Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog


kyga2

Recommended Posts

kyga2 Apprentice

Lately I have had serious trouble remembering things, and not just things like where I left my car keys. For example, the other day someone mentioned a co-worker and I had no idea who they were talking about. None. I clearly was supposed to know who this person was so I puzzled over it a day before I realized who it was, a person I have known for three years and worked with multiple times.

I also have trouble feeling like I'm understanding what's going on. People will say things, and I will not be able to put it together logically. I will have no idea what they are talking about.

My husband says this is normal because I'm 35. However, I feel like I am developing dementia or something and it's scary. I'm trying to figure out if this could be gluten related. I am gluten free but tests were inconclusive on celiac. I admit that I am not hard core about it (share a toaster, etc) so I wonder if this is it.

So if you have 'brain fog' that was helped by going gluten free, what was it like?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WheatChef Apprentice

Your brain shouldn't magically start shutting down by the time you're 35. In general 35 is pretty young for our species! Brain fog is a common result of gluten intolerances yet there are additional issues/intolerances/dietary practices/maladies that can cause it obviously.

Brain fog for me lifted quite drastically after going gluten free. Where I once was unable to get through reading a book or paper without inadvertently reading over the same line multiple times before realizing what I was doing I could then easily finish papers and actually retain a lot of the knowledge contained within. This wasn't an automatic improvement however. While there were major gains in cognitive functioning in the first month and a half after going on the diet, these gains are still steadily improving now at the 9 month mark. I actually have a decent chance at remembering someone's name now!

Kay DH Apprentice

My celiac panel was negative, and my 1 endoscopy biopsy was negative this year, but the tests were also flawed. My celiac symptoms started after the flu a year ago. When I get minor cc, mostly my GI tract purges, but if there is major cc then I also have brain fog, mood, lethargy, other GI problems, and such. It takes 4-5 days after being glutened for my brain fog to go away (once when fogged I forgot to set the parking brake, and my car rolled back and hit another). I am a research scientist, and mostly live in my brain, so the brain fog is irksome. I became a lot more sensitive to gluten when I went completely gluten-free in January; even labeled gluten-free that is "processed in a plant that also processes wheat..." can be enough to nail me. That said, if you want to see if it is gluten that is getting you, then go completely gluten-free for at least a week and see how your brain does. That means no shared cutting boards, toasters, or processed food. Keep track of how you feel, and your symptoms. If the fog lifts one day, then it is probably gluten. Gluten hits everybody differently, for some people more neurologically that others.

Skylark Collaborator

Memory loss is NOT normal at 35. Your husband might be trying to make you feel better, which is kind. I had thyroid "brain fog" recently. I was forgetting things, and I couldn't remember names, details about work, or where I was supposed to be when. I had an awful time trying to focus on anything, and I had trouble writing because I couldn't organize my thoughts. It really interfered with my work. Getting on the right dose of thyroid medicine cleared my mind back to normal.

cassP Contributor

no, that's not normal for your brain at 35!

my brain is better off gluten- but i am still having issues- most likely to the recent discovery that i have been Hypothyroid for at least 4 years. (you should have your thyroid checked- as gluten can cause thyroid issues).

also- look at vitamin deficiencies, etc.

& last- i just read recently an article about Gluten & Brain issues- how they have actually found TTG antibodies stuck like a "plaque" on brain tissue- gross.

Courtney101 Rookie

Brain fog for me is one of my worse symptoms. I have a very repetative job, that I should know how to do off by heart. But it has gotten to the stage where I have to concentrate extremely hard to make sure I correctly do tasks which I have probably performed hundreds of times. It's frustrating because I often make simple mistakes that just shouldn't be made.

I too have to read things several times because I just can't take in the information. I have a terrible memory. For example never remembering movies I've watched, or even not remembering I've seen the movie in the first place. My friends told me the other day I had seen a particular movie with them twice, I have no memory of either occassion let alone the actual movie.

I also have really weird episodes every now and then which are difficult to explain, but I'll do my best. It's like I become very sensitive to the light and feel disconnected to everything that's going on in the world. Things appear kind of fuzzy, and sometimes I get a little dizzy. The worst thing though is the disconnected feeling. I feel like an observer, rather than a participant in my own life. It's a scary feeling because I don't feel 100% "with it" and I hate the thought of not being in control. Has anyone else experienced anything like this? I assume it's gluten related, just like extreme brain fog or something.

Also, I'm only 20, so there's no way in hell this is normal... :(

flutterby Apprentice

I used to have problems with this all the time, and still do even after going gluten-free. I had thought it was reactive hypoglycemia because it would always happen an hour or two after eating, for example, a breakfast with carbohydrates (read: bread). I would get irritable, confused, unable to think properly, unable to make simple decisions.

This weekend I started a challenge diet, and I only lasted two days as all of those symptoms came back. I started forgetting basic words in Spanish (I'm bilingual), the names of organizations, etc!

Still, if it is a continuing problem it may be worth talking to a neurologist. MS is apparently related to Celiac Disease and it also causes memory problems.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kyga2 Apprentice

I too feel weirdly disconnected from the world at times. The way you describe it is not exactly how I have experienced this disconnection, but I was interested to hear about it. I have chronic vertigo; it can't rock in a rocking chair, bounce, or shake my head because I get symptoms. Whether or not this is related to the gluten thing I don't know. I was starting to think I had a social phobia or something, because of this disconnection. There still may be, but after getting really serious about gluten free I will see if any of this improves.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    2. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    4. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    5. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,084
    • Most Online (within 30 mins)
      7,748

    BlueIcyRose
    Newest Member
    BlueIcyRose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.