Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Sensitivity After Going Gluten Free?

williamsburg000

Recommended Posts

williamsburg000 Rookie
williamsburg000
Posted

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

For the past few months I've mostly only eaten whole foods, chicken, fish, veggies, fruit, eggs and lactsose free cheese/milk - the only processed food I've eaten are a brand of sausages that adhere to the 20 ppm codex.

I seemed to be doing well and thought I'd finally got a good handle on how to live with this condition and now you guessed it, I'm back to square one with all the old symptoms again :angry:

I have to admit I have eaten the sausages a couple of times over the course of each week, out of hunger really rather than appetite - so maybe it's a cumulative effect?

Does this mean only eating anything that's entirely whole from now on? There just doesn't seem to be much left that I can eat without worrying.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


curiousgirl Contributor
curiousgirl
Posted

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

For the past few months I've mostly only eaten whole foods, chicken, fish, veggies, fruit, eggs and lactsose free cheese/milk - the only processed food I've eaten are a brand of sausages that adhere to the 20 ppm codex.

I seemed to be doing well and thought I'd finally got a good handle on how to live with this condition and now you guessed it, I'm back to square one with all the old symptoms again :angry:

I have to admit I have eaten the sausages a couple of times over the course of each week, out of hunger really rather than appetite - so maybe it's a cumulative effect?

Does this mean only eating anything that's entirely whole from now on? There just doesn't seem to be much left that I can eat without worrying.

I'm noticing that other issues are showing their ugly little heads. I'm looking at the blood type diet, too. I've noticed that the foods my type should stay away from, have caused problems...more allergy-type problems though...like my tongue burning. After eating at Cafe Gratitude (a gluten-free restaurant in San Francisco (fantastic btw!) other familiar allergy symptoms have popped up (never knew why before kuz nothing had gluten in it)...like my tongue burning. This was after finding out my blood type. I took the menu home and read ingredients and there are 2 things in the meal that my type should avoid. Anyway, it's something to look at.

tmbarke Apprentice
tmbarke
Posted

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

For the past few months I've mostly only eaten whole foods, chicken, fish, veggies, fruit, eggs and lactsose free cheese/milk - the only processed food I've eaten are a brand of sausages that adhere to the 20 ppm codex.

I seemed to be doing well and thought I'd finally got a good handle on how to live with this condition and now you guessed it, I'm back to square one with all the old symptoms again mad.gif

I have to admit I have eaten the sausages a couple of times over the course of each week, out of hunger really rather than appetite - so maybe it's a cumulative effect?

Does this mean only eating anything that's entirely whole from now on? There just doesn't seem to be much left that I can eat without worrying.

I get reactions from sausage - fillers and possible seasoning issues.

I make my own - try this recipe.....it's easy and delicious - I use ground pork or ground turkey - either way - it's gluten-free!!!!!!!

Homemade Italian Turkey Sausage 1 lb. lean ground turkey2 tsps. garlic powder1 1/4 tsps. fennel seed, crushed1 1/4 tsps. sugar1 tsp. salt1 tsp. dried oregano1/2 tsp. pepper Combine everything. Cover and refrigerate for at least 8 hours or overnight. Shape into patties or crumble and cook until no longer pink.

I just gave up on trusting processed meats

dilettantesteph Collaborator
dilettantesteph
Posted

I got more sensitive. First I felt great just cutting out bread and cheerios. Then more and more. Now stuff tested to 5 ppm still gets me. I do mainly whole foods. Good luck.

JBaby Enthusiast
JBaby
Posted

Yes this is common. For me, I am now sensitive to High fructose corn syrup and red dye #40. Dairy is a work in progress.

Skylark Collaborator
Skylark
Posted

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

I joined this board to ask exactly that same question. I have become quite a bit more sensitive on the diet. I used to be able to eat french fries and not worry about the fryer or go to places like Taco Bell and not worry about CC. Suddenly I started reacting to very small amounts of gluten and now I have to be very strict. 20 ppm foods occasionally get me if I eat a lot.

srall Contributor
srall
Posted

Absolutely. And it's a relief to hear it's common. As of right now I have moved to a completely whole foods diet. When I first started this diet I felt great cutting out dairy and wheat. Now I feel like one slip will send me on a downward spiral for days. I avoid wheat (obviously), dairy, corn, soy, wine, and coffee and am now wondering about eggs. It is frustrating.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

I've been trying to see if eggs are causing my morning sneezing. I cut them out for two weeks and it seemed to get better. Then ate them again and it seemed to get worse. Now I am cutting them out again. There are so many other possible triggers, it is hard to tell.

Tazer Newbie
Tazer
Posted

I'm not sure if this is exactly what you meant, but once my girlfriend stopped eating gluten she now has a severe reaction if she eats it. She's been gluten-free for about 8 months, and if she ingests a bite of gluten she will literally be in bed for 2 weeks, the first week of which she is in absolute agony. Unfortunately, she has not seen any benefits from going gluten-free - the naturopath said it would cure her chronic joint pain. I'm reading that it can even take a year or two for the body to heal from gluten, but she has literally not improved one iota - very disheartening.

anabananakins Explorer
anabananakins
Posted

I don't think I'm getting progressively more sensitive, but I'm definately very sensitive now. I can't believe I used to eat that stuff all the time. I'm glad though because the stomach ache and D stops me from ever chancing it. I came really close to getting noodles from the chinese take away the other night but knowing the cross contamination would destroy was incentive enough to get me to walk home and make a proper dinner.

srall Contributor
srall
Posted

I'm not sure if this is exactly what you meant, but once my girlfriend stopped eating gluten she now has a severe reaction if she eats it. She's been gluten-free for about 8 months, and if she ingests a bite of gluten she will literally be in bed for 2 weeks, the first week of which she is in absolute agony. Unfortunately, she has not seen any benefits from going gluten-free - the naturopath said it would cure her chronic joint pain. I'm reading that it can even take a year or two for the body to heal from gluten, but she has literally not improved one iota - very disheartening.

I'm sorry your girlfriend is struggling. This reaction, including the joint pain sounds so similar to my symptoms. I'm only 5 months in. I have good days and bad days. Her intestines may have a lot more damage than mine, because I'm like the others with good days and bad days but definitely major improvement. I guess I would just reiterate whole foods, no processed. And coffee and wine also cause flare ups. I think that joint pain is just awful to deal with. I really feel for her.

williamsburg000 Rookie
williamsburg000
Posted
  • Author

Sorry for taking so long to thank everyone for their replies, my mind's only just started to get back into gear after the glutening.

Well, I guess it looks like 100% whole foods from now on then. Deep down I think I knew what may have been happening with the processed 'gluten free' stuff, but after giving up quite a few things I enjoyed eating, it was just nice to have found something I thought I could eat w/o having problems.

I'll give the sausage recipe a go TMBarke, thank-you. At least I'll know for sure that it will only contain those products I've included, no more taking a gamble even on those processed foods I thought I could trust, or at least perhaps as a treat once in a while.

sandsurfgirl Collaborator
sandsurfgirl
Posted

Sorry for taking so long to thank everyone for their replies, my mind's only just started to get back into gear after the glutening.

Well, I guess it looks like 100% whole foods from now on then. Deep down I think I knew what may have been happening with the processed 'gluten free' stuff, but after giving up quite a few things I enjoyed eating, it was just nice to have found something I thought I could eat w/o having problems.

I'll give the sausage recipe a go TMBarke, thank-you. At least I'll know for sure that it will only contain those products I've included, no more taking a gamble even on those processed foods I thought I could trust, or at least perhaps as a treat once in a while.

How many months gluten free? It was 6 months for me before I felt good and could handle complex foods. You might just need more healing time. It's trial and error. I could not eat tapioca starch for the longest time. Now it's fine.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would...
    2. trents
      - trents replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac...
    3. Gigi2025
      - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

      No, I've not been diagnosed as celiac. Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction. However, avoiding it here in the states. Thanks everyone for your responses.
    4. Rejoicephd
      - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed...
    5. catsrlife
      - catsrlife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results

      Back at the end of July I got this rash on both of my forearms. It started on my right and continued to the left. It was on the top and side. The rash has bumps that would pop with clear liquid if scratched. They would almost crystalize and scab up. They reminded me of chicken pox. They would scab for weeks and not heal much at all except for the blood clotting...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,897
    • Most Online (within 30 mins)
      7,748
    Sgp
    Newest Member
    Sgp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      Back at the end of July I got this rash on both of my forearms. It started on my right and continued to the left. It was on the top and side. The rash has bumps that would pop with clear liquid if scratched. They would almost crystalize and scab up. They reminded me of chicken pox. They would scab for weeks and not heal much at all except for the blood clotting. If the scab was scratched off, it would bleed and bleed until it scabbed up again. The skin has lost its pigment where the scabs are. I figured it was probably either the plant I had trimmed around the 15th or some reaction to the magnesium complex I was taking or an allergic reaction to the asthma meds I was on. I stopped the asthma meds and the magnesium. The rash seemed to get better but when I took the asthma meds it flared up again so I went to the urgent care as my doctor was unavailable. The UC doctor said it probably wasn't the meds and asked about my diet. I said I was strict keto. I usually am, but there is a story around this. I feel amazing on keto. When I eat sugar, wheat, and starchy veggies I feel horrible. Blood sugar goes up, IBS type symptoms, brain fog, etc. But I have a horrible addiction to carbs so I blow it sometimes and after Mom died in 2023, I fell off the wagon. No rashes, just weight gain. I finally went back on keto and then around that time had a piece of pizza (or so, it's hard to stop the carb rush.) So I was strict keto, off and on. She ignored that and prescribed some allergy meds. It didn't go away.  What was happening by then was that the rash was now on my upper elbows, both of them, on the back of my arms. It starts with a very itchy bump, spreads around it and sometimes just burns like crazy and other times just itches. Then it started on the sides of my knees on the oustide, a little bit down the sides of the calves. It's not as bad there as it is on my arms even though it comes and goes (and so does wheat in my diet.) I then got three tiny blisters on each hand, 3 on the insdie of my index finger on the right hand and 3 on the inside of middle finger of my left hand. There is still a little scab there even though it was two weeks ago. No more have appeared on the fingers. But right now the back of the arms above my elbows are starting to itch. At some point I started to think mites from the possum that was sneaking into our house but it's been 3 months and they would be dead already. It wouldn't be from humans because I don't go near any humans although I did take an Uber to the doctor and the bus back. Plus, it's symmetrical. It starts on one side and is almost identical on the other.  I did my DNA with Ancestry and MyHeritage. I don't have the HLA-DQ2 or HLA-DQ8. I do have HLA-DQ2.2. I took the blood test but it was negative. Then again, I don't eat wheat every day. I rarely eat it except for lately when I've been preparing for the blood test if I have to take it again. I don't like to. It makes my joints hurt, gives me brain fog, stomach problems, I sleep in the middle of the day, etc. I have a doctor appointment tomorrow. I hope that she will be more serious about this than the UC doctor was.  So I have no idea. With my luck they'll magically disappear before the doctor appointment. That's what happens with everything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.