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False Negative?

BeHappy

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BeHappy Apprentice
BeHappy
Posted

My celiac daughter is vitamin d deficient. When I told my pediatrician that her blood test came back positive for celiac, he tested two of my other kids. I get a phone call a few days later that those two kids are also vitamin d deficient. Dr. didn't mention anything about celiac so I'm assuming they tested negative.

Is this just a coincidence? Can the blood test be wrong for some reason? (ages 7 and 5)

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Dixiebell Contributor
Dixiebell
Posted

I would make sure you get copies of the tests so you can see for yourself.

cassP Contributor
cassP
Posted

yes, i agree! always get your own copies of results- they dont pay nearly enough attention to them-

also, never assume when it comes to our health & doctors.

also, my first take on your post- was that "maybe the doc didnt even test the other kids for celiac.. maybe he just tested for the Vit D deficiency" ???

shopgirl Contributor
shopgirl
Posted

I would make sure you get copies of the tests so you can see for yourself.

Yes, please get copies of all test results from your doctors and your kids' doctors. I found out a couple weeks ago that I actually had abnormal blood tests months ago that could have gotten me a diagnosis much sooner but the doctors just ignored them and I never knew because I always just got a vague phone call telling me I was fine. Now I requests copies of all lab tests, endoscopy, scans, everything. I can see if my tests might be borderline requiring further action.

Even if you need to ask someone for help reading them, you might feel better knowing exactly what's in them rather than just assuming.

cassP Contributor
cassP
Posted

Yes, please get copies of all test results from your doctors and your kids' doctors. I found out a couple weeks ago that I actually had abnormal blood tests months ago that could have gotten me a diagnosis much sooner but the doctors just ignored them and I never knew because I always just got a vague phone call telling me I was fine. Now I requests copies of all lab tests, endoscopy, scans, everything. I can see if my tests might be borderline requiring further action.

Even if you need to ask someone for help reading them, you might feel better knowing exactly what's in them rather than just assuming.

Amen... i agree! i always do the same too.. my PCP & GI didnt look at all of my results nor understand them all.. i had to dissect them to get to a proper dx

AND my freakin TSH was out of range 4 years ago, but noone alerted me, or called for a follow up.

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