Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's The Science Behind Celiac Soy Intolerance?

Chakra2

By Chakra2
in Coping with Celiac Disease

Recommended Posts

Chakra2 Contributor
Chakra2
Posted

I have read about why some celiacs have trouble digesting dairy at first -- you need the lactase from the tips of the villi. But why are so many gluten-sensitive people also bothered by soy?Is there a similar anatomically-based reason?

Also, I'd love to know if/when/how anyone was able to reintroduce soy. I was vegetarian for 19 years (now pescatarian) so I did learn to love my miso and my tofu! And wheat-free soy sauce would be a big treat now that it looks like I'll be eating a lot of rice from here on out. :)

I'm curious about a dairy issue, too. Are all lactose-intolerant (non-celiac/non-gluten sensitive) folks out there missing the tips of their villi? Or are there other reasons that "normal" people become lactose intolerant?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Soy is a big, giant, hard-to-digest protein, as is casein. It may be that a lot of people don't digest it well, but don't get enough symptoms to be bothered by it.

Many adults are lactose intolerant. You are designed to consume milk only as an infant, it's a recent mutation that allows the lactase enzyme to persist in adults.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I don't have any science (sorry) but I read on some natural medicine sites that there was a connection between soy and thyroid disease. Hypothyroidism runs in my family so I cut out soy when I first did my elimination diet. When I tried to add it back in I had fatigue, joint swelling, muscle pain and extreme moodiness. So even though my thyroid tests are still coming back as normal, I'm inclined to think from my own personal testing that soy messes with my thyroid. Like I said I don't have any hard science to back this up, but if you do a search you will find all kinds of sites warning about giving infants soy formula. Perhaps that could be a starting place for you to find some scientific articles.

Marz Enthusiast
Marz
Posted

Well if certain gene mutations cause the body to produce antibodies in response to gluten, when not soy? Especially if they're similar structures.

I'm wondering if there are some "soy" celiacs out there that are being missed because their body is producing antibodies to soy, and not gluten? Maybe that's why lots of blood tests are false negative - we're just not looking for the specific antibody that some of us are producing? Just speculating at this point, because I have no scientific basis for any of this :)

I do know I react in *exactly* the same way to soy as I do to gluten, both immediately and days later.

Skylark Collaborator
Skylark
Posted

With the gluten and dairy, some celiacs' anti-gliadin antibodies recognize casein. This doesn't happen in all celiacs, so there are some negative studies around as well.

Open Original Shared Link

Open Original Shared Link

There was also an interesting study on biopsied mucosa where damaged mucosa could not break down casein. Bigger fragments of food protein are more immunologically active.

Open Original Shared Link

Celiacs have more anti-casein and anti-soy antibodies in general.

Open Original Shared Link

Open Original Shared Link

If you piece things together, you can hypothesize that celiacs have a combination of more antibodies in general and poor digestion. Bits of undigested food might react with all the antibodies so you get a soy or casein reaction in unhealed celiacs.

By the way, it took me between six and nine months to reintroduce casein and soy.

kwylee Apprentice
kwylee
Posted

With the gluten and dairy, some celiacs' anti-gliadin antibodies recognize casein. This doesn't happen in all celiacs, so there are some negative studies around as well.

Open Original Shared Link

Open Original Shared Link

There was also an interesting study on biopsied mucosa where damaged mucosa could not break down casein. Bigger fragments of food protein are more immunologically active.

Open Original Shared Link

Celiacs have more anti-casein and anti-soy antibodies in general.

Open Original Shared Link

Open Original Shared Link

If you piece things together, you can hypothesize that celiacs have a combination of more antibodies in general and poor digestion. Bits of undigested food might react with all the antibodies so you get a soy or casein reaction in unhealed celiacs.

By the way, it took me between six and nine months to reintroduce casein and soy.

This info is so helpful!!! And thanks so much for the synopsis of the links in everyday speak! Appreciate that!

Skylark Collaborator
Skylark
Posted

This info is so helpful!!! And thanks so much for the synopsis of the links in everyday speak! Appreciate that!

Summarizing links was Jestgar's excellent advice. :) Glad it helps and you found the info useful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tweeks2010 Apprentice
tweeks2010
Posted

Today I tested myself with the ingredient soy lecithin i about 5 different things I ate today. Guess what...I get the same symptoms with that as I do when I get glutened. I only did a somewhat small amount , but it was enough to give me stomach cramping that has so far lasted hours and is still going.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they...
    2. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      Was the card itself lost or just the record or both?
    3. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    4. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,850
    • Most Online (within 30 mins)
      7,748
    TonyP27
    Newest Member
    TonyP27
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Francis M
      The Happy Tart review

      By Francis M · Posted

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.