Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Symptoms Gluten Sensitivity?


bellysbetter

Recommended Posts

bellysbetter Newbie

I have had the following symptoms since I was 10 and they got worse over the last 3 years. I am now 39.

Bloating

Gas

Burping

Belly feels inflamed after an attack of the above

Painful constipation (never the runs)

Tiredness, sometimes debilitating

Foggy brain

Memory problems

Concentration problems

Irritability

I have been tested for celiac during tests to eliminate things. It came back clear. They diagnosed me with IBS in the end.

During self-experiments I have found I get the "IBS" on eating gluten, dairy and corn. The doctors and specialists were not very helpful so I have self-diagnosed myself as Non-celiac gluten sensitive. By cutting out all these things the IBS symptoms have gone. Can someone who has gluten sensitivity please tell me if that is what they had, these kind of symptoms and if they are also sensitive to dairy/corn. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bellysbetter Newbie

Oh I forgot to add depression and trouble getting off to sleep and waking a lot.

cassP Contributor

yes, ive had all those symptoms and more. i got the "C" more than the "D".

i think you're right on target- self diagnosing yourself as gluten intolerant & identifying gluten, corn, and dairy (which many of us also have issues with).

i think those with ONLY an intolerance to gluten may be in the minority, and im very very very jealous of them :(

those tests are so inconclusive sometimes, and the doctors rarely investigate them- you should get a copy of your results for yourself- you may learn even more about your body.

and stick to your guns & your diet- your body knows best. and of course check up with your doc for any other tests (vitamin levels, iron, etc, thyroid)... routine endos & colonoscopies... you're going to feel A LOT better :)

wheeleezdryver Community Regular

i have every one of those symptoms, except the problem getting to sleep. i am also self- dx'd gluten (if not celiac)& dairy intolerant, and am currently trying to figure out other intolerances (including corn & fructans). Most of my symptoms only started in the last couple of years, and I'm 34. so you're not alone in this!

bellysbetter Newbie

Oh thank you both of you. Other symptoms I forgot to mention was sensitivity to noise and sensitity to perfume, air freshners, bleaches - it feels like it gets down my throat that's all. I am fine with non-aerosol ones. Since giving up the gluten all this has returned to normal levels of tolerance, my old levels.

  • 1 month later...
George Knighton Apprentice

I would like to know as well. I have some of those symptoms.

hkgir1 Newbie

Have you tried going for an IgG test yet? I do not have celiac but I do have an gluten intolerance. I went for test after test for gluten allergy but nothing showed up. Only after I went for an IgG test did I finally find my diagnoses


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
Philadelphia Newbie

I am self-diagnosed NCGS. After 10 years of stomach difficulties, it seems to be the only thing that has worked. I definitely have less IBS-D and IBS-C (almost zero), and feel noticeably less exhausted all the time. And this is just after 2 months of gluten free living.

I am lactose intolerant, and wonder if oddly I have a slight allergy to some nuts as well? I know that people with gluten problems are rarely confined to one irritant. I hope I don't have a problem with corn, as I'm a huge fan of everything corn-based.

Corn and rice seem safe for me so far.

etta694 Explorer

Yes, that could be my post (what you said there..). and I would add 'feels like I'm dieing'. I am also self diagnosed because all the tests came back normal except that I have not had blood work because there isn't enough money on this planet to make me eat gluten again for a diagnosis.

As a note here... I find that, because I am of the C variety, when I get glutened, it seems to stay in my system longer and I feel like 'death warmed over' :( until it goes through, last time 3 weeks (unless I was accidentally getting glutened elsewhere). Thankfully, it has only happened once since going gluten-free.

OasisFlyer Newbie

This will be my first post after reading over this site for a few days. I felt compelled to reply since my symptoms are very similar to those listed by bellysbetter. I am going to my allergist tomorrow to ask about getting tested, but I am already suspecting that I have some type of intolerance to gluten and am going on the gluten free diet no matter what the test results say!!! I can only hope for some minor recovery, since my main symptoms are extreme fatigue and headaches, which are both debilitating when in combination with each other! This is by no means all the symptoms I have, but this is not the place for me to launch into all that. I do not look forward to what lies ahead with all the other sensitivities that could come along with this!

sickly Newbie

I have had the following symptoms since I was 10 and they got worse over the last 3 years. I am now 39.

Bloating

Gas

Burping

Belly feels inflamed after an attack of the above

Painful constipation (never the runs)

Tiredness, sometimes debilitating

Foggy brain

Memory problems

Concentration problems

Irritability

I have been tested for celiac during tests to eliminate things. It came back clear. They diagnosed me with IBS in the end.

During self-experiments I have found I get the "IBS" on eating gluten, dairy and corn. The doctors and specialists were not very helpful so I have self-diagnosed myself as Non-celiac gluten sensitive. By cutting out all these things the IBS symptoms have gone. Can someone who has gluten sensitivity please tell me if that is what they had, these kind of symptoms and if they are also sensitive to dairy/corn. Thanks.

I guess you had to do alot of elimination on figuring this out. I have tried to avoid all things gluten and dairy. I have not heard about a corn allergy. So I am assuming corn chips, corn tortillas, etc. are out! I am try to figure things out myself. Very sick at this moment and very depressed!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.