Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mystery Rash


hazelbrown10

Recommended Posts

hazelbrown10 Rookie

Hi all! Thanks for your comments on my other posts - gluten stuff, blood sugar stuff, etc. With test results negative, I went gluten-free anyway, and I feel better. I went dairy-free too (starting yesterday) for a while to see what happens to my skin and I slept better and I'm more alert today. Yay!

I still have this mystery rash though, that's been there for over a year. It's on the sides of my trunk right below my armpits. It's mostly one patch about size of my hand, the skin is slightly pinkinsh with "dry skin" looking flakes on it. There are a few spots that are not part of the main patch. It got a lot better gluten-free, but it's still there and sort of gets better and worse now. Initially the doctor said tinea versicolor, now "eczema," but...? I really want it to go away! It looks like it could be eczema, sort of looks like a really mild case of psoriasis... I dunno.

It doesn't itch at all. I get really dry skin in winter (it's back - boo!) which is totally different, and IS itchy, cracked and painful. The doc said "I bet it's more irritated after a shower, right?" but it isn't. The dry skin sure is though!

Anyone have mystery rashes with gluten intolerance? Any idea what this could be? I'm not sure if I should pay the $30 referral fee to see either a dermatologist or allergist.

Thanks!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

My son had small patches of dry looking skin for years. He was very sensitive to shampoo and soaps. I buy sensitive body wash for him and the suave children's shampoo seem to be ok. After him being gluten free and extremely light on dairy his scaly patches have disappeared.

Now he does have some new spots, they are not scaly and are not causing him any problems, to me it looks like vitiligo, his ped. says it looks like tinea versicolor. He said to use selson blue shampoo and just leave it on.

I think your best bet is to continue to be gluten free and possibly dairy free to for a while and see if it clears up.

missy'smom Collaborator

hazel, is this in the area that is covered by the sides of your bra? is the material on the bra there different from the material on the other parts of your bra? Maybe this could be a chemical sensitivity/allergy? I would vote for seeing an allergist. Maybe ask about latex allergy?

Dixiebell Contributor

I did not even think of that. My son also has a latex allergy.

missy'smom Collaborator

My son was allergy tested last year came back pos. for latex. In the process of learning more about it for him, I have had some unpleasant reactions, put 2 and 2 together, got tested and discovered that I have a latex allergy as well. I've learned the hard way that even if something doesn't contain latex, but contains the chemicals that are used to process latex, a person can react. These chemicals are commonly in very unlikely seeming things like parts of clothing(trims, elastics etc.), sanitary napkins, diapers etc.

hazelbrown10 Rookie

Missy's mom, that's an interesting idea. The rash is pretty much where my bra covers it, though there are smaller splotches down my sides almost to my waist. I'm not sure if allergies spread like that since I've never had one. All my bras say they contain spandex but not latex... but maybe they are similar or the same chemicals are used in making both like you said? I guess I will just have to go bra-less for a while... hehe! ;) One thing's for sure, I'd much rather be allergic to latex than be lactose intolerant!!

missy'smom Collaborator

Missy's mom, that's an interesting idea. The rash is pretty much where my bra covers it, though there are smaller splotches down my sides almost to my waist. I'm not sure if allergies spread like that since I've never had one. All my bras say they contain spandex but not latex... but maybe they are similar or the same chemicals are used in making both like you said? I guess I will just have to go bra-less for a while... hehe! ;)

Manufacturer's don't always list everything on the label. You could call the company but they may or may not disclose. Most I've called were helpful. One wouldn't tell me fabric/trim contents. :ph34r:

Yeah, it might be worth a try to take a break from that bra in some way for a while and see if things improve. I can't predict what may happen as my reactions have been different in nature and from different things but I know that reactions like that often occur. I am researching this lately and looking into replacing some everyday clothing items with safe alternatives to prevent/reduce the chances of me reacting, beat this allergy at it's own game, while I still have some control. Some folks with latex/chemical allergy wear cotton camisols/tanks under their bras to protect their skin. Just make sure the camisol/tank doesn't have any elastic or such, just plain cotton and that the bra straps etc. don't touch your skin. Maybe an old Hane's T-shirt with the sleeves and neckband cut off? There are latex-free all cotton bras available. Just google it.

If these things do seem connected and that you may be latex allergic/chemical sensitive, then make sure to see an allergist and get tested.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748

    westman3d
    Newest Member
    westman3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.