Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

This Is Disgusting.....

Canadian Karen

Recommended Posts

SueC Explorer
SueC
Posted

You are an inspiration to those of us that know this too is our destiny.....

Please keep us informed of any do's and DONT"S that only come with experience! :D

Hang in there... less that 48 hours to go!!!!

Sue

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest vetnurse
Guest vetnurse
Posted

Oh Karen I can relate, imagine how happy I was when I went for my bloods for celiac, I also had to get the stuff for giardia tests etc., the girl looks at me with a straight face, lol, and tells me she needs 4 stool samples one from every time I went, which I thought to myself, Oh no problem I am always going! here is the catch, the stool cannot touch the water, oh I said, how can I arrange this now, she tells me to line the toilet with either saran or aluminum foil :huh: and go on that, I thought oh sure, lol. Picture this you are now half asleep running to your kitchen to pull foil from the draw, to line the toilet, only to sit on the foil (lined it to tight) for the foil to break and the stool, well it hits the water :o O I can relate, took me forever to finish the test! Hang in there ;)

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

I can remember getting samples for that too. I resorted to disposable aluminum pie plates that I would hold while I did the deed!!! It worked!

Karen

angel-jd1 Community Regular
angel-jd1
Posted
Okay, I had my follow-up with my GI specialist down at St. Mike's in Toronto. He is sending me to an immunologist to see if he can figure me out..... He did mention something about maybe an enzyme syndrome (I forgot the name of it) that he said is quite rare, but wanted to look into it further....... He did a few more blood tests. But here is the worst part: He wants to measure the fat content of my bowel movements for 48 hours (normally, it is 72 hours but he said since I go so often, 48 hours will suffice for me.....). I have to basically poop into a paint can (yes, you read correctly, a paint can.....) I went down to the lab in the hospital and they actually give you a paint can to collect all your bowel movements!!! Actually, they gave me two, due to the number of bowel movements I have in the span of one day...... All I have to say is: THIS IS THE MOST VILE THING I HAVE EVER HAD TO DO!!!! It is so unfair to have to put my family through this! I have basically told them that the downstairs bathroom is OFF LIMITS for two days, and Terry and the four kids have to put up with sharing one bathroom for the next two days!!!! I will be sooooo glad when this is over!! Add on top of that the fact that my back is killing me and you can just imagine (sorry for the visual, lol!) me trying to get down onto a paint can on the floor without toppling over!!!! I am having nightmares about falling over and knocking the can over!!!!

Wish me luck that I will get through the next two days without losing my sanity!!!

Hugs,

Karen

I had to collect my poo also, but just one sample. I totally feel your pain. It is the most degrating event ever!!

The lab DID give me a little bucket that attached to the inside of the toilet to collect the stuffs though. You might try asking for one of those.

Funny thing is, after they gave me all of my "equipment" for the sample collection, they stuck it in this hazardous waste plastic bag :P and I had to walk out of their office with it, down the hall, ride in the elevator (with people staring at me) then walk across a huge parking lot!!! THEN had to bring the poo back in that bag the next day doing the trip all over again!! I sure got some wierdo looks. :lol:

What we won't do for a solid diagnosis :D

-Jessica

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Okay, I am getting the hang of this even though it is DISGUSTING!!!

I only wish I had kept the little toddler cushioned potty seat (you know the ones that you put over your own toilet so their little bums won't fall through the big hole??). After my twin boys were trained, I threw it out - now I could sure use it! The bones in my behind are getting sore from sitting right on the rim of the paint can!!!! Sorry for the visual, guys...........

This too shall pass.............

Karen

cmom Contributor
cmom
Posted

You guys crack me up!! I remember when they were still trying to figure out what was wrong with me. I had to take a stool sample to the hospital lab. She asked me when I "obtained" it and when I told her she said "Oh, we can't use that; it's been too long." Then I said, "Well, I can give you another one right now." She said, "Can you go at will or what?" I said, "sure can!" Needless to say, they still got their specimen! :)

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Way to show 'em Robin!!!!

Hey, some people can burp at will, well, we Celiacs can............ you know........

;)

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

Ha ha Robin! On Demand ! :)

cdford Contributor
cdford
Posted

I had to do it for a five yr old. It was more trouble than holding him still for a barium enema!

jenvan Collaborator
jenvan
Posted

wow Donna--that would be a hard job !! :unsure:

westiepaws Apprentice
westiepaws
Posted

No physician should reaquire his/her patient to undergo any process or procedure that he/she has not experienced personally. I mean, hey -- how many of these M.D.s ever pooped into a paint can, much less gave chemo or radiation a whirl, or get regular colonoscopies, etc., themselves?!

westiepaws

Guest BERNESES
Guest BERNESES
Posted

Bingo - I'd love to see both my GI's put in Karen's paint can!

Guest Viola
Guest Viola
Posted

Still ... I think it's easier doing it myself than to try and get a five year old to do it :o You deserve a medal for that one Donna! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,940
    • Most Online (within 30 mins)
      10,442
    Sensible
    Newest Member
    Sensible
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Russ H
      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      By Russ H · Posted

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number of beneficial microbes and reduced gut inflammation. Inulin is used by some plants as carbohydrate store, it is a complex polymer of fructose in the same way that starch is a complex polymer of glucose. Inulin cannot be digested by humans but serves as food source for some gut bacteria. Inulin is present in many vegetables but the richest sources are (g/100g): chicory root 41.6 Jerusalem artichoke 18.0 dandelion greens 13.5 garlic 12.5 leeks 6.5 onions 4.3 The Scientist: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease    
    • suek54
      Shaking/Tremors and Off Balance

      By suek54 · Posted

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly.  I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge and biopsy.  Hang on in there. Sue
    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      When symptoms like fatigue, brain fog, or low energy change how we interact, others sometimes misinterpret that as disinterest, rudeness, or negativity—especially if they don’t understand the underlying condition. That doesn’t make their behavior okay, though. You don’t deserve to be treated poorly for something outside your control. Often, it reflects a lack of awareness or empathy on their part, not a fault in you. It can help to explain your condition to people you trust, but it’s also completely valid to set boundaries and distance yourself from those who respond with hostility. Your experience—and your reaction to it—makes sense. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      HLA-DQ2 POSITIVE it's nothing

      By Scott Adams · Posted

      Being HLA-DQ2 positive doesn’t diagnose celiac disease by itself, but it does mean he has the genetic potential for it, so it absolutely deserves careful follow-up if symptoms or concerns are present. You’re right that celiac is often downplayed, but it’s a serious autoimmune condition—not an allergy—and it can affect the brain, nervous system, and overall health if untreated. Given everything your son has been through, you’re doing the right thing by advocating and asking questions. I would strongly recommend getting a full copy of his records, and if possible, consulting a gastroenterologist who understands celiac disease well so you can get clear answers and, if needed, proper testing and monitoring.
    • Scott Adams
      Juce Super Fruit & Veggie Vitamin Blend

      By Scott Adams · Posted

      Yes, I don't recommend barley or wheat grass, even though technically speaking if it's made using ONLY the pure grass it is gluten-free, however, I've witnessed them make it at Jamba Juice and the seeds/kernels often get mixed into the grass before they juice it, so in that case would not be safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.