Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Med Help


behappy123

Recommended Posts

behappy123 Newbie

Omg, I just realized, what if my synthroid and exjade have gluten in them?

Does anyone have any experience with Thryoid meds? I don't know what's in mine....

I'm still puffy and feeling gross. Time to live off nothing. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

there is a good site called www.glutenfreedrugs.com that is put up by a pharmacist who will list what has been verified as gluten free

I checked your two, and this is what was listed:

Synthroid (all strengths)-can no longer guarantee gluten-free status

I could not find exjade, but that may mean it's not gluten-free, or that it hasn't been looked at yet by this pharmacist. So it sounds like it may be be a good thing to check your meds, yeah. :-(

If nothing else, hopefully the site may list some thyroid meds that ARE gluten free.

Omg, I just realized, what if my synthroid and exjade have gluten in them?

Does anyone have any experience with Thryoid meds? I don't know what's in mine....

I'm still puffy and feeling gross. Time to live off nothing. :(

ravenwoodglass Mentor

Look on your script monograph or the bottle to see who the maker is. Then do a search with the company name and the words 'contact info'. That will often bring up a number to call the maker. Sometimes they do have to get back to you as the customer service rep will have to contact the lab for the answer. Also do have your pharmecy note that you need gluten-free meds on your records and remind them when you get scripts filled that they need to call. Note that not all pharmaceys are willing to take the time to do this. If yours won't check ask for the maker before they fill the script so you can call yourself. Once they give you that bottle of pills they can't be returned.

SaraKat Contributor

My endocrinologist told me Synthroid is gluten-free. I have been on it for a while and have no issues.

Wolicki Enthusiast

I was told Synthroid cannot be guaranteed gluten free because of the suppliers. I take Levoxyl with no issues. Dont know about the other one, sorry.

compucajun Rookie

I take a lot of meds, and Walgreen's would not help me figure out which ones were gluten-free. I found a wonderful druggist at a small pharmacy nearby that checks all of my prescriptions. May be you could find a new druggist who could help you?

Luddie Newbie

Omg, I just realized, what if my synthroid and exjade have gluten in them?

Does anyone have any experience with Thryoid meds? I don't know what's in mine....

I'm still puffy and feeling gross. Time to live off nothing. :(

I, too, wonder about my generic L thyroxine since I was doing fine until last May or June when I started experiencing lots of pains all over my body. The pharmacy who fills my rx said they had not changed suppliers and gave me the name. I phoned them and they claimed their products are gluten free...but I've been reading on some of these postings that there may be teeny amounts and I may be one of those "lucky" ones who reacts to "teeny" amounts...I'm still having trouble and that thyroid medicine is still suspect. So I thought, well the "Brand Name" Synthroid surely would be the gold standard for purity. Not so as I found out they don't guarantee it is gluten-free anymore. It's hard to follow the path of all the fillers and coatings that are used in drugs. Think back to when the dog food scare happened. You just never know where the ingredients are coming from. I'm thinking about asking to switch to Armour thyroid! <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cap6 Enthusiast

Our local Walgreens (so california) was not very helpful but while on vacation found that one in Oregon was extremely helpful. Think that it depends on the pharmacist.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.