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Biopsy Results Today

adab8ca

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adab8ca Enthusiast
adab8ca
Posted

So the report said "total villous atrophy" and I saw pictures of what it looked like (mine-no folds but with veiny looking patches) and what it should look like (smooth with folds and like the inside of your cheek). Dr. couldn't believe that I only had symptoms in the last 6 months and never heard of neurological presentions like my neuropathy. Didn't seem to wonder about other symptoms that I may have (since only GI symptoms were poor appetite and weight loss), which is too bad because I bet there are other patients out there that have the crazy symptoms that I had (incl. depression, anxiety etc). I guess by the time they get to see him, someone has ferreted out the problem.

He then said "ok, you have to see a dietician, see ya" basically and that was it. ALmost brusque!

The visit was very short. Thanksfully my GP is wonderful, so I will work with her and take it from here.

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notme Experienced
notme
Posted

yeah, my doc kinda freaked me a little - for me (us) it is a giant life change. for the doctors i suppose it is business as usual. while i was still trying to wrap my head around the whole thing, she was on to the next patient. not bad, just brief. if that was your experience, too, i guess that is normal. lol maybe we have the same dr :D

granting you PERMISSION TO HEAL AND BE WELL ;) i don't know about you, but i have 4 kids, 1 husband, 3 grandkids and all the accessories that go with them - i always put myself last. but i am letting them help mama get better now. :)

MrsJWells Newbie
MrsJWells
Posted

yeah, my doc kinda freaked me a little - for me (us) it is a giant life change. for the doctors i suppose it is business as usual. while i was still trying to wrap my head around the whole thing, she was on to the next patient. not bad, just brief. if that was your experience, too, i guess that is normal. lol maybe we have the same dr biggrin.gif

granting you PERMISSION TO HEAL AND BE WELL wink.gif i don't know about you, but i have 4 kids, 1 husband, 3 grandkids and all the accessories that go with them - i always put myself last. but i am letting them help mama get better now. smile.gif

Hugs! Sometimes I think the requirement to be a doctor is to be able to remove all emotion from the situation. :( Sad actually!

Notme...you said something so important. We so often put everybody elses needs before our own. I have 6 kids, 3 grandkids and all the accessories that go with them and I too have put myself last on that list. NOW...I have moved myself up the priority list and am letting them help me too. I sometimes wonder if we would have just put ourselfs ON the list maybe we would have figured some of this stuff out long ago. We all need to grant ourselves permission to heal and be well! I like that! Notme..you are one wise gluten-free cookie! :)

ravenwoodglass Mentor
ravenwoodglass
Posted

I am glad you got the answer. Now you can start healing. I hope you are feeling better soon.

Emilushka Contributor
Emilushka
Posted

It makes me so sad to hear about doctors who behave that way. I'm a medical student and the way docs act these days makes me sad sometimes. A lot of that is due to pressure from insurance companies to see as many patients as possible so they can afford their support staffs (most offices have to have one person dedicated to only handling Medicare claims, for example). But whatever the reason, it just plain sucks. I am sad to see medicine in this state and I take your stories personally because I want to do better for my patients.

adab8ca Enthusiast
adab8ca
Posted
  • Author

It makes me so sad to hear about doctors who behave that way. I'm a medical student and the way docs act these days makes me sad sometimes. A lot of that is due to pressure from insurance companies to see as many patients as possible so they can afford their support staffs (most offices have to have one person dedicated to only handling Medicare claims, for example). But whatever the reason, it just plain sucks. I am sad to see medicine in this state and I take your stories personally because I want to do better for my patients.

Well, I am in Canada and I expect although the reasoning is different, there are HUGE waiting lists for these things, so they have to move people on as fast as possible....There is huge pressure from the gov't (and of course, the general population) to reduce wait times..MRI's can take months to get. I got my endoscopy in just under 3 months and that was considered FAST.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      Small Bowel Resection 12 inches

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      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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      Small Bowel Resection 12 inches

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