Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Regarding Magnesium Injections

Nanjee

By Nanjee
in Related Issues & Disorders

Recommended Posts

Nanjee Rookie
Nanjee
Posted

:) Hi cdford - I am a "newbie" - diagnosed with severe gluten intolerance through Entero Lab - I have also had Fibro for 20 years ;) Lived well with it until the last 4-1/2 years. Gluten intolerance has added some very bad things to the pot !!!

I have been browsing this site for a while now - and finally had the courage to make a few posts.

Your post reagrding magnesium injections mad me almost fall off of my chair !!!

I have been recieving mag injections - 1000 mg/weekly - for 5-1/2 months. I am SO excited to see that there is someone else out there who also uses mag IM.

It has relieved my migraines (mostly) - does help with some pain - gives me a little more energy - makes me feel warmer - shut down muscle spasms - they have been a Godsend after spending 4-1/2 years thinking I was certainly dying.

My husband has learned how to give the injections, so we will be able to do them at home. We also may use them a little more often - maybe 500 mg every 2nd or third day. We give them deep into the big old Glute muscles :)

Thanks also for posting the gluten-free brand names of Xylocaine - my internist will be ordering for me next week - and I am going to let him know this information.

There is such a wealth of knowledge here - I am sure it will take me quite a while to sift through it all.

I bet you never knew when you posted this that you would be helping out a newbie so much ----- thank you !!!

I am looking forward to getting to know you all better.

Hugs to you .......

Nanjee

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cdford Contributor
cdford
Posted

Thanks Nanjee. I am sorry that you are having to use the IM version. My endocrinologist says that they are not better, just more painful than the subcutaneous ones. They do work quickly and make a world of difference. I am glad to have given you some information and some encouragement. Keep me posted on how you are doing. You will probably see your FMS symptoms get much better over time. I know I have.

Do you also have more trouble with weather changes? Those thunder storms and weather fronts can be a real pain (both literally and figuratively).

Nanjee Rookie
Nanjee
Posted
  • Author

Thanks for your reply Donna :)

Yes - weather plays a big part in FM. I live in Wisconsin - and the humudity has been so high this summer it is sickening. Between that and the barometer going up and down several times a day - well inside with the a/c running is where I stay.

I actually feel "ill" going out into the heat and humudity.

I lived so well with FM for so long - and this set back has really been hard for me to take. I was used to going and going (like that bunny on TV !!!) - had flares - but could get them under control within a few days. Not only has the gluten intolerance thrown a wrench into the FM - but I didn't listen to my body very well - ran my own business and just kept going. Right now I have been unable to really work for the past 6-8 months. Time to get my body back into shape - one step at a time.

If nothing else - I have learned to appreciate life a little more, and not be so driven. Chronic pain certainly humbles a person. Luckily I have a good rheumy - and he is doing all he can to help me. The rest is up to me !!!

Magnesium is such a wonderful mineral - it is the most beneficial med to me right now. Pain meds cover the pain - but getting to the root of the pain is the goal.

Do you have blood levels done for red blood cell mag every so often ?? I need to get another mag level and Vit D level done again next week.

Not a fun illness - but it could be worse. More and more research is being done.

Wishing you a pain free day - and thanks again. I have printed out your message regarding the mag subq's - and will share this with my internist.

Hugs,

Nancy

cdford Contributor
cdford
Posted

I know about that heat thing! My pain levels may be much higher during the winter, but at least I can still think even through the pain meds. The heat just drains me. Being in Georgia, we get the heat and the humidity for several months out of the year. Praise God for A/C.

My blood levels have become stable for everything except my liver enzymes and my cholesterol since going gluten-free. The endo only tests once a year or so now. Just one of the long term benefits of being gluten-free...fewer needles in the long run.

Nanjee Rookie
Nanjee
Posted
  • Author

Hi Donna - hope you don't get sick of me asking about magnesium ???!!!!!!!

When you have a few free minutes, would you be willing to share some of the background you have with Mag IM's (SubQ's) with me ??? I would really like to share this info with my internist - who has been a Godsend.

How long have you been doing the injections ? How often do you inject them ?

Can a person get TOO much magnesium ? (I don't feel that way right now - I feel like I need another injection !!!)

My internist has been SO good - he's willing to go out on a limb and try new things. He and I, I think, are both surprised as to how well the Mag IM's deliver antispasmodic properties to my muscles. Obviously - this is a VERY mush needed mineral in my body.

I have tried and tried the oral mag - all different types - and just end up with super loose stools - I don't want that again !!! :o

With the mag IM's - my intestines almost seem to "calm down". Natures own muscle relaxant !!!!

Right now my shoulders, neck, and head feel as if they were in a vice. Makes me very nauseated, and dizzy. Within one hour of injection - my head feels so much clearer - and the pain is gone.

But then to wait another week for the next injection - it's just too long of a wait. :(

My husband has now learned to give the shots - I draw them up and he injects - and I am thinking that 500 mg every 2-3 days may help me tremendously. Maybe not this dose forever - but for right now I am looking at quality of life and comfort.

I have never had FM pain this severe in 20 years - but my upper body muscles just can not release themselves. I have to call the nurse tomorrow to put in a prescription to the pharmacy.

I know some people who take 1000 mg Orally of mag every day - wish I could be one of them !!! Maybe some day ???

Thank you so much in advance for your support. Again - you will never know how much you have helped this "newbie" :) Blessings to you !!!

Hugs,

Nancy

Nanjee Rookie
Nanjee
Posted
  • Author

I'm bumping this up for Donna .

Thank you :+)

Nancy

cdford Contributor
cdford
Posted

Thank you, Nancy. I have had a full week and haven't gotten back to this one.

I will be glad to share any info I can on the mag sulfate injections. They have been wonder drugs for me over the past few years. I began in the mid/late 90s. If your doctor would like to contact my endocrinologist who prescribed them, I'm sure Dr. Delcher would be happy to give him even more info.

I like the smaller subq shots because I can use them as needed and I get a very quick (minutes) hit from them. When my hand is curled so badly that my nails are cutting into my palm, they will begin to loosen almost before the end of the shot.

You probably can get too much magnesium, but I am not certain where that break point would be. I know that we need more than most people because our bodies do not use it properly and our muscles use too much.

You may also want to ask if you can get a prescription muscle relaxer such as Soma (gluten-free generics available) on a short term basis to let you relax a little. If the problem is just shortness of magnesium, they might not help in the long run anyway.

There is another post going right now on FMS that has a good list of meds in it. I just added it today along with a long post with encouragement and positive steps to take.

E-mail me and I will share the detailed info on the doctor if you would like it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nanjee Rookie
Nanjee
Posted
  • Author

Hugs to you, Donna ----- email on it's way.

Such a nice person to take time to share with me ......

I just can't thank you enough :)

Nancy

  • 2 weeks later...
Nanjee Rookie
Nanjee
Posted
  • Author

Hi Donna :)

Just a quick thank you - again - for all the info regarding Mag injections.

I pick up all of my "little vials" today - 500 mg IM every 4-5 days.

We'll see if that amount is enough to cover the awful headaches and muscle spasm. Sure hope so !!!

At least my internist is willing to try - and that means so much. A good doctor never stops learning, I think.

He looked at all the info you gave me, and ordered the gluten free med.

Hope you are doing well - and that the heat and humudity isn't too bad. FM does NOT like barometer changes, or high dew points. Our barometer has been going up and down for the past 2 weeks - humidity and dew points as if this were Florida - YUCK :angry:

I truely wait for autumn - sounds crazy - but autumn in Wisconsin is the best I ever feel.

Thanks again, Donna ............

Hugs,

Nancy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,768
    • Most Online (within 30 mins)
      7,748
    deniserdh
    Newest Member
    deniserdh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Refractory or super sensitive?

      By knitty kitty · Posted

      @Levi, How are you doing?  Sorry I missed your posts.   How's your thyroid?  Did your Vitamin D stabilize?  Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D.  Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form.  Also, Thiamine is needed to active Vitamin D.   Hypothyroidism can be caused by Thiamine deficiency.  The thyroid is an organ that uses lots of thiamine.  sometimes thyroid deficiency can also cause hyperthyroidism, or swings between both hyper- and hypo-thyroidism. We need more Thiamine when we're sick with an infection (like Covid) or injured.  We need more Thiamine when we're physically active.  We need more Thiamine when we're emotionally stressed or worried.  Our brain uses the more Thiamine just thinking than our muscles do while running a marathon.  Thiamine is extremely important in fighting infections.  Covid patients and long haulers have found taking Thiamine has improved their survival rate and long term symptoms.   Consider taking a Thiamine supplement like Benfotiamine which has been scientifically shown to promote intestinal healing.  Damaged villi need thiamine to grow back.   Be sure to take a magnesium supplement, too.  Thiamine and magnesium make life sustaining enzymes together.  You also need magnesium to keep calcium in the bones.  The thyroid regulates calcium.  A wonky thyroid can lead to reduced bone density.   Remember the B vitamins all work together in concert so adding a B Complex to Benfotiamine and magnesium supplements and Vitamin C would be great in improving absorption of nutrients while we're dealing with celiac disease. Namaste
    • lizzie42
      Gluten free and oat free bars not sugary?

      By lizzie42 · Posted

      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any ideas? 
    • knitty kitty
      Inflammation and Menier’s disease link?

      By knitty kitty · Posted

      Oh, @MagsM, Sorry you had that happen with Niacin.  500mg is the maximum amount of Niacin one should take.  Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time.  All the B vitamins work together in concert.  Niacin in doses at 500 mg or above have been used by doctors to lower triglycerides levels and raise HDL, the good cholesterol.  Pharmaceuticals to do the same thing are more expensive and thus more profitable for physicians. Has your doctor tested you for H. Pylori?  An infection by H. Pylori can be tested for by your doctor.  H. Pylori can cause low tTg IgA results, too.   I would hold off on the microbiome test for now.  Your microbiome is going to change when you go gluten free.  Your microbiome will change when you start taking Thiamine.  Thiamine supplementation influences which microbes grow in the intestines, encouraging beneficial bacteria and getting rid of the bad ones.  Thiamine in the form Benfothiamine promotes intestinal healing, too.  Adopting the Autoimmune Protocol Diet (by Dr. Sarah Ballantyne, a Celiac herself) after diagnosis will also change your microbiome.  This is the best diet to heal and recover, IMO.   If you're going to have more testing done for vitamin deficiencies, don't take vitamin supplements beforehand, otherwise the tests will measure the vitamin supplements in your bloodstream and give false results.  Same thing will happen if you take B vitamin shots.  The supplements you mentioned (Arterosil HP and Vascanox HP) are herbal support and do not contain all eight B vitamins.  There's no harm in taking them, but I prefer a B Complex that contains all the B vitamins in activated forms like Life Extension's Bioactive Complete B Complex.  All the B vitamins work together in concert.  Magnesium is important to supplement as thiamine and magnesium make life sustaining enzymes together.  Do not buy supplements containing Thiamine Mononitrate because it is not biologically active.  It is very hard for the body to utilize.  Most of it (70%) passes out unused.    Yes, my Meniere's disease has not returned.  I was deficient in Vitamin D.  I took high doses of Vitamin D 3 to correct the deficiency quickly.  I also took TTFD (tetrahydrofurfuryl disulfide) which is a form of thiamine different from Benfotiamine.  TTFD can cross the blood brain barrier without a carrier, so it can get into the brain very easily.  TTFD helps the Vagus nerve function.  The Vagus nerve regulates the ears and balance, and also the digestive system.  I like Allithiamine by Ecological Formulas.  I also like Thiamax by Objective Nutrients.  You should have improvements within a hour with TTFD.  TTFD is much stronger, so lower doses will give amazing benefits (50-200 mg).   I hope this helps give you some direction to take on your journey!
    • MagsM
      Inflammation and Menier’s disease link?

      By MagsM · Posted

      Thank you so much for this in depth analysis. I am currently taking Vit D3/K2 5000IU daily.i started taking a flushing Niacin but foolishly took a 500mg tab and nearly passed out! I have just ordered a gut microbiome genome test and it will be interesting to see what my current balance of microbes are. After I finish diagnosis I will definitely go gluten free. Diagnosis will inform exactly how strict I’ll need to be regarding cross contamination etc. my focus will be on healing the gut. I have also been focusing on the oral microbiome - cutting out FL and using more natural products as well as daily oil pulling. I read from some of your other forum entries about Benfothiamine and I’ll definitely order that. I’ll make sure my doc orders more detailed vitamin and mineral panel plus total IGA as well as the DGP-IGA and DGP-IGG tests. We will see if I can get the endoscopic biopsy done. Do you think I should request Vitamin B shots to get me started?  My daily vitamin protocol will likely be VitD/K2 5000IU, Benfothiamin 300x2, Niacin (flushing) 50mg working up to 300mg. I also take a EPA/DHA as well as some vascular support (Arterosil HP and Vascanox HP) as well as Magnesium at night. Which B complex brand do you like? I will see what the gut microbiome test comes back with. I’m sure they will try to sell me pre/probiotics and maybe some digestive enzymes. What are you thought on those? I’m curious if you managed to go into full remission from your Ménière’s disease? Thank you so much for your thoughtful insight. I know that building back up my gut health and immune health will help in so many ways as well as protecting me from many other major diseases as I go into my 60s and beyond. 
    • Scott Adams
      Any bad experience with King Arthur Gluten-free bread flour

      By Scott Adams · Posted

      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
×
×
  • Create New...