Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saw A Dietician The Other Day...


Superfudge

Recommended Posts

Superfudge Rookie

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarolinaKip Community Regular

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

I can relate, I have been in some type of pain everyday since Nov 09. I was dx in May wih Celiac. My dr gave me some handouts, but it was my dietitian who only does gluten-free that was my biggest help in the beginning. She was amazing! She and my dr office both suggested this forum for me. When everyone looks at me like I'm crazy and thinks I'm nuts about CC, this forum helps me know I'm not alone.

Fozzie Newbie

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

After being dx in Feb I askked for a referral to a dietician and received a call last week for an appointment. That was usefull :( ! I said "thank you but I already have the info That I need" thanks to this forum and some digging myself. You need to be proactive with this situation. I managed to find a cooworker who is a dietician and celiac ( I didn't know) and she gave me tips on where to shop etc.. Having acess to a search through the university library has provided a plethora of info but this site has been the most informative

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.