Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else Have This Happen?


aljf

Recommended Posts

aljf Apprentice

before i was diagnosed, i used to have diarrhea sometimes. now that i have been diagnosed, i feel like i get it MORE, and not just in reaction to gluten. i get it randomly, and like RIGHT after eating, and i can see pieces of whatever i've just eaten in it.

i know this is so so so gross, but this is the only place i can ask about it.

is this because my system has been "cleaned out" so much? or is it that my celiac disease was worsening as time went on and my body would react like this whether i had stopped eating gluten or not? and if this is happening whether i eat gluten or not, and literally RIGHT after eating, what else could be going on??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Don't worry, I can SO RELATE TO YOU!!!

I avoid as much as possible salads, fruits with skin, tomatoes, corn, mushrooms. All go through my system basically undigested.

The next time you see your doctor, ask him maybe to investigate the possibility of you having collagenous colitis. After a decade of permanent watery diarrhea, the top celiac guy in Canada finally figured out (by colonoscopy) that I also had collagenous colitis. Google it up, it might sound very familiar to you......

Good Luck!

Karen

pixiegirl Enthusiast

Add me to this list.... I love salads... bummer. I have been able to achieve some control over the D by using Metamucil or Citracil 2-3 times a day.

Susan

aljf Apprentice

i eat salads all the time, so i don't think it's due to them... last night (when i had another "episode") i also had a LOT of fat free whipped cream, which is basically skim milk and sugar. could a lactose issue cause this violent reaction?

mommida Enthusiast

Yes lactose intolerance could give you the"D".

L

jenvan Collaborator

I don't get extreme D all the time, but my food always comes out with undigested parts. Like "oh, there's what I ate for lunch." !

SueC Explorer

Does anyone still have floaters after being gluten-free for awhile?? I always thought this was normal..... and after 11 weeks gluten-free they still don't sink! :blink:

Sue


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bonnie Explorer

Sue, so glad you asked that! I have been wondering the same thing. Also been gluten-free 11 weeks. Still chronically constipated and when I do go (with help) - still floaters! Does this ever change?

BamBam Community Regular

Lactose intolerance can definitely be your problem. What happened in my diagnosis was they thought I was lactose intolerant in the beginning cause I had the D all the time - several times a day. So I gave up dairy. It quieted down some but never truly went away. I finally gave up wheat/gluten and my system has quieted down a lot, still have a few problems, but I think everyone gets the D once in awhile. Now that I have given up wheat for good, my lactose intolerance problem may heal, because my intestines are healing and I should be able to digest dairy again at some point. I accidently ate butter a month or two ago, I had some grumblings and gas, but I never had to run to the bathroom like I did in the past.

I would give up all dairy for two weeks and see what happens, also look for dairy ingredients in the foods that you eat, cause it is in a lot of things. I can eat Yoplait and Dannon yogurt with no problem at all.

bambam

cgilsing Enthusiast

If I have a dietary acceident I'm usually C for several days, but then all of a sudden I'll have D.....It's a welcomed change by that point and usually I sign that I'm getting over it...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

    2. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    3. - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

    5. - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748

    LG2
    Newest Member
    LG2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.