Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Poor Memory


gifree

Recommended Posts

gifree Apprentice

Hi There:

As a follow-up to an earlier post, I'm curious what steps folks with Celiac have taken to either remedy or manage poor memory. I suspect my poor memory is mostly long-term, but may also be poor in the short-term and working department. I've done ample research, but am unsure what next steps to take? I have mentioned the poor memory concerns to my Neuro Doc., but he seems to be somewhat dismissive; good guy overall. I suspect that he's not aware of the neurological/cognitive impacts that Celiac can have.

That said, have folks had any scans, say a SPECT scan or otherwise? Are folks taking medication, over-the-counter, supplements to remedy or manage memory concerns? I'm 6-months into the diagnosis and can't say I've felt a marked increase in my memory. It may be too early or may be irreversible.

BTW: I'm considering going back to school, at age 38, but am weary of that path if I can't count on a solid memory.

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fire Fairy Enthusiast

At one time my Dr told me to take Cerefolin NAC but that was before I went gluten free. Sorry I'm not more help. I'm sure some of the others here can give you some useful info.

Skylark Collaborator

I have memory trouble when I'm hypothyroid. An awful lot of celiacs are hypothyroid so is that a possibility for you?

dilettantesteph Collaborator

The longer I remain gluten free, and the better I get about eliminating cc, the better my memory gets. I hope that will be the case for you too. The slightest glutening and it's gone again, but at least I know now that it will come back.

starrytrekchic Apprentice

I'm a little over a year in, and my memory is finally starting to come together. For a while--especially through the 8-9 month mark--it just kept getting worse.

Make sure you're getting enough carbs in your diet, since gluten-free can be low on them. Otherwise, keep taking whole vitamins while your intestines heal. For me, the memory thing seems to be overall vitamin/mineral deficiencies & carb related, not any permanent damage.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.