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Gluten External


serenajane

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serenajane Apprentice

Hello all I was just wondering everyone if I got the same information as others

I asked my GI about gluten in cosmetics and shampoos (if I needed to avoid them) She said if i didn't have DH everything else was alright except lipsticks and glosses that may be ingested by default.

I get dry patches on my hands sometimes but I am unsure the cause.

I am a hairdresser and some of the styling products and shampoo/ conditioners are loaded with wheat proteins. I do wear gloves to shampoo when I know I'll be using one that contains wheat to limit my exposure.

????


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Gemini Experienced

Hello all I was just wondering everyone if I got the same information as others

I asked my GI about gluten in cosmetics and shampoos (if I needed to avoid them) She said if i didn't have DH everything else was alright except lipsticks and glosses that may be ingested by default.

I get dry patches on my hands sometimes but I am unsure the cause.

I am a hairdresser and some of the styling products and shampoo/ conditioners are loaded with wheat proteins. I do wear gloves to shampoo when I know I'll be using one that contains wheat to limit my exposure.

????

The information your GI gave you is correct.....ingestion of gluten is what causes the damage in Celiac Disease. Unless you have habits which include putting your fingers in your mouth, after putting on a gluten containing hand cream, then you should be fine. Some people also put their hair in their mouth, which may possibly cause a problem if you use wheat filled shampoo.

Having said that, you could also have a topical wheat allergy which may cause additional skin problems but is not connected to Celiac Disease. That's a different animal. The dry skin patches you sometimes have could be caused by a number of components in any of the products used in a hair salon. Many products are drying to the skin and hair anyway so it could be hard to pin down what the problem is. I would just suggest using your gloves to protect your hands and make sure your hands do not come into contact with your mouth. I wouldn't think that would be too hard to accomplish as ingesting beauty products wouldn't be prudent for many reasons, besides the wheat problem. Ditto for hair spray although I never inhale mine. It just isn't a healthy thing to do. You might also want to use a non-wheat containing spray. I know that many of the better brands used by salons do not contain any wheat.

Loey Rising Star

Hello all I was just wondering everyone if I got the same information as others

I asked my GI about gluten in cosmetics and shampoos (if I needed to avoid them) She said if i didn't have DH everything else was alright except lipsticks and glosses that may be ingested by default.

I get dry patches on my hands sometimes but I am unsure the cause.

I am a hairdresser and some of the styling products and shampoo/ conditioners are loaded with wheat proteins. I do wear gloves to shampoo when I know I'll be using one that contains wheat to limit my exposure.

????

I personally use gluten-free make-up and shampoo products. If you use it in your line of work then I think using gloves should be al right. The main thing with shampoos for ourselves is if they drip into our eyes or mouths.

Loey

P.S. Peter posted something about this a way back

Dixiebell Contributor

Are your gloves latex? That could also be the cause of dry patches.

SGWhiskers Collaborator

While yes, you have to ingest the gluten for it to cause a reaction, my personal experience was that I wound up with reactions to my blush and to body lotions. I assume that I either inhaled or ingested some of the blush while applying makeup. Our eyes are connected to our tear ducts which are directly connected to our digestive system. The technical answer is that you should only need to worry about what you ingest. The practical answer is that we ingest things inadvertently and many of us wind up with reactions to personal products.

Powdered gloves whether they are latex or not are more irritating to the skin and more likely to cause skin problems. I learned from my dentist's glove manufacturer that their powder free gloves start out as powdered and then are dipped in a chemical wash to remove the powder. Some powder still remains. Other companies never add powder in the first place. My hospital uses 2 brands of latex free powder free gloves. One brand gives my hands splits and cracks after 2-3 weeks of use. The other brand is just fine.

Our hospital brought in a black light and some glow in the dark lotion to demonstrate hand hygine. We rubbed the lotion on then washed our hands. Even after a good scrubbing, there was glow in the dark blue in every swirl and crack in my hands. I could just imagine gluten behaving similarly.

While wearing gloves, I've handled gluten for my job on a less frequent basis than you. I've had a problem 3 times. Once when a bit of cracker hit me on moist lips. Twice when gluten hit me in the eyeball. I would imagine some of the same risks would be there with wet hair spattering product.

I think in your situation with my sensitivity, I would try to avoid the gluten in spray products and search for some friendlier gloves for the liquids.

serenajane Apprentice

Are your gloves latex? That could also be the cause of dry patches.

all our gloves are vinyl due to so mant people with latex allergies.

Bigbread Rookie

I personally use gluten-free make-up and shampoo products. If you use it in your line of work then I think using gloves should be al right. The main thing with shampoos for ourselves is if they drip into our eyes or mouths.

Loey

P.S. Peter posted something about this a way back

Please can you tell me the brands that you use?


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Loey Rising Star

While yes, you have to ingest the gluten for it to cause a reaction, my personal experience was that I wound up with reactions to my blush and to body lotions. I assume that I either inhaled or ingested some of the blush while applying makeup. Our eyes are connected to our tear ducts which are directly connected to our digestive system. The technical answer is that you should only need to worry about what you ingest. The practical answer is that we ingest things inadvertently and many of us wind up with reactions to personal products.

Powdered gloves whether they are latex or not are more irritating to the skin and more likely to cause skin problems. I learned from my dentist's glove manufacturer that their powder free gloves start out as powdered and then are dipped in a chemical wash to remove the powder. Some powder still remains. Other companies never add powder in the first place. My hospital uses 2 brands of latex free powder free gloves. One brand gives my hands splits and cracks after 2-3 weeks of use. The other brand is just fine.

Our hospital brought in a black light and some glow in the dark lotion to demonstrate hand hygine. We rubbed the lotion on then washed our hands. Even after a good scrubbing, there was glow in the dark blue in every swirl and crack in my hands. I could just imagine gluten behaving similarly.

While wearing gloves, I've handled gluten for my job on a less frequent basis than you. I've had a problem 3 times. Once when a bit of cracker hit me on moist lips. Twice when gluten hit me in the eyeball. I would imagine some of the same risks would be there with wet hair spattering product.

I think in your situation with my sensitivity, I would try to avoid the gluten in spray products and search for some friendlier gloves for the liquids.

I've posted this on other threads but there's a great company that sells gluten-free products body called Body Sense. Go under their special products to find those that are gluten-free.

Loey

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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