Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wish I Had An Anwser...

KLynne0509

By KLynne0509
in Coping with Celiac Disease

Recommended Posts

KLynne0509 Newbie
KLynne0509
Posted

It was about two months ago that I was training for a half marathon. Right in the middle of training, after somewhat of an easy run, that's when everything started. I was so overcome with cramping and shooting pains in my stomach and intestines, that I was doubled over in pain and could hardly walk for the next 3 days. I thought that maybe I had just somehow overdone things in my run so I thought I should just take it easy, so I did. But the pains never went away. I had a tiny bit of diarrhea but that had subsided. Then came sharp pains sometimes after I ate and random waves of nausea all the while sharp pains all over in my intestines and still all of the cramping. It was about 3 weeks of this and then I started seeing the doctor. He has seen me once a week for 3 weeks now doing blood urine and stool samples. Havn't gotten the results back from the stool sample yet (I will be in to see this Thursday) but the urine and blood tests all came back negative. My doctor is still testing for Crohns, diverticulitis, celiac, colitis and all sorts of other stuff. At the moment, he is having me take extra fiber and also be on the gluten free diet. I am just frustrated, annoyed and I wish I could find out something. With everything coming back negative, it makes me feel like they think I am making it up or something. But Im not, especially after the regular exams he had done the first session, it was almost like just after I ran I was in so much pain...

Does anyone have any suggestions? By the way, I love food and man is this gluten free thing hard! Never knew how many things contained or could contain gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Hopefully the doctor tested you for celiac before he had you start the diet. If your gluten free the tests will be a false negative. You can have a false negative even on a full gluten diet though.

It sounds like he is checking for all the likely issues. Yes it can be depressing when you feel so horrible and all tests come back negative but excluding possible other issues is always a good idea.

Are you getting any relief from the diet yet? If you go with whole unprocessed foods that is best as there is a lot to learn about the gluten free lifestyle. Do feel free to ask any questions you need to.

I hope they get things figured out for you soon.

KLynne0509 Newbie
KLynne0509
Posted
  • Author

I do have one question for you. Since I am only seeing a family practitioner, how long do you think I should wait until I see a GI?

Skylark Collaborator
Skylark
Posted

I do have one question for you. Since I am only seeing a family practitioner, how long do you think I should wait until I see a GI?

If all the usual blood and stool tests come back negative and it's time for an endoscopy/colonoscopy, that's when I'd ask for a referral. It really doesn't matter one way or the other whether your family practitioner or a GI is running all the bloods, and your family practitioner probably has a more open schedule. I would want an experienced GI on the scope. I don't think family practitioners usually try to scope people anyway.

Good luck figuring out what is wrong.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,051
    • Most Online (within 30 mins)
      7,748
    Anna4386
    Newest Member
    Anna4386
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.