Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Crying Out Loud

Aphreal

By Aphreal
in Coping with Celiac Disease

Recommended Posts

Aphreal Contributor
Aphreal
Posted

If one more person asks "well, what DO you eat then?" UGH!

Secondly I had my colonoscopy. Couple of spots, waiting on biopsy results.

Thirdly, I had some knarly oral surgery yesterday so now I hurt, I can hardly open my mouth and since I had work on both sides, I have nowhere to chew really. I am doped on vicodin so I cant drive and the kids are being... well kids.

Then my cycle started 3 days early

I can't catch a break!

Changed my antispasmotic and probiotic. Trying to keep the constipation at bay. Trying to bring my blood pressure down but yesterday at the surgeons office it was 145/104. I knew I would be put to sleep and Im on BP meds so why it was so high, I don't know.

*sigh* thanks for listening.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RachelisFacebook Apprentice
RachelisFacebook
Posted

Awe. Someone needs a hug!! :wub:

I understand completely about the "What DO you eat?" question. I know its because they care, but there are people out there who have it far worse than I do. I'm going to Thanksgiving at my best friend's house (I'm in college in TN, and my family is in PA, so going home isn't quite an option), and its harder on me than I think them. But I know its because they're concerned and don't want me getting sick.

:wub:

tehjrow Rookie
tehjrow
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

i-geek Rookie
i-geek
Posted

*hugs* Sorry you're having such a rough go.

You need a smart-a$$ answer for the "what DO you eat?" question. You could always respond thusly (with a big smile on your face and a cheerful voice): "Puppies! They're gluten-free."

Aphreal Contributor
Aphreal
Posted
  • Author

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

What the heck? I am SO sorry. That is horrible!! Stress is a big trigger for my symptoms and that would take me over the edge. I really am sorry, lifting you up for strength.

Thank you all for the encouragement. I knew I could come here. I think I am having cramping from a spot in my bowel where maybe she had a problem with the scope. Its a sharp pain. blah. hope it goes away.

Aphreal Contributor
Aphreal
Posted
  • Author

*hugs* Sorry you're having such a rough go.

You need a smart-a$$ answer for the "what DO you eat?" question. You could always respond thusly (with a big smile on your face and a cheerful voice): "Puppies! They're gluten-free."

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

ravenwoodglass Mentor
ravenwoodglass
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

((((((((((((hugs))))))))))))))))))

I'm sorry you have to go through that. Just went through a divorce myself, it isn't easy.

Hope you get over the glutening soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

:D:D:D

That would be a great reply.

I hope your mouth heals quickly. Dental stuff is no fun. Relax as much as you can and hopefully you have lots of yummy liquid and mooshy stuff on hand.

Aphreal Contributor
Aphreal
Posted
  • Author

Ive had to lay off anything crunchy because of dental issues for like a month. He extracted the biggest of the problems so when I DO heal, I hope I can go back to my carrots and gluten-free crackers.

xox

Another quip..

So what DO you eat? "Well.... I used to have 4 children"

BWAAHAHAHAAHA! *sigh*

tarnalberry Community Regular
tarnalberry
Posted

I like the "overwhelm them with the obvious" answer to "what do you eat", especially when I say I'm gluten and dairy free, and have had to eliminate a number of things for my baby's reflux.

"Oh, you know. Chicken, fish, beef, pork, eggs, carrots, zucchini, peas, bean sprouts, bananas, apples, oranges, pears, mangos, avocado, rice, corn, quinoa, millet, lentils, beans..."

(by the time I get this far, whoever asked the question is usually doing some sort of "ok, ok... I get the picture, you can stop now". and they usually look a little shamefaced for asking. :P )

i-geek Rookie
i-geek
Posted

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

Hee... "what DO you eat?" "Oh, cardboard, tree bark, mushrooms I find in the yard- sometimes things go funny colors when I eat those..."

i-geek Rookie
i-geek
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

Oh no. So sorry to hear that you're also having a rough go. :(

Aphreal Contributor
Aphreal
Posted
  • Author

Hee... "what DO you eat?" "Oh, cardboard, tree bark, mushrooms I find in the yard- sometimes things go funny colors when I eat those..."

HAHAHA I hope you have flowers in your hair when you are able to use that one.:)

Aphreal Contributor
Aphreal
Posted
  • Author

I like the "overwhelm them with the obvious" answer to "what do you eat", especially when I say I'm gluten and dairy free, and have had to eliminate a number of things for my baby's reflux.

"Oh, you know. Chicken, fish, beef, pork, eggs, carrots, zucchini, peas, bean sprouts, bananas, apples, oranges, pears, mangos, avocado, rice, corn, quinoa, millet, lentils, beans..."

(by the time I get this far, whoever asked the question is usually doing some sort of "ok, ok... I get the picture, you can stop now". and they usually look a little shamefaced for asking. :P )

From one Tiff to another, I am hankerin for some chocolate. Oh and I love the idea of listing everything in nauseating detail.... and keep talking if they try to walk away. I mean they DID ask, right? :)

notme Experienced
notme
Posted

haha - on my first gluten-free trip out of town i brought my own breakfast: honey nut chex. and my own dish and spoon. so, in a big crowd of people in our hotel room i am munching away while everybody is discussing what i can and cannot eat. (my first "feed the freak" experience) i get done eating and take the bowl to wash it out and promptly drop it into the sink where it shatters into a million pieces. so now when anybody asks me what i can eat i tell them, "honey nut chex and broken glass" they usually shaddup after that :D:D:D

Jestgar Rising Star
Jestgar
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

WTF?? She's so not good enough for you.

Dellers Apprentice
Dellers
Posted

Big huggs we all have bad days then mother nature decides to kick us while we are down.

GFinDC Veteran
GFinDC
Posted

@tehjrow

Sorry tehjrow, that's a hard one to take. I got's 2 ex's myself. I talk to one on a fairly regular basis. She got re-married, to a stupid brain surgeon, why the heck would she want that? Silly 'ooman. But what the hey, life goes on and they are a happy family and I am happy for them. Took me a while to get over it though. We went to a mediator rather than lawyers. Might help in your case I don't know. Mediators can help both sides through the process, versus lawyers being a one sided, kind of adversarial thing.

@Apreal

Ya'al with your what do I eat lines are reminding me of the dead baby jokes. Ewww!

I heard yesterday that a tornado hit the little burg 2 of my sisters live in, The Plains, Ohio. Both of them are ok and their homes are barely scratched. Thank god for sparing them!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.