Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much Gluten For A Reaction.


Wheatlover

Recommended Posts

Wheatlover Newbie

Hi All,

I am awaiting my TTG test results but I know deep down ( way down!) that I have at the least, a gluten sensitivity. I am wondering how much gluten needs to be consumed for a reaction. I am sure it differs from person to person but would a crumb cause a reaction?

I just had a banana and peanut butter for breakfast and feel horrible...I am slowly trying to go gluten free but it is sooo hard. However, I feel so bad lately that I know I have to do it.

Would love to hear your input. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

You've already answered your own question -- it depends on the person. Some people are set off by a crumb and others can eat a sandwich with no problem.

richard

ravenwoodglass Mentor

I'm a react to a crumb person. It might be a good idea to be as strict as you possibly can for a bit at first. Once you have healed you will have a better idea of how careful you need to be. One thing to keep in mind is that even if you do turn out to be someone who seems to tolerate stuff like a doughnut once in a while or a beer on the weekend you are still doing damage to yourself.

crampy girl Apprentice

Hi All,

I am awaiting my TTG test results but I know deep down ( way down!) that I have at the least, a gluten sensitivity. I am wondering how much gluten needs to be consumed for a reaction. I am sure it differs from person to person but would a crumb cause a reaction?

I just had a banana and peanut butter for breakfast and feel horrible...I am slowly trying to go gluten free but it is sooo hard. However, I feel so bad lately that I know I have to do it.

Would love to hear your input. :D

I can not eat bannanas either. They give me horrible cramps, maybe it's the fructose? would be nice to know how common that was.

I am gluten free for a month and most of my cramps and diarhea have gone away, but I tested neg on scrreening. Maybe your intestines are so damaged that you can't digest bannanas - lactose is anothercommon offender.

anabananakins Explorer

Hi All,

I am awaiting my TTG test results but I know deep down ( way down!) that I have at the least, a gluten sensitivity. I am wondering how much gluten needs to be consumed for a reaction. I am sure it differs from person to person but would a crumb cause a reaction?

I just had a banana and peanut butter for breakfast and feel horrible...I am slowly trying to go gluten free but it is sooo hard. However, I feel so bad lately that I know I have to do it.

Would love to hear your input. :D

I am a crumb person :-(

I took a weekend to go gluten free. Pigged out on Friday night and Saturday, spent Sunday de-glutening the kitchen and giving stuff I wasn't going to eat up in time and cookware I didn't trust away to friends; then I ate my final gluten-y meals Sunday night and finished off the kitchen. Monday morning I drank my final favourite flavour of (gluten-containing) energy drink and went to work and my new gluten free life. By Tuesday I was already starting to feel better and by the following week people were commenting on my appearance, the deathly black shadows under my eyes were almost gone.

I needed to give myself a few days, but I also needed a fixed deadline. The weekend that I did this was a day or so after I got my final results and I knew that I didn't have celiac and that there would be no further testing so my doctor was happy for me to go gluten free. If you're still likely to have a biopsy, you should wait until after that's been done.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.