Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Fertility?


K8ling

Recommended Posts

K8ling Enthusiast

Well, it's happened again, guys. My husband got back from the desert a few weeks ago and I am 3 weeks late. I went to a new OB today who said my fertility issues could be related to

CELIAC!!

I had no idea it could affect it to this extent! Hopefully I AM pregnant but if I am not, I am going to start on shots to kind of reset my body.

Can any of you help me out with this? Have any of you had fertility issues stemming from Celiac?

I am so confused.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Did they do a pregnancy test?

Skylark Collaborator

*fingers crossed*

Yes, lots of people around here have suddenly gotten pregnant when they went gluten-free. You're pretty new to the diet so you might want to give it a little more time before you start getting shots and whatnot. I'd say to go at least a year gluten-free first.

srall Contributor

I cannot say for certain, but my opinion is that my unexplained secondary infertility was because of my gluten intolerance.

twinkle-toez Apprentice

While I've never tried to actually conceive children, my menstrual cycles have been irregular since, well since I started menstruating 13 years ago. I was diagnosed in the summer of 2009 with polycystic ovarian syndrome, a shock to everyone as I am NOT the typical phenotype (I"m very slim, heavily involved in athletics, normal glucose tolerance and not insulin resistant, no hirutism, only mild acne, etc). Anyway, when I wasn't on the pill I'd average a period once every 4-6 months.

I eliminated gluten from my diet in July, and aside from two accidental glutening since then, I have been totally gluten free. My period in October came only one week late, and my period in November was exactly on time at the four week mark.

While I know that PCOS isn't exactly unexplained infertility per se, it certainly does not make sense in my case that I should have the syndrome, and I personally believe that for me, the PCOS is linked to gluten consumption.

Philippa Rookie

Oops, my computer is acting up.

I meant to say, I believe I have had issues with celiac and fertility. I had 7 miscarriages over 10 years. Many tests were done and no cause was found. I had one successful pregnancy during that time. Oddly enough I was on prednisone during that pregnancy (treatment for unexplained miscarriage). I don't know if it was just a fluke, or if it was the prednisone. Given that celiac is an autoimmune disease it does make me go hmmm.

Now my family doctor says maybe the celiac caused the miscarriages But who can say for sure. The other thing that was different with that pregnancy is that I was taking a lot of vitamins. I'd seen a naturopath.

Hopefully you are pregnant and everything is good! Have you had trouble getting pregnant? I have heard that celiac can cause infertility as well as miscarriages.

SheaLynne Newbie

I also do not have definite proof, but believe that secondary infertility issues have been related to gluten. I started menstruating at age 14, and had light and often skipped periods until I was in college. By my late 20s when dh and I were trying to conceive, it took about 6 months for us to conceive (not too unusual, so thought nothing of it other than that my sister gets pg if she thinks about it!). Then we started trying for a 2nd 2.5 years after that one was born, and it took over 2 years. By then I was showing possible short luteal phase (so cycles tended to be short). Since that birth almost 6 years ago, we have not prevented anything, but have not opted for any fertility treatments and nothing has happened.

When I went gluten free for the first time nearly a year ago, I immediately skipped two periods. Since then (fully gluten-free for the past 6 months) I have been more regular than I have in years. There's no doubt that it has affected my menstrual cycle in some ways. I'm not pregnant, but I'm 40, so that may be pretty low odds by now any which way.

I hope you get the results you want and have no issues from celiac and infertility/miscarriage. I'm very fortunate to be able to be a mother, and I am ever grateful for it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K8ling Enthusiast

Thanks for all the support guys. I went today and the urine test was negative. The thing is, it would have been HUGELY off cycle...My husband returned 11/3 and my period was supposed to start 11/6. So I am SO confused. She said I would be 6 weeks but thats not fair to measure from October because Sean wasn't even home until 11/3!!!! Gah.

So they took blood, and we'll go from there. As I type this I am nauseous, and I weigh the same but it seems like I have some extra padding at the front (I couldn't button my jeans this morning). I know it's not psychosomatic because after that many miscarriages you kind of tend to take everything with a grain of salt. I really expect the test to come back negative. I just want to know why I feel like this!! If I am pregnant, awesome. But if I am not? C'mon body! Work with me!

I am usually like clock work which is why it's a little odd that I am late at all. Gah.

ravenwoodglass Mentor

The stress of having your hubby home could throw off your periods. It isn't just bad stress that can do that good stress can also. Celiac can definately lead to fertility issues and miscarriages but the doctors don't really know why. At one time it was thought to be nutritional issues but research has shown that is not the case. It is still a medical mystery but they do know that many celiacs have a hard time concieving and carrying when they are still consuming gluten. In most cases things normalize after we have been gluten free for a while.

SGWhiskers Collaborator

I'm sorry you are going through this stress again. Raven's right. Stress can really affect your cycle. My periods will start on a weekend all but once or twice a year dispite being somewhat irregular (4-6 weeks). I know it is the stress of the work week that makes my body wait to ovulate until the weekend.

Unfortunately with celiac, our fertility really does get messed up quite badly. That stress isn't good for us either. Take care of yourself and when hubby comes home and you are ready to try again, consider seeing a reproductive endocrinologist who can do a little blood work to see if your body is ready. Stick to that diet and hugs to you and your son.

polarbearscooby Explorer

So I was gonna start a new topic, but this seems as good a place as any to ask....And it's kinda hard to ask because it's embarrassing.

I'm 20 years old, and I've had rough periods ever since I was 13 and had a cyst so huge rupture they thought it was my appendix, I was sick as a dog. The pill helped, but I've had to go off it for a few different reasons including money :P And now my periods are AWFUL again, especially since I got glutened right before this one. So I guess my question is, is this normal for someone with Celiac? Or is it unrelated? It seems every woman in my ENTIRE family has troubles like these.... Most of the women in my family have fertility issues too.....

Sorry for hyjacking.... :-/

K8ling Enthusiast

I had really horrible periods ON the pill. It also killed my sex drive. The only problem now is apparently I don't have ANY periods LOL

kareng Grand Master

So I was gonna start a new topic, but this seems as good a place as any to ask....And it's kinda hard to ask because it's embarrassing.

I'm 20 years old, and I've had rough periods ever since I was 13 and had a cyst so huge rupture they thought it was my appendix, I was sick as a dog. The pill helped, but I've had to go off it for a few different reasons including money :P And now my periods are AWFUL again, especially since I got glutened right before this one. So I guess my question is, is this normal for someone with Celiac? Or is it unrelated? It seems every woman in my ENTIRE family has troubles like these.... Most of the women in my family have fertility issues too.....

Sorry for hyjacking.... :-/

In case you want to go back on the pill:

Unless you are at a Catholic College, you might be able together the pill inexpensively at the Student Health Ct. If your college has a med school, usually discounts for students. Planned parenthood will do a basic exam and prescribe the pill inexpensively. County health services do this, too.

polarbearscooby Explorer

In case you want to go back on the pill:

Unless you are at a Catholic College, you might be able together the pill inexpensively at the Student Health Ct. If your college has a med school, usually discounts for students. Planned parenthood will do a basic exam and prescribe the pill inexpensively. County health services do this, too.

Thanks, I've got the RX for it from my doctor so now problem there, just had a bit of a tight budget lately... And since I've never been, um, active, It wasn't to high on my priority list until this month, I've never had a glutening and this at the same time.... I still wanna just crawl in a hole and possibly kill all males.. roflol

K8ling Enthusiast

I totally remember that feeling LOL. Feel better!!!

firefightersgal Apprentice

After two years of inexplicable secondary infertility and one miscarriage, my OB and I are certain that gluten intolerance has been the cause of my problems. He said that Celiac Disease can certainly lead to both issues.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748

    volivier
    Newest Member
    volivier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
    • Wheatwacked
      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.