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Sleep, Kids, And Gluten


Chakra2

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Chakra2 Contributor

My 2 yr old is in the process of trying to figure out a diagnosis (gluten sensitivity vs celiac). He has GI symptoms but the issue that really got me started looking into all this was sleep. He was still waking 4-5 times a night at 18 months. I asked my pediatrician if it could be food-related and he said no, but I felt like I was seeing a connection and started googling. Anyway, as soon as I took him gluten (and dairy) free, he slept through the night. Instantly. But my pedi still says (as recently as 2 weeks ago) that he doesn't think sleep problems are a celiac/gluten-sensitivity symptom. He's more focused on the GI stuff. So I wanted to ask -- did any of your kids have sleep troubles before they were diagnosed?

Chakra2


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kareng Grand Master

I sleep better with less waking now that I am gluten-free. Don't know if it's just because I may have had stomach upsets that caused me to wake or am sleeping better.

slee Apprentice

My 2 yr old is in the process of trying to figure out a diagnosis (gluten sensitivity vs celiac). He has GI symptoms but the issue that really got me started looking into all this was sleep. He was still waking 4-5 times a night at 18 months. I asked my pediatrician if it could be food-related and he said no, but I felt like I was seeing a connection and started googling. Anyway, as soon as I took him gluten (and dairy) free, he slept through the night. Instantly. But my pedi still says (as recently as 2 weeks ago) that he doesn't think sleep problems are a celiac/gluten-sensitivity symptom. He's more focused on the GI stuff. So I wanted to ask -- did any of your kids have sleep troubles before they were diagnosed?

Chakra2

slee Apprentice

My son absolutely had trouble sleeping, waking up 8-10 times at night prior to diagnosis (18 months). After diagnosis he started waking up 3-4 times a night instead, and now sleeps through.

StephanieL Enthusiast

Food issues can 100% cause sleep issues! Yes yes yes! My DS went from up every hour (yes, around the clock) to sleeping 6-8 hours after taking out a long list of allergens!

TrickyMama Apprentice

It seems at the very least that if gluten is causing your child pain that could wake him up. The pain goes away so he stops waking up. I think your belief is completely legitimate. Just in my not so humble opinion. By he way, I've experienced the same thing with my son but he's 7 so it is easier to get an idea of what wakes him. And what hurts. Good luck with figuring it all out. It's so not easy and doctors are not always the most helpful, sadly. We moms have to do what we have to do and if we know gluten is making our kids sick, we know how to fix that. And the thing is, it's not like gluten is a superfood we are eliminating. It's quite unhealthy for even those with a healthy gut.

MacieMay Explorer

Funny, I should come across this post at 2am, after my 17 mos has been up. We are too struggling with a diagnosis. She has been on and off the gluten several times over the past couple of months. 5 days ago she went back on after, I either accidently gave her something with Gluten or she was cross-contaminated. After that incident, I decided to go back on the Gluten and watch her VERY closely. My husband does not believe that Gluten could be causing her issues, and he's an RN, go figure!! I thought if I put her back on and he could see her symptoms and how closely they are mimicking Celiac, that he would finally see it and agree. No such luck!! He is still coming up with every excuse in the book, everything I think is gluten related, he thinks is something else. It doesn't help that we've had negative celiac panel and negative biopsy. I honestly, believe that she is having an issue with gluten but getting it diagnosed at her age is going to be another story. : ( Anyway, since she has been back on the gluten this week, everynight she has been crying and whining in her sleep, like something is bothering her. She hasn't fully waken up and gone into any full-blown crying fits but she lets out these crys 2-3 times a night (I still have the baby-monitor next to my bed). I remember her doing it in the past, when she was younger and acknowleding it but not really thinking much about. We have since given up dairy too.

I hope this helps and good luck getting your answers!


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brendab Contributor

Yes! When I took my child off (not thinking gluten at the time) which meant me as I was nursing him, he had been waking every 15-20 min. during the NIGHT and sleeping only for about 5 min. at a time during the day. He was 7 months old when it was removed from my diet and I started him on the gluten free (or mostly that is) diet thinking it was JUST wheat. I don't eat rye or barley itself but I know it can be in other things. We just eat a lot of homemade and whole foods so gluten at that point just wasn't a big part of our diet by nature. Every now and then he'd react but I never suspected gluten but was frustrated and wondered what was going on! Anyway, it took 5 months to get him to start sleeping through the night.

RiceGuy Collaborator

I certainly did have tremendous difficulty sleeping before going gluten-free. Just couldn't sleep, and didn't know why. There wasn't much if any reason that I could figure, though looking back, I think it was basically a neurological effect.

Anyway, since going gluten-free/dairy-free, and a few other things (and taking supplements), I have no trouble falling asleep, and there's no restlessness or tossing & turning. Sure wish I knew long ago! I didn't exhibit the "classic" Celiac symptoms, but even if I had, all the doctors I'd been to for stuff while growing up would probably still not have figured it out.

HTH

Skylark Collaborator

I'm not a kid, but an adult who suffered chronic insomnia until I went gluten-free and started getting proper nutrition.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
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      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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