Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hand Weakness And Reduced Dexterity


Jacky

Recommended Posts

Jacky Rookie

Over the last few months I have noticed my right hand (I am an ambidexterous lefty) has become weaker and less dexterous. I have trouble picking up small objects, turning pages in the newspaper all dexterity issues) and I have a loss of hand/finger strength. It seems to be in my fingers. I have a small spray bottle and I can no longer depress the sprayer with my right index finger. I've read about neurological symptoms associated with celiac disease, but I can't find any descriptions or specific manifestations. Please help!! I became symptomatic in January 2010 and have been trying to maintain a gluten free diet since March 2010.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emaegf Newbie

It's called Celiac Neuropathy it's similar to Diabetic Neuropathy with most if not all of the same symptoms. But like any other symptoms one may have to gluten they vary with each person.

Jacky Rookie

It's called Celiac Neuropathy it's similar to Diabetic Neuropathy with most if not all of the same symptoms. But like any other symptoms one may have to gluten they vary with each person.

Thanks so much! I googled that last night and learned so much about celiac disease neuropathy! My family doctor is running tests right now to rule out MS and I've been pretty freaked out the last few days!! I'm feel a lot better now about the whole thing. Over the last 11 months since I became an "active" celiac I have had symptoms like crazy....the rash, mouth sores, now lactose intolerant, 2 sinus infections, a virus infection that relapsed (don't know if these things are related) and now over the last 3 or more months this hand weakness.

Here's my NEXT question: I've been trying to maintain a gluten free diet for the last 9 months (hiccups from gluten containing prescriptions, can't consumed distilled alcohol such as vodka, scotch) but these symptoms have all occurred AFTER I went gluten free. Why is that? Am I going to continue to get other celiac related problems even though I'm gluten free?

This whole thing is scary and I worry if it's ever going to stabilize or if I'm going to end up really disabled from this thing. I see that you said symptoms vary from one person to another, so maybe there's no knowing...but do you know if this will eventually stabilize?

  • 4 weeks later...
Lily127 Rookie

I wanted to chime in and say I'm sorry for your pain. I get severe joint/tendon issues of late and I know how scary it is to not be able to turn a faucet or press the lotion bottle thingy down or open a bottle. That being said I have fibromyalgia. I'm never sure if it's gluten or fibro but the odd thing is that since I've been trying to go gluten free in April of 2010 all my symptoms have gotten much worse. It's almost unreal to me how much I'm eating better and suffering more. I don't know if there is a reason for that like maybe it's pulling it out of my tissues. I don't know. I'm just rambling here as I limp along trying to type!!

I know aspirin and celebrex (not together of course) help me feel better with the stiffness/pain but they upset my stomach. So if I take 200mg of celebrex I can be normal and open the bottles and use the lotion so I also wonder if it is gluten causing it why would celebrex help in that I don't think it's just masking the pain because the redness from the hot joint goes away too. anyway just thought you might like to know that maybe celebrex might help your discomfort if you wanted to try that path. Just an option for you :)

Skylark Collaborator

Have you talked to a doctor about carpal tunnel syndrome? An anti-inflammatory and a wrist brace might really help. It's especially important to sleep with your wrist in a brace if it's carpal tunnel. Celiacs do have a slightly higher incidence of carpal tunnel problems. Mine have always gone away if I take good care of my hands and wrists.

mushroom Proficient

Celebrex is an anti-inflammatory as well as a pain reliever - it relieves the pain by taking away the inflammation. :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.