months of gluten-free until I could eat them. For me it was flat-out stomachaches and sometimes D. I still remember challenging with edamame during my elimination diet. Ow! Now it's one of my favorite foods.

kwylee Apprentice
kwylee
Posted

I was dairy & soy free at first. Took probably six or nine months of gluten-free until I could eat them. For me it was flat-out stomachaches and sometimes D. I still remember challenging with edamame during my elimination diet. Ow! Now it's one of my favorite foods.

Hearing that is so encouraging to me, since the ONLY thing I missed dairy-wise is cheese on a pizza. So far, I'm just eating natural foods, but when I'm ready to try gluten free goodies, like pizza dough, it would be nice to see if I can tolerate a little melty mozzarella cheese...just a little!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which...
    2. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I had both the genetic genes for celiac. My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report. I also had polyps in 3 places throughout my large...
    3. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct? You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity...
    4. pweidema
      - pweidema commented on Scott Adams's article in Autumn 2025 Issue
      1

      The Unexpected Gluten Traps in International Snacks: What Not to Bring Back From Vacation

      Very informative. Thank you!
    5. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,334
    • Most Online (within 30 mins)
      7,748
    Julie369
    Newest Member
    Julie369
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
×
×
  • Create New...