Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach/intestinal Pain....where Is Yours ?

NorthernElf

By NorthernElf
in Coping with Celiac Disease

Recommended Posts

NorthernElf Enthusiast
NorthernElf
Posted

Just had a colonoscopy to figure some pain issues. Seems all is ok...been great for two weeks but now getting weird pains again. I'm thinking there is some cross contamination happening. I live in a household of 5...mom & the only celiac. So...trying to figure out if these pains are gluten related.

I believe there is a difference between straight out glutening pain and cross contamination pain. Straight glutening is way more involved, painful & longer lasting. Cross contamination is more variable. So the reason I had the scope was some pain in the upper right side and the lower right side. Pretty consistent in the lower right side but the upper right side was new. I had a gallbladder ultrasound and it looked fine...

So..I'm thinking it's celiac pain...anyone else get pain there ?!?!?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


greeneyes33 Newbie
greeneyes33
Posted

Just had a colonoscopy to figure some pain issues. Seems all is ok...been great for two weeks but now getting weird pains again. I'm thinking there is some cross contamination happening. I live in a household of 5...mom & the only celiac. So...trying to figure out if these pains are gluten related.

I believe there is a difference between straight out glutening pain and cross contamination pain. Straight glutening is way more involved, painful & longer lasting. Cross contamination is more variable. So the reason I had the scope was some pain in the upper right side and the lower right side. Pretty consistent in the lower right side but the upper right side was new. I had a gallbladder ultrasound and it looked fine...

So..I'm thinking it's celiac pain...anyone else get pain there ?!?!?

My pain has always been in the upper ab area. Sometimes over to the right side. I never had low intestional pain. I haven't been glutened in awhile, a good year I think....knock on wood!!!! I cant say whether there is a differece between straight glutening or cross contamination. I would think it would be the same. You are still getting glutened with cross contamination. Hope you feel better soon!

GFinDC Veteran
GFinDC
Posted

I get pain in my left side below the rib cage. That's the sharpest area, plus an all over generalized pain to round things out. I seldom have pain on the right side.

plumbago Experienced
plumbago
Posted

My pain is in the lower left, below the rib cage and just above the hip bone. When it's bad, and it hasn't been in a while, it is so severe that the only way to make the cramp go away is to grab that hunk of flesh. I don't know what that's doing when I do that, maybe some nerve, I don't know, but the pain goes away and then usually I can let go. It's awful, and it usually happens right before a BM (sorry).

I have a diagnosis since May, so I haven't noticed a difference yet between straight out consumption of gluten and CC.

(This to me represents a still unresolved issue of science and/or this forum: is there a difference in the quality and amount of gluten ingested. Some say yes, others say no that gluten is gluten no matter the source or the amount.)

shelly184 Newbie
shelly184
Posted

Just had a colonoscopy to figure some pain issues. Seems all is ok...been great for two weeks but now getting weird pains again. I'm thinking there is some cross contamination happening. I live in a household of 5...mom & the only celiac. So...trying to figure out if these pains are gluten related.

I believe there is a difference between straight out glutening pain and cross contamination pain. Straight glutening is way more involved, painful & longer lasting. Cross contamination is more variable. So the reason I had the scope was some pain in the upper right side and the lower right side. Pretty consistent in the lower right side but the upper right side was new. I had a gallbladder ultrasound and it looked fine...

So..I'm thinking it's celiac pain...anyone else get pain there ?!?!?

Hey Northern Elf,

That is exactly where I was getting pain, in my upper right side almost up under my bottom rib. Had the pain for about 9 years. Had colonoscopies, cat scan, nothing was found. I did not even know what Celiac disease was.

I finally changed doctors and was lucky enough to get a GI doc that actually did a biopsy during an endo for celiac disease and it came back positive. The doc asked me who else in my family has celiac disease and I was totally puzzled. Then I started reading and researching celiac disease and realized that my mother must have had it. She was told ulcerative colitis in the 1960s and she was always complaining about heartburn. Well she ended up dying from pancreatic cancer and 9 months later her first cousin died from the same thing. I truly believe it was undiagnosed celiac disease that killed them.

The pain in my side went away in 5 days and if I get accidentally glutened that knife stabs me in the side again.

Seashell01

MelindaLee Contributor
MelindaLee
Posted

I had the same pain, though more often in the upper right. They did a HIDA scan and during the process, it reproduced my pain. My GI decided I needed my gallbladder out, despite the fact that they said both the ultrasound and the HIDA scan was considered normal, becuase it reproduced this pain. It was during the endoscopy to rule out anything else (Cancer, etc.) before the gallbladder removal, that they found the celiac. I still had the gallbladder out, and feel much better (but also went on the diet at the same time)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,536
    • Most Online (within 30 mins)
      7,748
    Flibertygibbet
    Newest Member
    Flibertygibbet
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.