Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd And Reflux

anerissara

Recommended Posts

anerissara Enthusiast
anerissara
Posted

Just wondering how many people here also have reflux? It seems like it often goes along with celiac's. I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem. Does anyone else notice reflux increasing when they get glutened? And do you struggle with reflux as well?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jnkmnky Collaborator
Jnkmnky
Posted

When my son was an infant the reflux was wicked. He was on "baby zantac". Neither of my other children had reflux.

jknnej Collaborator
jknnej
Posted

I have it and Nexium has saved my life.

Guest AmandasMommy
Guest AmandasMommy
Posted

amanda and i both have it. dr said when shes on the dietfor a while it will go away. i hope so. and ive had it most of my life, i wish the drs would have known about celiac disease when i was younger.

rmmadden Contributor
rmmadden
Posted

I believe the two are inter-related. It just seems to make common sense when you think about it.

I actually started a topic on this a while back which you san see by going to Open Original Shared Link

Best of Luck!

Cleveland Bob B)

Guest AmandasMommy
Guest AmandasMommy
Posted

yes i too have celiac disease with lactose intolerancy, acid reflux. although i am thirty somthing, and just found out, when i get back from vacation, im gonna have 13 blood tests, upper gi, sonagram and a colonoscopy.....yay :(

terryjean Rookie
terryjean
Posted

Yes I have celiac disease with reflux along with asthma, diabetes, interstisial cystis, IGA deficiency. I take Nexium 40mg twice daily...... & pepcid as needed.

Terry

Dumont, NJ

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bmorrow Rookie
bmorrow
Posted

I also have reflux and had surgery for it before Celiac was diagnosed. I am now being tested for Lupus because of all the joint pain and the fatigue.

steve-o Apprentice
steve-o
Posted

I had a big problem with reflux, but since going gluten free, it has totally disappeared.

Officially, I don't have celiac disease (negative biopsy & bloodwork only showed elevated IgA Anti-Gliadin), so I've "challenged" myself a couple times, just to see what happens. As soon as I re-introduce gluten into my diet, the reflux comes back.

jknnej Collaborator
jknnej
Posted

Terry,

Does Pepcid help when your reflux is really bad? The past two days I have had terrible heartburn and I do take Nexium once a day. I"m wondering if I need to up my dosage. I didn't know you could take Pepcid as well. Does it help? I've got to figure something out!

terryjean Rookie
terryjean
Posted

Hi! I already take (2) 40mg Nexium daily .................. and add the pepcis to that when needed................... Yes it does help~

(1) don't eat and lay down

(2) don't eat before bed

(3)easy on spices

You can chck with your doc........... but this is what I was told! I also added 150mg of zantac before I went to the pepcid as per my doctor!

Hope it helps!

Hugs, Terry

Lesliean Apprentice
Lesliean
Posted

My presenting symptom was reflux and after 2 years of Pepacid I diagnosed thru Enterolab and the reflux went away within weeks of being gluten and dairy free. Also a congestion in throat and nose and ears went away. Only then did I realize all the gastro problems had not been normal. As well as irregular periods, heart rate...

KAthyB Newbie
KAthyB
Posted

My 19 yr old celiac daughter was up to 40mg nexium 2x daily and xtra strength pepcid 2x daily and a 3rd nexium if needed after a ph probe on meds showed that the usual dose was not blocking enough of the acid. She decided on her own to take a "drug holiday"....24 hours off meds...she learned that these "holidays" are often helpful in one of her nursing lectures...(never skip insulin)....she resumed the following day starting at one Nexium one hour before her dinner and the reflux is very much improved. She did this on her own....I would not recommend trying this without a doctor's advice...but she feel so much better...she was looking inot surgeries but was told that they are risky....she agrees that reflux is probably worse if she gets some gluten...this usually only occurs when she eats out and is not assertive enough about the cross contamination issues.

Kathy

  • 1 month later...
griffithkat Newbie
griffithkat
Posted
Just wondering how many people here also have reflux?  It seems like it often goes along with celiac's.  I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem.  Does anyone else notice reflux increasing when they get glutened?  And do you struggle with reflux as well?

<{POST_SNAPBACK}>

I have been to the hospital twice for reflux nothing seem to help. I went to the health food store and they gave me activated charcoal...It's a miracle.. I never go anywhere without some. It knocks the pain out within 10 minutes

judy05 Apprentice
judy05
Posted
Just wondering how many people here also have reflux?  It seems like it often goes along with celiac's.  I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem.  Does anyone else notice reflux increasing when they get glutened?  And do you struggle with reflux as well?

<{POST_SNAPBACK}>

I have it so bad that I was diagnosed in 2003 with Barrett's Ring around the esophagus. I thought all I had was occ. heartburn. I urge all of you who have reflux to be "scoped" (endoscopy). This is nothing to fool around with, it can turn to cancer, especially in men. Just another thing we have to worry about. I take Prevacid every day and I have to be checked for the rest of my life.

judy05 Apprentice
judy05
Posted
yes i too have celiac disease with lactose intolerancy, acid reflux. although i am thirty somthing, and just found out, when i get back from vacation, im gonna have 13 blood tests, upper gi, sonagram and a colonoscopy.....yay :(

<{POST_SNAPBACK}>

Be sure you have the EGD if you haven't already!

Guest BellyTimber
Guest BellyTimber
Posted

Yes I get this sort of thing especially a cough that has lingered a couple of months.

Perhaps I need to get it checked alongside my migraines.

:rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748
    Rena Celiac
    Newest Member
    Rena Celiac
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.