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Dh Flare While Eating Gluten?

crimsonviolet

By crimsonviolet
in Dermatitis Herpetiformis

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crimsonviolet Apprentice
crimsonviolet
Posted

I knowingly ate wheat the other day. I knew there'd be consequences, but I was hungry and wanted those darn mozzarella sticks. My DH has been in total remission for about 3 weeks, but suddenly WHILE I WAS EATING I looked down and had several new blisters. I expected an outbreak, but not before I even finished my food!

Now of course the rash is getting worse, and as per the usual course I expect it to last a few weeks. Funny thing is, I accidentally ate barley malt a few weeks ago, and didn't have an outbreak.

So... does this mean it's NOT DH? Is it actually an allergy to wheat? Or is it normal to not react to every glutening?

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ChemistMama Contributor
ChemistMama
Posted

I knowingly ate wheat the other day. I knew there'd be consequences, but I was hungry and wanted those darn mozzarella sticks. My DH has been in total remission for about 3 weeks, but suddenly WHILE I WAS EATING I looked down and had several new blisters. I expected an outbreak, but not before I even finished my food!

Now of course the rash is getting worse, and as per the usual course I expect it to last a few weeks. Funny thing is, I accidentally ate barley malt a few weeks ago, and didn't have an outbreak.

So... does this mean it's NOT DH? Is it actually an allergy to wheat? Or is it normal to not react to every glutening?

Have you been diagnosed by a Dr. with DH, or is it a self-diagnosis? If you diagnosed yourself, you may want to try the iodine patch test, since you just glutened yourself. Search the forums here and you'll find some info. Besides, if you have DH that equals celiac and no more wheat for you, ever, sorry! Also, does your rash get better when you take Benadryl or an antihistamine? If it does you probably don't have DH but an allergy, since antihistamines don't help DH.

crimsonviolet Apprentice
crimsonviolet
Posted
  • Author

I've done the iodine patch test and it was an overwhelming positive.

I've never taken an antihistamine for the rash. It has always just come and gone, seemingly at random.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes it is not unknown for the reaction to happen that fast. Before I had been gluten free for a few years I also would start the breakout when I was toward the end of a meal when I accidently got gluten. Now my DH is the last thing to show up in a reaction and it is very mild. To get those antibodies out of your skin you really need to stop cheating. It can take up to two years for the antibodies to leave the skin and everytime you cheat you are reactivating them.

crimsonviolet Apprentice
crimsonviolet
Posted
  • Author

To get those antibodies out of your skin you really need to stop cheating. It can take up to two years for the antibodies to leave the skin and everytime you cheat you are reactivating them.

I know. :(

That was actually the first time I intentionally cheated since going gluten-free, though I've been accidentally glutened several times. I know better, but it gets so depressing not being able to eat out at all, ever.

ChemistMama Contributor
ChemistMama
Posted

I know. :(

That was actually the first time I intentionally cheated since going gluten-free, though I've been accidentally glutened several times. I know better, but it gets so depressing not being able to eat out at all, ever.

If you're careful there are some places you can eat out, probably just not with the foods used to eating. There are some chains that you can eat at, like PF Changs, Monical's pizza (in the midwest), Panera, Moe's mexican, Qdoba, Outback, Pizza Unos, etc. I personally really like thai and indian food, and have found places near me where I can trust the food. Where do you live? Maybe we can help find you some celiac friendly places near you.

crimsonviolet Apprentice
crimsonviolet
Posted
  • Author

If you're careful there are some places you can eat out, probably just not with the foods used to eating. There are some chains that you can eat at, like PF Changs, Monical's pizza (in the midwest), Panera, Moe's mexican, Qdoba, Outback, Pizza Unos, etc. I personally really like thai and indian food, and have found places near me where I can trust the food. Where do you live? Maybe we can help find you some celiac friendly places near you.

I have had good luck with Chili's and Pei Wei, but we've been glutened at Chick-fil-a. The kids sometimes get ice cream and apples at McDonalds. I guess what I really miss is fast food. The cheap and easy occasional treat for those times when I just don't want to cook, kwim? Gawd I miss just ordering a pizza! lol

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