Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shopping Questions From A Newbie


Kelleybean

Recommended Posts

Kelleybean Enthusiast

Hi -

We are in the process of transitioning my soon to be 3 y.o. son to a gluten-free diet not b/c of celiac but b/c of his autism. We have limited gluten for a while but now we are fading out the gluten completely. I went shopping over the weekend but I have to confess that I was completely overwhelmed. Is there an easy way to tell by reading the ingredients list whether a product is "safe"? Is it enough just not to have wheat listed in the "contains" part of the ingredient list, or does the product have to actually be labeled gluten free? I was looking at products that seem like they should be gluten free like rice cakes and corn chips for example. It looked like it didn't contain gluten based on what was listed on the ingredients list, but I just wasn't sure. I'm lucky in that if he were to accidentally get some gluten it won't make him sick but I want him to be as gluten free as possible so that I can get an accurate picture of whether the diet is helping his autism.

Is there a way to know if a product is safe short of contacting the manufacturer each time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Following my comments, I'll provide a link to a URL that lists the gluten-free processed foods that can be found at a regular supermarkets--all kinds of products (the list is over 100 pages long).

However, before providing the link, I'd like to discuss an alternative to buying processed foods. In the beginning when people try a gluten-free diet, it's usually easier and safer to buy only natural foods; e.g., vegetables, fruits, meats, nuts, rice, potatoes, and dairy. Many of us rarely buy processed foods anymore because they no longer interest us. After following a natural diet over a number of years, the thought of eating anything processed is distasteful--you can really tell the difference! Since you're changing your child's diet to a gluten-free one for medical reasons, is there a reason why you wish to buy processed foods? There are so many chemicals and bad ingredients, besides gluten, it might be worthwhile to provide only natural foods for the first six months or so to see if there is an improvement in your child's condition. Of course, if you don't wish to bake your own bread (which can be tricky), there are some excellent gluten-free brands out there--personally, I favor Udi's sandwich breads. Also, you can find some good gluten-free pastas (Tinkiyada and EnerG are my favorites). Baking gluten-free cookies and cakes can be a little tricky at first, but if you use a good gluten-free all-purpose flour like Bob's Red Mill and add a few teaspoons of xanthan gum to your recipes, the baked goods usually come out fine. There's no need to run out and buy special books on preparing gluten-free recipes--simply use substitutes in your own favorite family recipes.

Okay, now I've had my say...so here's the link:

Open Original Shared Link

Good luck to you! And please feel free to ask for more help here at the Forum--these people know everything!

Jestgar Rising Star

Keeping in mind that list is more than 5 years old. Many things could have changed!!

psawyer Proficient

Many mainstream foods are suitable for the vast majority of us. After a while, you will be able to read labels and know quickly.

Try these links for useful information:

Unsafe ingredients.

Safe ingredients.

Open Original Shared Link If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." These companies make shopping easy. Just read the ingredients and if there is gluten it will be clearly disclosed.

Kelleybean Enthusiast

Following my comments, I'll provide a link to a URL that lists the gluten-free processed foods that can be found at a regular supermarkets--all kinds of products (the list is over 100 pages long).

However, before providing the link, I'd like to discuss an alternative to buying processed foods. In the beginning when people try a gluten-free diet, it's usually easier and safer to buy only natural foods; e.g., vegetables, fruits, meats, nuts, rice, potatoes, and dairy. Many of us rarely buy processed foods anymore because they no longer interest us. After following a natural diet over a number of years, the thought of eating anything processed is distasteful--you can really tell the difference! Since you're changing your child's diet to a gluten-free one for medical reasons, is there a reason why you wish to buy processed foods? There are so many chemicals and bad ingredients, besides gluten, it might be worthwhile to provide only natural foods for the first six months or so to see if there is an improvement in your child's condition. Of course, if you don't wish to bake your own bread (which can be tricky), there are some excellent gluten-free brands out there--personally, I favor Udi's sandwich breads. Also, you can find some good gluten-free pastas (Tinkiyada and EnerG are my favorites). Baking gluten-free cookies and cakes can be a little tricky at first, but if you use a good gluten-free all-purpose flour like Bob's Red Mill and add a few teaspoons of xanthan gum to your recipes, the baked goods usually come out fine. There's no need to run out and buy special books on preparing gluten-free recipes--simply use substitutes in your own favorite family recipes.

Okay, now I've had my say...so here's the link:

Open Original Shared Link

Good luck to you! And please feel free to ask for more help here at the Forum--these people know everything!

To be honest, it is not my preference to use processed foods. My problem is that my son, very probably b/c of his autism, is very sensitive to food texture. He refuses meat (except the occasional hotdog) and veggies unless they are pureed. He also has a language delay so it's still tough to "reason" (as much as you can reason with a 2 year old anyway) with him about food. If I were going gluten-free then I would opt for say chicken or whatever with a veggie side. His eating habits have actually improved tremendously but I'm still going to have to get creative and sneak nutrition into him however I can get it. Thanks for the list!

Takala Enthusiast

Oh, that's right, the texture and everything being the same from the last time is magnified with these little ones !

In general, the easiest way to tell is to see if the item says "gluten free" right on the package. Once your eye is trained, you'll see it more and more. The second way is to go to a health food store and hit the gluten free aisle, where it is easier to find things- but beware, I've seen non gluten free foods packed in right next to them in some grocery displays of things like Bob's Red Mill packaged flours. The help and the management are either Not Thinking or Don't Care. (at one large famous national "health" chain closest to me, I don't go there very often precisely because they scatter shotted the gluten free stuff all over the store, as if we all wanted to play Treasure Hunt. :angry: My local grocery actually has the stuff better organized and cheaper. )

The third way is you use the google and search the words gluten free xxxxxxx xxxxxxx where xxxxxx is the name of the item you're interested in. For instance, Lundberg Rice Cakes are gluten free. Tinkyada Rice Pasta is gluten free. Both of these are marked on the package. For corn chips, you can search gluten free mission corn chips, for example, and get the website which says they have some that are. Open Original Shared Link Fritos also claims some of their chips are gluten free Open Original Shared Link

You can also check this website for product reviews and reactions, including the sad thing that happens when a formerly good company crosses over to the dark side of cross contamination due to mergers, etc. :( "New and Improved" are not automatic Happy Words around here.

Sometimes soy and dairy also cause problems.

Kelleybean Enthusiast

Thanks, Peter! I'll have to mark these sites on my i-phone or something so that I can consult it while I'm in the store. I'm sure I'll get the hang of this and it'll get easier once I've made a few trips.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelindaLee Contributor

Some of us celiac avoid products processed on the same equipment as a non gluten-free food. I don't know if that is an issue for you or not. I am not usually sensitive to that, so I really don't pay much attention to it. If the ingredients look gluten-free, I try it. For example: basic corn chips usually have limited ingrediants and none contain gluten. Usually corn and oil, maybe salt, but not much else. Others with celiac, can't take that risk as they will react to a very small amount of gluten. I don't find most products that don't have gluten as an ingredient still are not labeled as gluten free. I don't know if there is a cut off of what is considered "safe" for success with autism. Generally, the recommendations is 20ppm for celiac, but that is not necessarily where peoples tolerances are. Is that helpful at all??? Good luck. It will become easier, I promise. (If nothing else, you will get used to your "regular" foods, like you have now, and these will be the ones you fall back to.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748

    Dogdad21
    Newest Member
    Dogdad21
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.