Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Ever Had This Before?


Diosa

Recommended Posts

Diosa Apprentice

Hi all.

Since trying to go gluten-free to stop the pain I'm in, I've been missing some of the stuff, like pasta. I found some gluten-free/wheat free pasta (made of rice flour). I got sooooooooo ill from it last night it was unbelievable. I thought maybe it was the pasta sauce (vodka sauce lots of dairy), so I tried rice bread this morning. Same results. Very ill. In pain within a half an hour.

Is it possible to be "allergic" - sensitive I guess is the better word, to other grains? I know I don't get on with soy, and rice and corn were somewhat questionable, but I've never reacted that badly before. I've never really ate a lot of gluten-free stuff, so to be fair, this was really my first major intake of anything other than white flour/wheat flour.

I feel really defeated right now as I just don't know what I'm doing. :(

Thanks for listening.

Beth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

It is possible to be intolerant or allergic to other grains, but there are other options as well. First, does regular rice cause this problem - not just processed rice? Also, was it a gluten like reaction or very different? How long have you been gluten free; sometimes things can bother you for a while until you heal? Have you identified other food intolerances?

jenvan Collaborator

Beth-

I agree with Tiffany... and I note I am intolerant to a ton of foods, and that some foods procedure worse "noticeable" reactions in me than gluten--like turkey, corn, some dairy, coffee... Might want to check into other food intolerances. Have you tried other gluten-free breads, like corn bread or a bean flour bread? Also, you should make sure when you're cooking that your not cross contaminated your gluten-free food with utensils, pans etc that have gluten on them... Hopefully you'll figure out the culprit soon. It takes some of us a while to work out all the kinks !!

Diosa Apprentice

Thanks for replying. The reaction was similar to gluten (nausea,dry heaves, then pain) but more pronounced. Gluten usually just goes to blinding pain within a half an hour. Rice in and of itself could be a problem. I was told to avoid rice and soy by my nutritionist, but corn should be ok every once in a while. Except for sushi, I was never a big rice eater. Never really liked the stuff. :)

I never thought about gluten being in the pans. I use a dishwasher and figured that would blast about anything off. :) I'll check into that.

Bean flour? I've never heard of it. What kind of beans is it made out of? Is it any good?

Sorry to be asking so many questions. :)

Beth

mytummyhurts Contributor

FYI - there is also tapioca bread. That's what I eat and I like it better than rice bread.

Diosa Apprentice

I'll definitely give that a try and see how it goes. Thanks Abby!! :)

jenvan Collaborator

Beth-

Questions are always welcome :) Bean flour can be made from several types of beans, some products will have a bit of a bean taste if there is much bean flour, but it leads to good texture. You can buy these flours in many places, but here is one example of Bob's Red Mill bean flour. I have this at home: Open Original Shared Link

You could ck out this bread--very good texture and taste. One of the ingredients is a rice grass. Not sure if that is related to rice or just a name... THis bread is a favorite of many. Open Original Shared Link

If you're using a dishwasher, I bet your okay. I just ask b/c its an issue for some. Ie:--sharing a toaster, muffin pan that has crusted on bread or something... I know there are other non-rice breads, but would need more time to look for some. I bet Abby's tapioca bread is bread. Ab--what brand do you get?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mytummyhurts Contributor

Jen - I think the brand is EnerG

I'm not saying Tapioca bread is the greatest in the world. But I've liked it better than the rice breads I've had. And it may be an option if you can't eat rice. ;)

jenvan Collaborator

okay-i'm an idiot! i just read my post where i said

I bet Abby's tapioca bread is bread

Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

Carriefaith Enthusiast
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

It's easy to make mistakes, I have to edit my posts a lot because I make horrible mistakes all the time. That is pretty funny though :lol:

celiac3270 Collaborator

LOL :lol: ...we understood :)

skbird Contributor

I'm trying to go off of all grains but am happy to consider tapioca bread, etc for some foods. I'm thinking of ordering some of the raved about Chebe bread for that reason. Nice to have a grain free option.

Stephanie

tarnalberry Community Regular
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

lol... I don't know... I think with gluten-free bread, there may be a fair amount of sense in that statement "I bet her bread is bread". some of it really isn't bread, you know. it's ground up cardboard held together by a vacuum package, unless it's actually just a porous rock. :lol:

Guest Viola

Kinnikinnick has a very good Tapioca Bread as well, also they have a real nice English muffin which is mostly Tapioca I believe. I think there is a bit of rice flour in there as well, but when I was having trouble with rice both the bread and buns didn't bother me. I do hope that you find something that really agrees with you and tastes good too :rolleyes:

pixiegirl Enthusiast

I totally agree, most gluten-free bread is NOT bread!

LOL, Susan

jenvan Collaborator

ha ha ! maybe i was "wise" in what i said then :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.