Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are Your Symptoms When Glutened?


catarific

Recommended Posts

catarific Contributor

I keep hearing the phrase, "I've been glutened!" When you are "glutened" what are your symptoms? And when you say you are glutened, are you sure it is gluten or maybe a reaction to something you could be sensitive to? I know I now have many sensitivities that when I come into contact with that type of food - I get stomach cramps, diarrhea, queasy stomach, etc. So similar to being glutened - that sometimes it is hard to tell what is what....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



runningcrazy Contributor

I keep hearing the phrase, "I've been glutened!" When you are "glutened" what are your symptoms? And when you say you are glutened, are you sure it is gluten or maybe a reaction to something you could be sensitive to? I know I now have many sensitivities that when I come into contact with that type of food - I get stomach cramps, diarrhea, queasy stomach, etc. So similar to being glutened - that sometimes it is hard to tell what is what....

I have only been glutened mildly a few times, but I assume my symptoms would be the same...I get a headache that lasts a few days, bad stomach cramps, my appetite goes up and down, and it just sucks!

diane64 Apprentice

I know what you mean- it's hard to tell!

I have been gluten free for 6 monnths. Right before Christmas I felt tired, confused, had diarrhea, and no appetite. I also had stomach pains. Other than the stomach pains, I felt like I did before going gluten free. I don't know what I ate. I am very careful and not eaten out or at anyone's house.

It is tough to know if it's gluten or something else.

Good luck!

dreacakes Rookie

For me, being glutened is different than being effected by my other food sensitivities. It really feels like my immune system is reacting.

Usually if I eat something contaminated I get really gassy that day, and I either get diarrhea or my stool looks weird. Also, my eyes get a little itchy and watery. Then the next day, I wake-up feeling really tired and foggy, and occasionally I get nauseous. For the next couple days I feel dizzy, foggy, and tired, kind of like when you have a cold and your body is fighting off the germs. Then my lower abdomen is tender for several days.

Basically, no fun!

LivesIntheSun Apprentice

I get an ulcer in my throat a couple of hours after eating the gluten and feel totally exhausted.

The next day I feel depressed and get into rages or crying spells at the slightest (or no) provocation, I need to sleep all day and I can't think clearly.

shopgirl Contributor

I don't know; it hasn't happened yet. I'm kind of curious about what my symptoms will be but not dumb enough to test it.

mareahf Apprentice

First I get gassy, then the next day I feel tired all day and I have no appetite, the next day comes nausea, diarrhea and headaches. Depending on how bad I got glutened depends how long it lasts 2-7 days. It just happened to me this week. I got CC from a friend's BBQ.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zergcoffeebean Newbie

I will feel a little light headed, or slightly drunk/brain foggy within about an hour of eating something containing gluten. However, I rarely notice this until the next day when the symptoms are much worse.

When I go to sleep, I get severe nightsweats, the completely soaking my bed kind. I wake up in the throws of a severe fibro flare up and I typically have a migraine. I have severe gas, watery stools and really bad abdominal cramping for the rest of the day. I also seem to get mild sinus congestion and a sore throat. These symptoms last for about a week, but do get progressivly less intense as time goes on.

Hummingbird4 Explorer

I don't have any glutening symptoms. Either that, or in 2.5 years, I have never been glutened. I have half a mind to purposely eat something with gluten just to find out, but I'm too chicken. And really, what would be the point? I avoid it as best I can, 100%.

T.H. Community Regular

There are a few reactions I have that can go along with gluten (headaches, nausea, the runs the next day), but I also have very gluten-specific symptoms along with it. The longer I've been gluten free, the more symptoms have been popping up, unfortunately.

I have a vertigo attack within 20 minutes of getting gluten, sometimes with nausea if it's bad enough. Thinking gets fuzzy and I feel very disconnected for an hour or so. I get really, really sleepy to the point I can hardly stay awayke. Aches and pains in my joints and muscles. A low-grade fever within a few hours.

There's other symptoms that pop up over the next week, and some of these continue for a few days. Generally...I do not like gluten at all. ;)

I've noticed, after having this happen a number of times, that I can distinguish between gluten reactions and reactions to other foods better and better. Some things I thought were other food intolerances turned out to be gluten cc. Once I figured that out, it was easier to figure out what reaction went with what.

lentzKat Newbie

I get a lot of the same symptoms going on that were making me sick when they diagnosed me with this: pain in the left side of my abdomen,nausea, foggy headed and extremely tired but insomnia to go with it, gassy stomach, and chills. I was only diagnosed a week ago, but think cross-contamination may be happening at work.

Fire Fairy Enthusiast

I get a migraine and all that goes with my migraines, I've also noticed blood blisters in my mouth. The migraine starts within an hour and the blood blister usually shows up the next day or so.

SaraKat Contributor

I get pain in my left ribcage area, but it seems to happen in the days after when I think I might have been glutened. I have no stomach issues that happen right away. I know there were a few questionable meals over XMAS and I am having pain in my left side now, so I think it is a result of the XMAS glutenings. It takes a while for the pain to go away, I have to be super strict for a couple weeks for it to be gone.

Kitsune Newbie

For me, within an hour I have severe abdominal bloating, d for the following few days, I develop ulcers in my mouth, lose my appetite, often have issues with my bladder (pain, urgency), and extreme mood swings. If I ingested a lot of gluten I get pain at the bottom of my rib cage on the left hand side which feels like stabbing pains. I also retain a lot of water.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748

    SY8
    Newest Member
    SY8
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.