Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy/col. Results-Can Anyone Advise?

Britt26

Recommended Posts

Britt26 Rookie
Britt26
Posted

Well, I had my Endo/Col this morning. I have to wait 5-10 business days for biopsy results--AAAHHH! I can't stand the wait! :P I wondered if anyone could take a look at what the printed report says they found during the procedures:

-Mild atrophy in the second part of the duodenum

-Erythema and petechiae in the antrum and stomach body compatible with gastritis

-Slightly irregular Z line in the gastroesophageal junction

-Mild nodularity in terminal ileum, distal

-Normal in the whole colon

What stands out to me is the first one; Mild atrophy in the second part of the duodenum. I googled this and it says this can be indicative of Celiac Disease.

They took several biopsies of the duodenum, but I know it can still be missed, so I'm just wondering if any of these things sound like Celiac to any of you? I have suspected it for a while now and my symptoms include: IBS-diarrhea for many years, bloating, gas, unexplained right abdominal pain for nearly 5 months, low Iron levels, extreme fatigue, and I also have Hashimotos (another autoimmune disease). Thanks guys!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

I think there can be several different things that can cause atrophy, but since your testing is over you can begin your gluten free living. You don't need to wait on biopsy results to start.

SaraKat Contributor
SaraKat
Posted

Did you ever have a celiac blood test?

Britt26 Rookie
Britt26
Posted
  • Author

Yes, but they were negative. Also, they didn't do all the recommended tests.

Emilushka Contributor
Emilushka
Posted

-Mild atrophy in the second part of the duodenum

-Erythema and petechiae in the antrum and stomach body compatible with gastritis

-Slightly irregular Z line in the gastroesophageal junction

-Mild nodularity in terminal ileum, distal

-Normal in the whole colon

I'm a med student. Not as good as the pathologists who will look at your biopsies. BUT I have seen a bunch of colonoscopies and endoscopies and I know something about medicine.

The mild atrophy is highly suggestive of Celiac Disease. You're right on in thinking that that supports the diagnosis.

The erythema and petechiae do suggest gastritis. This was my only significant finding of Celiac, so it could certainly be related to the Celiac Disease as well (from personal experience). What it translates to in normal people English is "stomach inflammation".

The slightly irregular Z-line refers to changes usually caused by chronic reflux (heartburn). This can also be a consequence of Celiac.

I'm not sure what to make of the nodularity of the ileum. That sounds like a way of describing atrophy to me, but honestly, I don't really know. That's not a description I've heard before.

The colon being normal is also consistent with Celiac Disease.

I hope this was helpful for you. Remember that I'm no pathologist or GI doc - I'm just a med student. But I don't want you to sit there and wonder without answers.

I hope you feel better soon!

ETA: I just wanted to add that "erythema" means redness (a sign of inflammation) and "petechiae" are burst tiny blood vessels (another sign of stomach irritation and inflammation). I realized I didn't translate each term individually.

Britt26 Rookie
Britt26
Posted
  • Author

Wow, you're awesome, thank you so much!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.