Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Playing Detective Again


Ox on the Roof

Recommended Posts

Ox on the Roof Apprentice

Well, I am pretty sick again this afternoon, and I can't figure out what in the world is causing this! I think the most frustrating thing is that I don't know for certain that it's even gluten that is making me sick.

But assuming it is, it likely would have been something I had for lunch since I got sick about an hour afterward:

gluten-free bread that I made from a mix and didn't seem to be a problem last night

Honey Baked turkey that I've been eating since last Friday and didn't make me sick before now

French's Mustard (website says it's gluten-free)

Some salt and pepper potato chips that are labeled gluten-free

Tea with honey

This would be easier if I knew for certain that it was gluten, because then it would just be a matter of figuring out what's causing it. But it makes me sad to think that gluten may not even be the problem.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Salt and pepper potato chips. Either cross contamination or you might have developed an intolerance to the potatos. Just a thought. Then again you could just be having a day where your insides are just not having a good day from not being totally healed yet. Then again you could be reacting to something in the gluten free bread. So, eliminate one thing at a time. Say, like when you finally start feeling better, just eat the chips for a week, then the gluten free bread for a week, so on so on. Just try to be patient and I feel for ya, I really do. Been there done that. I hate having to be a detective. :ph34r:

starrytrekchic Apprentice

What type of tea? Some Tazo teas aren't gluten free.

FooGirlsMom Rookie

I'm in the same place you are. I have certain days where I seem to react to gluten free foods and it makes me think it's secondary allergies or something seeping via "leaky gut". Two things on your list cause me to react from time-to-time. One is gluten-free bread. Some days I'm peachy with Udi's bread & other days I seem to have an issue. Some tea seems to upset my stomach even if it's gluten-free. Tea is a plant so maybe you're having an allergic reaction?? You didn't say what kind of tea.

One really weird thing that tears up my stomach now is cooked onions (???) There is just no rhyme & reason and I am suspicious that if I've upset my stomach slightly with a food it doesn't really like -- like the previous 24 hours -- and then I add gluten-free bread on it (harder to digest) my body goes into a meltdown. Many days I tolerate Udi's bread just dandy. It's so odd.

Hope you figure it out. It's pretty frustrating isn't it?

FooGirlsMom

kayo Explorer

Have you been tested for fructose malabsorption and/or SIBO? If you are FM then the honey would be giving you trouble. If you have SIBO everything gives you trouble.

Rachel W Apprentice

I've had the same issues..One day the gluten free bread is ok with my guts, the next you would think i ate a barley,wheat and rye sandwich lol..One thing i have found that helped when i first got diagnosed and went gluten free was limiting my diet to nothing but natural..my doc said, to quote " If you cant kill it with a knife or pick it off a tree dont eat it".. very hard to do but helped me ! Even now i feel better when i eat that way, but itss hard when u are at work or traveling! Good Luck :)..also, u may want to have a allergy profile ran, just a blood test 4 the basics,,wheat,corn,soy,lactose etc...

Lori2 Contributor

And for me, it takes about 2 1/2 days for problems to start. That makes it harder to pin down the source of the problem.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ox on the Roof Apprentice

Thanks so much for all the replies! I still feel pretty sick today. BLAH.

The tea was just plain ol' Lipton. We drink a lot of iced tea in TN. I've eaten the chips before and didn't get sick. But that was the first time I've made the bread.

I really appreciate all the help. You guys are Super Sleuths. Now if you could just use your Super Powers to make me feel better, I'd appreciate it. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.