Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed, Need Some Feedback!

Danio

By Danio
in Coping with Celiac Disease

Recommended Posts

Danio Newbie
Danio
Posted

Hey everyone!

My name is Danielle. I am 22 years old and just had the biopsy done to comfirm Celiac disease....I have a couple questions for you guys...Every since i was 2 I must have had Celiac and they just didn't know. I have always had the big stomach and skinny everywhere else....I was wondering...now that I know that I have Celiac and am gluten free (unless I slip unknowingly) when will my stomach go away? Will I ever have a flat stomach again!? I look like I am pregnant! I have been sucking it in for years and years, I look like I have a beer belly and used to get made fun of in Junior high school...Please tell me this will go away....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted

Mine went away...until I have my period or get glutened. :)

11475 Apprentice
11475
Posted

Mine went away too. :) It took only a few weeks of being on a gluten free diet, but I guess it might take a different amount of time for every individual.

Danio Newbie
Danio
Posted
  • Author

Well mine has been this way for years.....I have been gluten free for a little over a month and I havent seen any changes...

I guess it could take longer since I have 20 years of damage....maybe?

GFinDC Veteran
GFinDC
Posted

It can take a varying amount of time, and there is no fixed amount of time anyone can give you. Each of us is different. Some steps that might help are:

Avoid all sugar (feeds bad bacteria that make gas)

Avoid all dairy (many celiacs have lactose intolerance at first)

Take a dairy-free pro-biotic sometimes.

Avoid all processed foods to start. (This makes it simpler to avoid gluten CC).

Maybe try a betaine HCL once a week. (creates extra stomach acid and can help with unwanted bacteria in the stomach.

Try a peppermint tea or Altoids peppermints to relieve stomach gas (makes belching it out easier)

Consider you may have other food intolerances at work if it doesn't resolve on a strictly gluten-free diet in 3 months.

  • 5 months later...
badlass Newbie
badlass
Posted

I'm also new to all of this (including the board, which my wonderful older sister found for me over the weekend!) and am VERY relieved to hear that the tummy can go away! I've struggled with mine for years and it's caused me a lot of heartache, especially since I have anorexia nervosa. my baby belly has always been the bane of my existence and have had people think I was pregnant! I can't wait until this tummy goes back to normal, maybe then my paranoia about people staring at my baby belly will go away and I can get on with my life - as superficial as that sounds, I'm sorry!

eatmeat4good Enthusiast
eatmeat4good
Posted

I too am skinny with a big belly. I find the more protein I eat, the less belly I have. Protein is very healing for us Celiacs. I eat carbs like potatoes and rice very sparingly. Shocked to find I have less belly at 47 with only 7 months gluten free than I have had in my entire life. Also starting to feel stomach muscles growing and I ain't even doin any crunches!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
Danio Newbie
Danio
Posted
  • Author

That is what I have been trying to stick to. Since I have lactose intolerance along with Celiac....meat, fruits and veggies is all I should be eating anyway...just really hard diet to follow.

Then, just a couple months ago I had to get YET ANOTHER biopsy done on my stomach due to it being inflamed which I think was caused by gluten....not really sure....but they told me that my bipsy was almost identical to the last one 6 months ago...that means it hasn't healed at all!! What am I doing wrong and what am I missing!? Ugh....

Danio Newbie
Danio
Posted
  • Author

Also...another question....does being a celiac, give you a bigger chance of being soy intolerant also? Or just lactose?

GFinDC Veteran
GFinDC
Posted

Hi Danio,

Good to see you back after 6 months! I hope things are going well for you. Sounds kinda like they aren't going perfect though.

Did you get your test results from the first biopsy and the 2nd? Not that I am a doctor at all, but you might learn something by studying them yourself and comparing the difference. Celiac is a "do it yourself" kind of disease, you can't count on doctors to "fix" you. There are no pills or surgeries or what-not that make it go away. What makes it better is sticking to a 100% gluten free diet, and finding any secondary food intolerances that might appear in your body. Nutrionists who are celiac savy may give you a starting point but that is all. Most of the work to figure out what is safe for you to eat is up to you.

You are not alone though as the people on this forum are in the same boat and have walked the same path. So stick around and read and ask questions and learn from our mistakes.

As far as other food intolerances go, yes, there are many that can crop up. But you might be the rare case that has none also. Only you can determine that, by testing your own body. You have to live in it, so you might as well learn something about it.

Anyway, welcome back and don't be afraid to ask questions and learn with the rest of us. Celiac can be beneficial if you learn how to take care of your body better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.