Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red Blood This Morning, Went To The Ped.

brendab

Recommended Posts

brendab Contributor
brendab
Posted

I don't know which way is up anymore everybody but my son had a bit of red streaks in his poop last evening and this morning was more. I saved it in a baggie and took him promptly to the ped. and nothing came of it. My son has his 2 year check-up on Friday and I was simply instructed to keep an eye on his movements until then and see what happens. He will refer me to a ped GI if he has more issues so I don't feel like we got anywhere. I told him about my sons gluten related GI issues since he was a nursling and he did ask me if Celiac's ran through the family and that I don't really know but I know I have issues with gluten but untested. So for now, nothing new to report.

I was hoping to get started with finding a good ped. GI :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

Well, you definitely did the right thing, since blood in stools can be serious.

brendab Contributor
brendab
Posted
  • Author

Well, you definitely did the right thing, since blood in stools can be serious.

He didn't seem concerned at all even with my sons 19 month history with abnormal GI issues. We are searching for a ped. GI doc and may just go straight to the Children's Hospital to find one.

brendab Contributor
brendab
Posted
  • Author

I'm not waiting to "see what happens next", I just contacted Children's Hospital in DC and am making an appt. with the Ped. GI doc there, I am hoping they will see him soon as this bleeding worries me sick!

Skylark Collaborator
Skylark
Posted

Good luck finding a good pediatric GI. I will have my fingers crossed.

Gardening Apprentice
Gardening
Posted

Good for you! I totally gave up on my ped. I hope you get an appt soon. Make sure you tell the receptionist he is having black stools and there has been visible blood in his stool. If there have been any weight gain issues, mention that too.

And if it's still a while before your appt, ask if they have a last minute cancellation waitlist, or if you can periodically call to see if anyone has cancelled.

kareng Grand Master
kareng
Posted

If for some reason they don't give you a quick appt, they have a great ER. If the red blood keeps up, just go straight there. If you go Monday - Friday during the day, you should be seeing a GI in the ER.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


brendab Contributor
brendab
Posted
  • Author

If for some reason they don't give you a quick appt, they have a great ER. If the red blood keeps up, just go straight there. If you go Monday - Friday during the day, you should be seeing a GI in the ER.

He had another poop today with more blood in it and I am waiting for them to get back to me but I don't expect this evening it will happen so cross your fingers that they will get back to me tomorrow!

brendab Contributor
brendab
Posted
  • Author

Good for you! I totally gave up on my ped. I hope you get an appt soon. Make sure you tell the receptionist he is having black stools and there has been visible blood in his stool. If there have been any weight gain issues, mention that too.

And if it's still a while before your appt, ask if they have a last minute cancellation waitlist, or if you can periodically call to see if anyone has cancelled.

Great advice! I'm glad I am a part of this group! I need help and support like this.

brendab Contributor
brendab
Posted
  • Author

Good luck finding a good pediatric GI. I will have my fingers crossed.

Thank you, I appreciate all of the advice and support you have given me!

kareng Grand Master
kareng
Posted

Did you see a doc yet?

brendab Contributor
brendab
Posted
  • Author

Did you see a doc yet?

Yup, then was off on a few more adventures and came home to company and now I have nothing to do so I checked in here :) I took my son back to the ped. this morning and told him that he had 3 poops with blood in them total since Tuesday night so he has given me a referral to a Ped. GI; I haven't heard back from Children's in DC yet. Should I wait or should I call this other one that he recommended (and is closer) and then go with the one that is sooner? How do I know they are even better? I am not sure how to tell.

My son has not had a poop today so I cannot tell if it's any better today or not though.

kareng Grand Master
kareng
Posted

Yup, then was off on a few more adventures and came home to company and now I have nothing to do so I checked in here :) I took my son back to the ped. this morning and told him that he had 3 poops with blood in them total since Tuesday night so he has given me a referral to a Ped. GI; I haven't heard back from Children's in DC yet. Should I wait or should I call this other one that he recommended (and is closer) and then go with the one that is sooner? How do I know they are even better? I am not sure how to tell.

My son has not had a poop today so I cannot tell if it's any better today or not though.

Childrens has a Celiac program. You might check where the closer GI did his residency and how old he is. If he was recently at someplace with a Celiac center, he would probably have a clue. Also, call Childrens again if you want to go there. It's been so long since I worked there, I don't know who to tell you to go to or how appts work. Looks like you can make them on line but I don't know how fast that appt would be.

TrickyMama Apprentice
TrickyMama
Posted

You could also try to see an IBD specialist. Blood in the stool often indicates the possibility of IBD...and the likelihood of having both is not as small as you would think.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yup, then was off on a few more adventures and came home to company and now I have nothing to do so I checked in here :) I took my son back to the ped. this morning and told him that he had 3 poops with blood in them total since Tuesday night so he has given me a referral to a Ped. GI; I haven't heard back from Children's in DC yet. Should I wait or should I call this other one that he recommended (and is closer) and then go with the one that is sooner? How do I know they are even better? I am not sure how to tell.

My son has not had a poop today so I cannot tell if it's any better today or not though.

There is no reason not to make an appointment with both. If when you get to the first appointment you feel comfortable that this doctor is knowledgeable you can always cancel the later appointment. Or you can keep it as a second opinion is not a bad idea. Make sure that you mention the black stool you have seen also. If you can get hard copies of his records to take with you or make sure they have transferred them if they do them all electronically that would be good. I hope they get this figured out soon.

brendab Contributor
brendab
Posted
  • Author

You could also try to see an IBD specialist. Blood in the stool often indicates the possibility of IBD...and the likelihood of having both is not as small as you would think.

Can you tell me a bit about IBD? It seems like you are saying it's common to have IBD and celiac disease? Yikes!

There is no reason not to make an appointment with both. If when you get to the first appointment you feel comfortable that this doctor is knowledgeable you can always cancel the later appointment. Or you can keep it as a second opinion is not a bad idea. Make sure that you mention the black stool you have seen also. If you can get hard copies of his records to take with you or make sure they have transferred them if they do them all electronically that would be good. I hope they get this figured out soon.

This is really my first time bringing up the posibility of Celiacs or some other issue in the bowels for my son, there really aren't any records besides this past Wednesday when his Ped. saw the poop I took in to him to see. Is this what you are wanting me to do? I also had the thought of making an appt. with both for now and play it by ear after that.

I wonder why the black stool and then the red? One is upper intestines and the other is lower.......strange isn't it?

Gardening Apprentice
Gardening
Posted

Just noticed you were in the DC area. I am too, but we went to the Celiac Research Center in Baltimore and saw Dr Safta there - she is the pediatric GI who works with Dr Fasano, who is a top celiac researcher.

She was knowledgable and really great with little kids.

brendab Contributor
brendab
Posted
  • Author

Just noticed you were in the DC area. I am too, but we went to the Celiac Research Center in Baltimore and saw Dr Safta there - she is the pediatric GI who works with Dr Fasano, who is a top celiac researcher.

She was knowledgable and really great with little kids.

Hmmmmmmmm..........I wonder if I should be going there instead? I honestly don't mind the travel if it's for somebody who's specialty is what I believe my son has. I wonder if they have a website I can visit, do you know? Thank you for this tip!

brendab Contributor
brendab
Posted
  • Author

I found it :)

Open Original Shared Link

kareng Grand Master
kareng
Posted

We don't know what the kiddo has yet. Children's does research in all specialties and happens to have a Celiac center so presumably any GI would know about Celiac if that is the issue. They also, train doctors there. Blood in stools could be a lot of things, some fairly minor & some very major. I thought I would take my kid there because they should know about Celiac as well as other diseases. They also have different specialties if they want another body system looked at.

Gardening Apprentice
Gardening
Posted

The Celiac Research Center is part of the University of Maryland hospital/medical school. It is not a stand-alone facility. They have all specialties there, and they have a children's hospital within the big hospital. Dr Safta is actually treating a 19 mos old who was diagnosed with Crohn's at 12 mos, which is quite rare, so she is not exclusive to celiac.

Just an fyi - I didn't realize all of that until we went there.

I would try both Children's and the Celiac Research Center - see where they can get you in the fastest. ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

This is really my first time bringing up the posibility of Celiacs or some other issue in the bowels for my son, there really aren't any records besides this past Wednesday when his Ped. saw the poop I took in to him to see. Is this what you are wanting me to do? I also had the thought of making an appt. with both for now and play it by ear after that.

I wonder why the black stool and then the red? One is upper intestines and the other is lower.......strange isn't it?

I would either bring any records that you have for him or sign releases to have them transferred. You never know what may be significant. I think nowadays they do the transfers electronically so perhaps you can sign the releases as soon as you have appointments scheduled so the new doctor can go over them when he is first seen.

I hope they get him in soon. You must be so worried.

Grace'smom Explorer
Grace'smom
Posted

I'm not waiting to "see what happens next", I just contacted Children's Hospital in DC and am making an appt. with the Ped. GI doc there, I am hoping they will see him soon as this bleeding worries me sick!

Good for you...trust your mom instincts. We really have to be our own medical advocates these days, esp for our little ones...will say a prayer for you that you find the right dr and get the answers you need. Keep us posted. Emily

Grace'smom Explorer
Grace'smom
Posted

We don't know what the kiddo has yet. Children's does research in all specialties and happens to have a Celiac center so presumably any GI would know about Celiac if that is the issue. They also, train doctors there. Blood in stools could be a lot of things, some fairly minor & some very major. I thought I would take my kid there because they should know about Celiac as well as other diseases. They also have different specialties if they want another body system looked at.

Karen, I may have missed a post on this a while back, but I think you were waiting on biopsy results last time I looked...did you get them back? Hope everything went ok. Emily

kareng Grand Master
kareng
Posted

Karen, I may have missed a post on this a while back, but I think you were waiting on biopsy results last time I looked...did you get them back? Hope everything went ok. Emily

No. no biopsy. My kids had blood tests for celiac disease that were odd. Trying to get some info on them. Don't seem to be positive but the Peditrician didn't know what they mean. Sent them to another doc but he has been on vacation & is backed up.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.