Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lectin Lock - Product Review


mushroom

Recommended Posts

mushroom Proficient

Those of you who have been around for more than a few months will know that for some time now I have been yammering on about lectins, and my suspicion that they are at the core of my other food intolerances. This 'gut' :blink: feeling was reinforced over the summer when I consulted Krispin Sullivan, a nutritionist, and by a cardiologist after I went into atrial fibrillation from one of my food episodes. I had been reading about this product called Lectin Lock and Krispin thought it would be good to try it. It is expensive, but a-fib is something I don't want to mess around with.

Basically, the problem with lectins (if you have a problem with them, and you can have a problem with one, or two, or several :o ) is that (to give a simplified explanation) they are a key, which key is attracted to certain kinds of sugar on the surface of cells in your body, let's call them keyholes. If you happen to have the right kind of keyhole that the lectin fits, it locks on to that cell and causes havoc in the body. The idea of Lectin Lock, is to provide in the gut the sugars that the lectins are attracted to and encourage them to lock on to those instead of the sugars on the cellular surface of the body. The gut can then process them through the intestine as waste.

Now obviously, I don't go around eating the foods to which I am intolerant when I can avoid it. There was one occasion (our book club meeting) where the hostess had gone to the trouble of making everything gluten free just for me, and I thought I should eat one of her mini-quiches. Upon biting into it I found tomato, and instead of panicking and making what could have been a scene, I ate it and said to self, 'Time for Lectin Lock.' I took two caps, and had no problems.

Yesterday, we had our Probus end-of-year Christmas lunch, and there three of we gluten-freers (in a group of 80 - that skews the stats a bit, doesn't it?) We all sat together at their request and they served us first with special meals which was very kind of them. Two problems - I think there might have been some lemon juice in the mustard sauce on the ham, and there was mandarin orange in the fruit salad. I ate everything, (including a tiny piece of roast potato) and waited to see what happened. Well, the familiar bloating, stinky gas and other problems started to rev up about 6 hours later, so it was time to test Lectin Lock again. Within an hour, the symptoms were gone, no a-fib, had a great night's sleep.

This product is for real in my book. It certainly passed both tests, the preventive - before symptoms got going, and the cure - once they started. It was amazing how the gas just.... went away :unsure:

I don't care what it costs, it's worth its weight in gold to me.:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Wow Shroom--that's very interesting and fantastic that it works for you! Is it available in stores?

mushroom Proficient

No, you have to order it online. Just google it :)

cassP Contributor

i actually have a lectin blocker pill from a doctor that i will just refrain from naming. it has 2 of your ingredients (N-Acetyl Glucosamine, and Fucus Bladderwrack) i feel better when i take it- but it can get pricey, so i dont take it regularly.

yours however also has the D-Mannose (which my personal favorite doc has said gluten has an affinity for and may bind to it).

btw- i overdid my last cheats on corn during thanksgiving- and I AM paying for it BIG TIME... no more corn for me :(

  • 2 weeks later...
Lisa79 Enthusiast

Thats great news, I will check google now :D

I have been seeing a homeopath for about 7 months and my lectin intolerance has improved, I still try avoid everything where I can but If I slip up I am not suffering as much as I used to.

mushroom Proficient

Update: I did have some problems (because of the delay) with hives after a day or two, not bad, but no GI problems from the citrus and potatoes

BUT THEN: :ph34r: Hub wanted potato salad (yearning for it and potato doesn't bother him) so I decided to make some for him. After I had put the dressing on the warm potatoes I just automatically did what I normally do, the cook by taste test :P , and actually did it a couple of times before I realized what I was doing. GAAAHHH. Rushed out to the car (because that's where the Lectin Lock lives - normally need to use it when I'm away from home) and took a couple of caps. Hey!, no problemo :D This stuff is for real.

Gutsy Girl Rookie

Through keeping a food journal to the T, I realized I was reacting with brain fog and zombie-ness and bloating, among other things...to POTATOES. Of all things, I would have thought potatoes were pretty safe, bland, etc.

A few weeks ago, I cut white potatoes and all white potato products out of my diet entirely, and I'm happy because I feel clearer-headed now than I have for at least two years. Still not great and I sure do realize it when I mess up and get potato cc.

Then I had a friend send me this link about lectins: Open Original Shared Link

I read it and had an ah-HA! moment. As I'm one of those Celiacs who isn't healing (I've been gluten-free since 7/28/09 with a few disasterous cc incidents that landed me in the hospital), I know there's a lot more behind my problems than just "simple Celiac's" where you go GFD and feel great in a year or so.

I'm MISSING SOMETHING BIG.

But you guys seem to be in the know and some of you are veterans here, so here's my shout out. :)

There are so many directions I could go in. I'm ADHD and feel overwhelmed at the prospect of changing my diet YET AGAIN. I'm seriously considering an elimination diet, but HOW to do that is the question. Do I eliminate lectins? Or oxalates? Or salicylates (sp?) or...........I'm soooooo lost. I mean....I have to eat SOMETHING, right? :?

Please...ask me questions, guide me as you can with what you know - I am open to hearing suggestions and greatly appreciate any help ya'll are willing to give! :D In return, I'm glad to help especially along the gluten ataxia lines where I tend to know more. And I have a background in Occupational Therapy Assistant so I'd be glad to give practical suggestions about how to adapt and problem solve daily life sorts of things. :)

Thanks, ya'll!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gutsy Girl Rookie

Is Rachel-24 still around?

She sure had some great ideas. I'm divulging an incredibly long thread very slowly (the "OMG...I think I'm on to something" one). It's like a billion pages long. LOL. :D

mushroom Proficient

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

Lisa79 Enthusiast

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

I also look forward to your reply, Lectins are still of great interest to me too :D

mushroom Proficient

Just got back on the board today and posted the following response to another poster on some of my experience with lectins, obviously not the same as yours, but it may be of interest. Fire back with any questions you have. You will find it at

  • 3 months later...
StephanieGF Rookie

I was just wondering if anyone else has tried this product? I am looking for something to help with Corn CC when eating out...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.