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What To Expect When "glutened"?

StephanieL

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StephanieL Enthusiast
StephanieL
Posted

Any ideas what I can expect and when? DS has been gluten-free for 2 months now. What should I look out for? He's already been up screaming 3 times in 4 hours. I am so sad and angry.

Also, we were suppose to get blood work done 6 months after going gluten-free. Do you think they'll want to push that back?

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StephanieL Enthusiast
StephanieL
Posted
  • Author

Thanks for all the help people! Really. I have tried to help others here and get nothing when I need something. I know nothing is owed to me but I am so over this board.

Skylark Collaborator
Skylark
Posted

What are we supposed to say? Everyone's symptoms are totally different, especially once they've been gluten-free for a while and they last for different amounts of time. I hope he's doing better today.

No, they won't push bloodwork back for one glutening. It shouldn't make a difference in the antibodies four months from now.

Skylark Collaborator
Skylark
Posted

...

Roda Rising Star
Roda
Posted
He's already been up screaming 3 times in 4 hours.

Sounds like you are already getting answers to his reaction.

Grace'smom Explorer
Grace'smom
Posted

Any ideas what I can expect and when? DS has been gluten-free for 2 months now. What should I look out for? He's already been up screaming 3 times in 4 hours. I am so sad and angry.

Also, we were suppose to get blood work done 6 months after going gluten-free. Do you think they'll want to push that back?

Hi Stephanie,

I sure hope your little one is feeling better after the bread ingestion. Accidental glutening is bound to happen; we just went through something similar this week but it was my fault. I didn't panic, just felt bad about it and realized these things are bound to happen from time to time. I think we have to remember that these little guys went for a looong period of time with gluten; so while getting gluten-ed accidentally is not an ideal scenario post diagnosis, the sky won't fall in. They just don't feel well at all, poor little guys. My daughter's celiac friend has violent reactions to accidental glutenings, and I think everyone's child is different. I was wondering the same thing about the 6 mo. follow up bloodwork, but decided I'll tell the GI when we are at that follow up appt. so they have the info. I would think one glutening wouldn't affect the entire 6 mos. that dramatically? In any case, on another note: Don't feel bad if sometimes it takes a few days for people to reply to your posts even w/multiple "views". I've had the experience that no one replies, but it is not personal, its more likely that they don't have the answer. We're all here to help one another out and sometimes you get more info. than others. You sounded upset and frightened about your child, I hope things are better now. Take care. Emily

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