Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red Blood This Morning, Went To The Ped.

brendab

Recommended Posts

brendab Contributor
brendab
Posted

I don't know which way is up anymore everybody but my son had a bit of red streaks in his poop last evening and this morning was more. I saved it in a baggie and took him promptly to the ped. and nothing came of it. My son has his 2 year check-up on Friday and I was simply instructed to keep an eye on his movements until then and see what happens. He will refer me to a ped GI if he has more issues so I don't feel like we got anywhere. I told him about my sons gluten related GI issues since he was a nursling and he did ask me if Celiac's ran through the family and that I don't really know but I know I have issues with gluten but untested. So for now, nothing new to report.

I was hoping to get started with finding a good ped. GI :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

Well, you definitely did the right thing, since blood in stools can be serious.

brendab Contributor
brendab
Posted
  • Author

Well, you definitely did the right thing, since blood in stools can be serious.

He didn't seem concerned at all even with my sons 19 month history with abnormal GI issues. We are searching for a ped. GI doc and may just go straight to the Children's Hospital to find one.

brendab Contributor
brendab
Posted
  • Author

I'm not waiting to "see what happens next", I just contacted Children's Hospital in DC and am making an appt. with the Ped. GI doc there, I am hoping they will see him soon as this bleeding worries me sick!

Skylark Collaborator
Skylark
Posted

Good luck finding a good pediatric GI. I will have my fingers crossed.

Gardening Apprentice
Gardening
Posted

Good for you! I totally gave up on my ped. I hope you get an appt soon. Make sure you tell the receptionist he is having black stools and there has been visible blood in his stool. If there have been any weight gain issues, mention that too.

And if it's still a while before your appt, ask if they have a last minute cancellation waitlist, or if you can periodically call to see if anyone has cancelled.

kareng Grand Master
kareng
Posted

If for some reason they don't give you a quick appt, they have a great ER. If the red blood keeps up, just go straight there. If you go Monday - Friday during the day, you should be seeing a GI in the ER.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


brendab Contributor
brendab
Posted
  • Author

If for some reason they don't give you a quick appt, they have a great ER. If the red blood keeps up, just go straight there. If you go Monday - Friday during the day, you should be seeing a GI in the ER.

He had another poop today with more blood in it and I am waiting for them to get back to me but I don't expect this evening it will happen so cross your fingers that they will get back to me tomorrow!

brendab Contributor
brendab
Posted
  • Author

Good for you! I totally gave up on my ped. I hope you get an appt soon. Make sure you tell the receptionist he is having black stools and there has been visible blood in his stool. If there have been any weight gain issues, mention that too.

And if it's still a while before your appt, ask if they have a last minute cancellation waitlist, or if you can periodically call to see if anyone has cancelled.

Great advice! I'm glad I am a part of this group! I need help and support like this.

brendab Contributor
brendab
Posted
  • Author

Good luck finding a good pediatric GI. I will have my fingers crossed.

Thank you, I appreciate all of the advice and support you have given me!

kareng Grand Master
kareng
Posted

Did you see a doc yet?

brendab Contributor
brendab
Posted
  • Author

Did you see a doc yet?

Yup, then was off on a few more adventures and came home to company and now I have nothing to do so I checked in here :) I took my son back to the ped. this morning and told him that he had 3 poops with blood in them total since Tuesday night so he has given me a referral to a Ped. GI; I haven't heard back from Children's in DC yet. Should I wait or should I call this other one that he recommended (and is closer) and then go with the one that is sooner? How do I know they are even better? I am not sure how to tell.

My son has not had a poop today so I cannot tell if it's any better today or not though.

kareng Grand Master
kareng
Posted

Yup, then was off on a few more adventures and came home to company and now I have nothing to do so I checked in here :) I took my son back to the ped. this morning and told him that he had 3 poops with blood in them total since Tuesday night so he has given me a referral to a Ped. GI; I haven't heard back from Children's in DC yet. Should I wait or should I call this other one that he recommended (and is closer) and then go with the one that is sooner? How do I know they are even better? I am not sure how to tell.

My son has not had a poop today so I cannot tell if it's any better today or not though.

Childrens has a Celiac program. You might check where the closer GI did his residency and how old he is. If he was recently at someplace with a Celiac center, he would probably have a clue. Also, call Childrens again if you want to go there. It's been so long since I worked there, I don't know who to tell you to go to or how appts work. Looks like you can make them on line but I don't know how fast that appt would be.

TrickyMama Apprentice
TrickyMama
Posted

You could also try to see an IBD specialist. Blood in the stool often indicates the possibility of IBD...and the likelihood of having both is not as small as you would think.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yup, then was off on a few more adventures and came home to company and now I have nothing to do so I checked in here :) I took my son back to the ped. this morning and told him that he had 3 poops with blood in them total since Tuesday night so he has given me a referral to a Ped. GI; I haven't heard back from Children's in DC yet. Should I wait or should I call this other one that he recommended (and is closer) and then go with the one that is sooner? How do I know they are even better? I am not sure how to tell.

My son has not had a poop today so I cannot tell if it's any better today or not though.

There is no reason not to make an appointment with both. If when you get to the first appointment you feel comfortable that this doctor is knowledgeable you can always cancel the later appointment. Or you can keep it as a second opinion is not a bad idea. Make sure that you mention the black stool you have seen also. If you can get hard copies of his records to take with you or make sure they have transferred them if they do them all electronically that would be good. I hope they get this figured out soon.

brendab Contributor
brendab
Posted
  • Author

You could also try to see an IBD specialist. Blood in the stool often indicates the possibility of IBD...and the likelihood of having both is not as small as you would think.

Can you tell me a bit about IBD? It seems like you are saying it's common to have IBD and celiac disease? Yikes!

There is no reason not to make an appointment with both. If when you get to the first appointment you feel comfortable that this doctor is knowledgeable you can always cancel the later appointment. Or you can keep it as a second opinion is not a bad idea. Make sure that you mention the black stool you have seen also. If you can get hard copies of his records to take with you or make sure they have transferred them if they do them all electronically that would be good. I hope they get this figured out soon.

This is really my first time bringing up the posibility of Celiacs or some other issue in the bowels for my son, there really aren't any records besides this past Wednesday when his Ped. saw the poop I took in to him to see. Is this what you are wanting me to do? I also had the thought of making an appt. with both for now and play it by ear after that.

I wonder why the black stool and then the red? One is upper intestines and the other is lower.......strange isn't it?

Gardening Apprentice
Gardening
Posted

Just noticed you were in the DC area. I am too, but we went to the Celiac Research Center in Baltimore and saw Dr Safta there - she is the pediatric GI who works with Dr Fasano, who is a top celiac researcher.

She was knowledgable and really great with little kids.

brendab Contributor
brendab
Posted
  • Author

Just noticed you were in the DC area. I am too, but we went to the Celiac Research Center in Baltimore and saw Dr Safta there - she is the pediatric GI who works with Dr Fasano, who is a top celiac researcher.

She was knowledgable and really great with little kids.

Hmmmmmmmm..........I wonder if I should be going there instead? I honestly don't mind the travel if it's for somebody who's specialty is what I believe my son has. I wonder if they have a website I can visit, do you know? Thank you for this tip!

brendab Contributor
brendab
Posted
  • Author

I found it :)

Open Original Shared Link

kareng Grand Master
kareng
Posted

We don't know what the kiddo has yet. Children's does research in all specialties and happens to have a Celiac center so presumably any GI would know about Celiac if that is the issue. They also, train doctors there. Blood in stools could be a lot of things, some fairly minor & some very major. I thought I would take my kid there because they should know about Celiac as well as other diseases. They also have different specialties if they want another body system looked at.

Gardening Apprentice
Gardening
Posted

The Celiac Research Center is part of the University of Maryland hospital/medical school. It is not a stand-alone facility. They have all specialties there, and they have a children's hospital within the big hospital. Dr Safta is actually treating a 19 mos old who was diagnosed with Crohn's at 12 mos, which is quite rare, so she is not exclusive to celiac.

Just an fyi - I didn't realize all of that until we went there.

I would try both Children's and the Celiac Research Center - see where they can get you in the fastest. ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

This is really my first time bringing up the posibility of Celiacs or some other issue in the bowels for my son, there really aren't any records besides this past Wednesday when his Ped. saw the poop I took in to him to see. Is this what you are wanting me to do? I also had the thought of making an appt. with both for now and play it by ear after that.

I wonder why the black stool and then the red? One is upper intestines and the other is lower.......strange isn't it?

I would either bring any records that you have for him or sign releases to have them transferred. You never know what may be significant. I think nowadays they do the transfers electronically so perhaps you can sign the releases as soon as you have appointments scheduled so the new doctor can go over them when he is first seen.

I hope they get him in soon. You must be so worried.

Grace'smom Explorer
Grace'smom
Posted

I'm not waiting to "see what happens next", I just contacted Children's Hospital in DC and am making an appt. with the Ped. GI doc there, I am hoping they will see him soon as this bleeding worries me sick!

Good for you...trust your mom instincts. We really have to be our own medical advocates these days, esp for our little ones...will say a prayer for you that you find the right dr and get the answers you need. Keep us posted. Emily

Grace'smom Explorer
Grace'smom
Posted

We don't know what the kiddo has yet. Children's does research in all specialties and happens to have a Celiac center so presumably any GI would know about Celiac if that is the issue. They also, train doctors there. Blood in stools could be a lot of things, some fairly minor & some very major. I thought I would take my kid there because they should know about Celiac as well as other diseases. They also have different specialties if they want another body system looked at.

Karen, I may have missed a post on this a while back, but I think you were waiting on biopsy results last time I looked...did you get them back? Hope everything went ok. Emily

kareng Grand Master
kareng
Posted

Karen, I may have missed a post on this a while back, but I think you were waiting on biopsy results last time I looked...did you get them back? Hope everything went ok. Emily

No. no biopsy. My kids had blood tests for celiac disease that were odd. Trying to get some info on them. Don't seem to be positive but the Peditrician didn't know what they mean. Sent them to another doc but he has been on vacation & is backed up.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748
    Sarahmegan
    Newest Member
    Sarahmegan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.