Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had My Endoscopy Yesterday....


kpryan

Recommended Posts

kpryan Apprentice

So I had my endoscopy yesterday after a 1 month gluten challenge. I know that many argue that 1 month is not long enough (I was gluten free for about 1 year to 18 months).

The biopies won't come back for 1 week. He also took biopsies for H pylori. The immediate endoscopy results were:

- Z-line irregular

- Small hiatal hernia present

- Gastritis (localized mild inflammation was found in the gastric antrum)

My doc thinks that I most likely just have reflux since the Nexium seemed to have resolved my bathroom issues. Although my chief complaint of bad abdominal bloating remains.

I guess we'll see when the biopsies come back, but I have a feeling that they'll be negative. Blood work has yet to come back either.

Yesterday was the first day in a month I didn't eat gluten, and my husband already said that i looked better ( less bloating...)

I asked if reflux caused bloating and he said not usually...and since I dont' really have heartburn...I'm still confused...

Not that i am wishing a disease on myself, but i just want a concrete answer...which i may have to realize i may not get.

So I'm going back off gluten now to see if that helps... but still had excessive bloating before when I was gluten-free..so hopefully some answer will pop up in the biopsies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, nobody "just has reflux". There has to be a cause, just as there is for the bloating, and any other symptom. And I absolutely agree that if you don't have heartburn, then you don't need heartburn medication. So I think your confusion is basically the result of the doctor's ignorance. Sorry, but I do believe you should seek a more informed doctor.

It would not be surprising if the test results come back negative. Many do, as you probably know.

For the bloating, I've found certain supplements to be helpful. Which are most likely suited may depend on the nature of those "bathroom issues" you eluded to. But one I'd immediately recommend is some digestive enzymes. Make sure they're derived from microbes, as these can withstand the normal acidity of the stomach. This also avoids the ones derived from barley (even though they usually claim gluten-free!). Both NOW Foods and Doctor's Best make some nicely comprehensive formulas, going much further than the typical sort.

Another thing to look into is additional food intolerances. Many find that eliminating other problem foods resolves bloating and other issues. Things like soy, dairy, corn, eggs, tree nuts, peanuts, and grains, have all been known to be similarly problematic for many people.

SGWhiskers Collaborator

Heartburn is one of the symptoms of reflux. Reflux can exist without heartburn though. As the stomach contents flow back into the esophageus, the esophageus can have damage at the cellular level. PPI's have been found to be the most effective means of controlling reflux. Now with that said, there are lots of ways to manage reflux without medications and their side effects. I agree, looking for the cause is a great approach. I was able to eliminate my reflux symptoms (no heartburn) buy avoiding my food triggers.

Highly acidic foods such as tomatoes and orange juice can be triggers. So can consuming beverages at the same time or immediately after meals.

You already know that even with a negative biopsy/bloodwork after so long gluten free with a short challenge, you may still have celiac. You may also have to go hunting for other possible food triggers for the bloating. I assume it is GI bloat vs. edema.

I'm curious about the reason for your gastritis. I had the same diagnosis on my biopsy, and no one ever gave me a good explaination except to say it might have been medications I was taking.

Jaymie Jaymz Rookie
So I'm going back off gluten now to see if that helps... but still had excessive bloating before when I was gluten-free..so hopefully some answer will pop up in the biopsies.

I've been gluten free for three weeks now and intitially my bloating got much better, but just this last week it's gotten bad again. I think it may be fructose malabsorption. I did without fruits and fructose-heavy foods yesterday and my stomach's already gone down considerably. I'm going to try it again today and see what happens. But it might be something you can experiment with. In all honesty, I hate the bloating above every other symptom.

I did intense exercise for five months straight and busted my butt, only to still have that pregnant look with my stomach. That's when I started researching and came across Celiac Disease. Until I figure all of this out, I'm just done with the workouts.

kpryan Apprentice

I hear you... I definitely hate the bloating most of all.

I too had looked into fructose mal....it was so frustrating though b/c that cuts out a lot!

I was even thinking that my abdominals were just really out of whack after having 2 kids so I really amped up my ab workouts...but the bloating is just not normal.

I've been gluten free for three weeks now and intitially my bloating got much better, but just this last week it's gotten bad again. I think it may be fructose malabsorption. I did without fruits and fructose-heavy foods yesterday and my stomach's already gone down considerably. I'm going to try it again today and see what happens. But it might be something you can experiment with. In all honesty, I hate the bloating above every other symptom.

I did intense exercise for five months straight and busted my butt, only to still have that pregnant look with my stomach. That's when I started researching and came across Celiac Disease. Until I figure all of this out, I'm just done with the workouts.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.