Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I got my test results back from the doctor. All the advice the doctor gave was to stay on the gluten free diet. (lots of help.) So I'm coming to you knowledgeable people for help. My TTG was high at 31. My IGG and IGA were 6 and 10 respectively. Are these good numbers? I have been gluten free for a little over a year. When I was first diagnosed my TTG was over 100 (the lab result wasn't more specific). Is this a good decrease? What do I need to do now? Will it decrease more with time or do I need to work harder to make sure I'm not getting CC'ed? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


T.H. Community Regular
T.H.
Posted

I'm afraid I'm not so good on the testing numbers, but a number of people here are very knowledgeable, so I'd bet they can help you out.

If the numbers are decreasing, though, that's always good, yeah? And while I know that in some people it can be a slow decrease - I believe some adults can take up to 2 years to heal completely - if it's a bit over a year and you are still not to normal levels (The TTG was too high, yes?) then looking at lowering your gluten load might be helpful.

At the very least, it certainly couldn't hurt.

It's something I've been having to do for my daughter the last few months, when we finally realized she wasn't intolerant to other foods, but was simply having trouble with too much gluten. So, some things we learned in the last bit that might help you lower your gluten levels, if you wish to...

1. Always good to remember that very little is actually gluten free. Our gluten free food actually IS almost all CC'd. It's just in such low amounts that most of the time we're okay with it. However, the reason this can matter is because if you eat enough of these products, because they are not 'zero' gluten you can still get too much gluten if you're not careful. My daughter, for example, can have about one slice of this gluten-free pizza we get, but if she has more than that, she'll get sick, every time.

2. If you aren't too careful about CC, it would probably be a good idea to be more conscious of that, if you're trying to lower your gluten levels. Again, it can't hurt, eh?

3. If you ARE very careful about avoiding CC already, something you may want to investigate is what levels of gluten your favorite gluten-free foods have. Some have <20ppm of gluten, some <10ppm, some <5ppm. Some products aren't tested for gluten levels at all, but are just assumed to be gluten free because no gluten was deliberately added. Which usually means it's best to stay away from them or test them yourself at home. If all your gluten-free foods are <20ppm, then perhaps it would be good to have less of those, and more of the <5 or <10ppm products for a bit, see how it affects you - or doesn't.

Anyway, I hope some of the number folks have some good information on you re: your test results! :)

plumbago Experienced
plumbago
Posted

When people use the term "CC" on this forum, what does that mean?

Thanks.

plumbago Experienced
plumbago
Posted

I got my test results back from the doctor. All the advice the doctor gave was to stay on the gluten free diet. (lots of help.) So I'm coming to you knowledgeable people for help. My TTG was high at 31. My IGG and IGA were 6 and 10 respectively. Are these good numbers? I have been gluten free for a little over a year. When I was first diagnosed my TTG was over 100 (the lab result wasn't more specific). Is this a good decrease? What do I need to do now? Will it decrease more with time or do I need to work harder to make sure I'm not getting CC'ed? Thanks.

I have been doing a lot of reading on this forum about test results, because I too just got my blood tests back and was very curious about what they meant.(I was diagnosed with celiac disease in May 2010)

I've heard that an antibody is an antibody, regardless of the quantity - FWIW, my levels went down too. I read someone on the forum said that a "weak positive" is still positive and is like being a little bit pregnant.

These were my results.

Deamidated Gliadin Abs, IgA -- 11 ("normal")

Deamidated Gliadin Abs, IgG -- 31 ("abnormal" - moderate to strong positive)

t-Transglutaminase (tTG) IgA -- 5 ("abnormal") -- "weak positive"

t-Transglutaminase (tTG) IgG -- 5 ("normal")

Endomysial Antibody IgA -- Negative 157 ("normal")

The physician who ordered the blood tests for me has not explained any of this to me. In fact he is the one who told me before drawing my blood "once your antibodies are high, they will always be high." I thought about that, and concluded he must be wrong because when I originally got tested for celiac disease (blood-tested), the physician who ordered those tests - a different doc - said "do not STOP eating gluten! because that could affect the results of your tests." So I didn't. I kept eating gluten. Long story short, as every one on here knows, gluten does affect blood tests and antibodies. October doc was incorrect.

I sent the gastroenterologist who conducted my endoscopy the results of October's blood tests. His office assistant called me back in a rush and only said, your results mean that you are still ingesting gluten. End of story, no further conversation.

-Plumbago

jerseyangel Proficient
jerseyangel
Posted

When people use the term "CC" on this forum, what does that mean?

Thanks.

Here, CC means cross contamination.

cassP Contributor
cassP
Posted

I got my test results back from the doctor. All the advice the doctor gave was to stay on the gluten free diet. (lots of help.) So I'm coming to you knowledgeable people for help. My TTG was high at 31. My IGG and IGA were 6 and 10 respectively. Are these good numbers? I have been gluten free for a little over a year. When I was first diagnosed my TTG was over 100 (the lab result wasn't more specific). Is this a good decrease? What do I need to do now? Will it decrease more with time or do I need to work harder to make sure I'm not getting CC'ed? Thanks.

with a ttg of over 100... and now at 31, i would say that's a strong positive for Celiac. but i dont understand what u mean when u say that ttg was 31, and igg & iga were 6 & 10....

because usually you're tested for TTG Iga &/or TTG Igg... and Antigliadin Iga & Igg... wo what is your igg & iga for ??? antigliadin?? it's not for your ttg right? because the numbers dont add up

and i think that 100 down to 31 is a good decrease- and with time gluten free- that 31 should go down even more..

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state...
    2. olivia11
      - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent. People of Mediterranean descent have HLA DQ 7. People of Asian descent have HLA DQ 9. There's other Indigenous populations that have other HLA genes that code for Celiac disease. Are you still having symptoms? What do...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

      There are eight essential B vitamins. They are all water soluble. Any excess of B vitamins is easily excreted by the kidneys. Thiamine is Vitamin B 1. Thiamine is safe and nontoxic even in high doses. Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily. The form of Thiamine in the supplements you mentioned is...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,754
    • Most Online (within 30 mins)
      7,748
    Brmorrison74
    Newest Member
    Brmorrison74
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.