Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Woe Is Me...just A Rant...

NorthernElf

By NorthernElf
in Coping with Celiac Disease

Recommended Posts

NorthernElf Enthusiast
NorthernElf
Posted

;) Just gotta get it out...I'm a pretty roll with the punches person but sometimes this just gets to me ! My folks are up for Thanksgiving...I'm 41 and I still have parent issues, LOL. I have my kitchen segregated for my gluten free life. I have an island on wheels where all the gluten stuff goes, food labelled in the fridge, pantry, and freezer that is mine/gluten free. This is my lifestyle & they have seen what happens to me when I get sick.

Last night my generous parents offered to buy supper (take out) and the options where Chinese food or pizza. The kids (I have 3) chose chinese food. I made steamed rice. I can handle this...I made my own food. It's the attitudes that get me. We're eating and my mom is going on about how good the chinese food is...and oh, how is your food ? The stuff is spread out all over the table and everyone goes into the living room to watch a show - I get to clean it up. Dear DH came in to help and I asked him to get it out of here (the garbage) so I didn't have to smell it anymore. He took out all the chinese food containers and the whole garbage (which I Lysoled). Ugh.

DH & I have talked about this earlier - he brought it up - about how he thought it was weird that my folks weren't very supportive of my gluten-free diet. When we go down to see them they have had supper ready for us - spaghetti or something else I can't eat. Now I guess I expect this at work and so forth & bring my own food but I guess one's family should be a bit more supportive !??!?!?!? I believe I would be more supportive of my own kids...heck, I know I would.

Oh well, what's a gal to do? Visits are short term...suck it up...roll with it...thanks for letting me vent !!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

My mom is currently mad at me that I won't go out to eat. " you can have salad, steak & baked potato". Yes I can but maybe not at that restaurant. I have tried to explain cc many times and have given up. I could go on and on but why waste this beautiful day? :)

stephsteph Newbie
stephsteph
Posted

It's too bad that they aren't more supportive of you, especially if they know gluten makes you sick. Maybe it's because they come from a time where people didn't talk about medical stuff, and you ate what was in front of you. Just keep doing what you're doing, and ignore them the best you can!

curiousgirl Contributor
curiousgirl
Posted

It's too bad that they aren't more supportive of you, especially if they know gluten makes you sick. Maybe it's because they come from a time where people didn't talk about medical stuff, and you ate what was in front of you. Just keep doing what you're doing, and ignore them the best you can!

I think family can be the worst because we expect, or hope for their support...others, not so much. Sounds like you have a very supportive husband...lucky girl!

MelindaLee Contributor
MelindaLee
Posted

Sorry they can't be more supportive. I agree, I would be too! Make sure hubby knows how much you appreciate his support.

K8ling Enthusiast
K8ling
Posted

Man, that bites. ((hug))

txplowgirl Enthusiast
txplowgirl
Posted

In a way i'm glad my dad's not here anymore because I can just see him shaking his head and going, "bulls**t, it's all in your head. Be glad you have something to eat". Oh boy. He was 1 of 11 who grew up during the great depression, they all picked cotton and ate whatever could be grown and shot. That included possum, squirrel, armadillo, snake, etc. He never let us forget it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted
:rolleyes: Your dad loved you and would have faced anyone trying to gluten you with a big fist, once he understood the harm it causes. The two of you could have made some tasty dishes, I imagine, from whatever protein he presented. A little olive oil, garlic, onion, celery, carrots, rosemary, possum. :rolleyes:
K8ling Enthusiast
K8ling
Posted

HA! Possum!

gf-soph Apprentice
gf-soph
Posted

It does suck that they aren't more supportive. I don't think you have to 'suck it up' in the sense that it doesn't matter, but you have to choose the best way to deal with the situation. If they haven't had much exposure to the diet and other issues, get them one of the books about it - sometimes it has more credibility coming from an independent source. However, if you've been gluten free for a while I think that it might be fruitless to expect more of them. When deciding how much it matters I would look at how they act in general. If they are otherwise loving and understanding, then maybe they are the sort of people who find it hard to understand certain illnesses. If there are other issues about them being inconsiderate or hurtful then it might be part of a bigger picture.

Also on a basic level even if they did get more understanding I wouldn't trust them to prepare any food for me, ever. I can't imagine them ever grasping the finer points of cross contaimination for example.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,697
    • Most Online (within 30 mins)
      7,748
    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.