Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

False Negative?

BeHappy

Recommended Posts

BeHappy Apprentice
BeHappy
Posted

My celiac daughter is vitamin d deficient. When I told my pediatrician that her blood test came back positive for celiac, he tested two of my other kids. I get a phone call a few days later that those two kids are also vitamin d deficient. Dr. didn't mention anything about celiac so I'm assuming they tested negative.

Is this just a coincidence? Can the blood test be wrong for some reason? (ages 7 and 5)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

I would make sure you get copies of the tests so you can see for yourself.

cassP Contributor
cassP
Posted

yes, i agree! always get your own copies of results- they dont pay nearly enough attention to them-

also, never assume when it comes to our health & doctors.

also, my first take on your post- was that "maybe the doc didnt even test the other kids for celiac.. maybe he just tested for the Vit D deficiency" ???

shopgirl Contributor
shopgirl
Posted

I would make sure you get copies of the tests so you can see for yourself.

Yes, please get copies of all test results from your doctors and your kids' doctors. I found out a couple weeks ago that I actually had abnormal blood tests months ago that could have gotten me a diagnosis much sooner but the doctors just ignored them and I never knew because I always just got a vague phone call telling me I was fine. Now I requests copies of all lab tests, endoscopy, scans, everything. I can see if my tests might be borderline requiring further action.

Even if you need to ask someone for help reading them, you might feel better knowing exactly what's in them rather than just assuming.

cassP Contributor
cassP
Posted

Yes, please get copies of all test results from your doctors and your kids' doctors. I found out a couple weeks ago that I actually had abnormal blood tests months ago that could have gotten me a diagnosis much sooner but the doctors just ignored them and I never knew because I always just got a vague phone call telling me I was fine. Now I requests copies of all lab tests, endoscopy, scans, everything. I can see if my tests might be borderline requiring further action.

Even if you need to ask someone for help reading them, you might feel better knowing exactly what's in them rather than just assuming.

Amen... i agree! i always do the same too.. my PCP & GI didnt look at all of my results nor understand them all.. i had to dissect them to get to a proper dx

AND my freakin TSH was out of range 4 years ago, but noone alerted me, or called for a follow up.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,352
    • Most Online (within 30 mins)
      7,748
    Beth Ramsey
    Newest Member
    Beth Ramsey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.