Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed, Need Some Feedback!

Danio

By Danio
in Coping with Celiac Disease

Recommended Posts

Danio Newbie
Danio
Posted

Hey everyone!

My name is Danielle. I am 22 years old and just had the biopsy done to comfirm Celiac disease....I have a couple questions for you guys...Every since i was 2 I must have had Celiac and they just didn't know. I have always had the big stomach and skinny everywhere else....I was wondering...now that I know that I have Celiac and am gluten free (unless I slip unknowingly) when will my stomach go away? Will I ever have a flat stomach again!? I look like I am pregnant! I have been sucking it in for years and years, I look like I have a beer belly and used to get made fun of in Junior high school...Please tell me this will go away....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted

Mine went away...until I have my period or get glutened. :)

11475 Apprentice
11475
Posted

Mine went away too. :) It took only a few weeks of being on a gluten free diet, but I guess it might take a different amount of time for every individual.

Danio Newbie
Danio
Posted
  • Author

Well mine has been this way for years.....I have been gluten free for a little over a month and I havent seen any changes...

I guess it could take longer since I have 20 years of damage....maybe?

GFinDC Veteran
GFinDC
Posted

It can take a varying amount of time, and there is no fixed amount of time anyone can give you. Each of us is different. Some steps that might help are:

Avoid all sugar (feeds bad bacteria that make gas)

Avoid all dairy (many celiacs have lactose intolerance at first)

Take a dairy-free pro-biotic sometimes.

Avoid all processed foods to start. (This makes it simpler to avoid gluten CC).

Maybe try a betaine HCL once a week. (creates extra stomach acid and can help with unwanted bacteria in the stomach.

Try a peppermint tea or Altoids peppermints to relieve stomach gas (makes belching it out easier)

Consider you may have other food intolerances at work if it doesn't resolve on a strictly gluten-free diet in 3 months.

  • 5 months later...
badlass Newbie
badlass
Posted

I'm also new to all of this (including the board, which my wonderful older sister found for me over the weekend!) and am VERY relieved to hear that the tummy can go away! I've struggled with mine for years and it's caused me a lot of heartache, especially since I have anorexia nervosa. my baby belly has always been the bane of my existence and have had people think I was pregnant! I can't wait until this tummy goes back to normal, maybe then my paranoia about people staring at my baby belly will go away and I can get on with my life - as superficial as that sounds, I'm sorry!

eatmeat4good Enthusiast
eatmeat4good
Posted

I too am skinny with a big belly. I find the more protein I eat, the less belly I have. Protein is very healing for us Celiacs. I eat carbs like potatoes and rice very sparingly. Shocked to find I have less belly at 47 with only 7 months gluten free than I have had in my entire life. Also starting to feel stomach muscles growing and I ain't even doin any crunches!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
Danio Newbie
Danio
Posted
  • Author

That is what I have been trying to stick to. Since I have lactose intolerance along with Celiac....meat, fruits and veggies is all I should be eating anyway...just really hard diet to follow.

Then, just a couple months ago I had to get YET ANOTHER biopsy done on my stomach due to it being inflamed which I think was caused by gluten....not really sure....but they told me that my bipsy was almost identical to the last one 6 months ago...that means it hasn't healed at all!! What am I doing wrong and what am I missing!? Ugh....

Danio Newbie
Danio
Posted
  • Author

Also...another question....does being a celiac, give you a bigger chance of being soy intolerant also? Or just lactose?

GFinDC Veteran
GFinDC
Posted

Hi Danio,

Good to see you back after 6 months! I hope things are going well for you. Sounds kinda like they aren't going perfect though.

Did you get your test results from the first biopsy and the 2nd? Not that I am a doctor at all, but you might learn something by studying them yourself and comparing the difference. Celiac is a "do it yourself" kind of disease, you can't count on doctors to "fix" you. There are no pills or surgeries or what-not that make it go away. What makes it better is sticking to a 100% gluten free diet, and finding any secondary food intolerances that might appear in your body. Nutrionists who are celiac savy may give you a starting point but that is all. Most of the work to figure out what is safe for you to eat is up to you.

You are not alone though as the people on this forum are in the same boat and have walked the same path. So stick around and read and ask questions and learn from our mistakes.

As far as other food intolerances go, yes, there are many that can crop up. But you might be the rare case that has none also. Only you can determine that, by testing your own body. You have to live in it, so you might as well learn something about it.

Anyway, welcome back and don't be afraid to ask questions and learn with the rest of us. Celiac can be beneficial if you learn how to take care of your body better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    2. HAUS
      - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free...
    3. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    4. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    5. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,433
    • Most Online (within 30 mins)
      7,748
    Caty
    Newest Member
    Caty
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.