Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk


deebra

Recommended Posts

deebra Rookie

i was diagnosed with celiac last week after my colonoscopy, i see dairy is not allowed, you make think im crazy but i get seriously sick feeling if ive not had milk for a few days, ive been this way since i was a child, anytime im sick i can drink milk and it makes me well, no matter what the illness, yes it sounds crazy, i know, i just cant be without my 1% milk, what do you suggest? anything


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You can have dairy. It's just hard to digest so some people cut it out in the beginning. Some people always have problems with it. I never gave up dairy. It doesn't cause me any issues right now. Try just the gluten for a month and if you still have problems, you will have to see what other things you have trouble with. I know some will say that you must give most everything up and add it back a little at a time. I didn't & I know others didn't go that way. You can always eliminate other foods later if you stomach isn't better.

mushroom Proficient

I was lactose intolerant at first, but always could eat yogurt. In fact, to this day, I also get seriously sick if I do not start my day with yogurt, whether eaten with cereal. nuts and fruit, or in a smoothie. Did not do it yesterday and suffered last night.

Just a word of advice. There is lots of wonderful information on this forum, but not all of it will apply to you. When it gets right down to it, you have to listen to what your body is telling you. That is the best way to recover. If your body tells you it does not like something, don't eat it.

Where you will get the best help is in finding out those things that will help make you feel better. The more you read the better your understanding will be of where you are at and what course of action is best for you. That may not be what someone else did.

  • 2 weeks later...
bincongo Contributor

I agree with all the comments so far. I realized I was lactose intolerant when I had a bowl of ice cream after being gluten free for a couple weeks. I may have had lactose problems all along but my Celiac symptoms might have covered it up. Anyway I tryed all the gluten free milk substitutes and didn't like them but many people do. I have chosen to take Lactaid milk and seem to be doing fine with it. You can get it in any grocery store. To me it tastes like real milk, I guess because it is in a way. Some people have problems with the lactose in milk and others with the casein in milk. If you only have problems with the lactose then you can take Lactaid milk. You might get lucky and not have problems with milk at all.

Looking for answers Contributor

That "seriously sick" feeling you get after being without Milk for a few days could be withdrawal symptoms. I'm always weary when people say they absolutely can't imagine living without a certain food - my naturopath said that sounds the bells for food allergies/intolerance, as we often crave the very things we are allergic to. If once you've gone gluten free and still aren't feeling 100%, you may need to investigate this further. There are supplements you can take to help you get through the "detox" period. Otherwise, if you don't continue with health issues after going gluten-free, then I don't see why you'd need to eliminate it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,034
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.