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Gluten Free But Still Acid Reflux?


Pal Mom

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Pal Mom Newbie

My 6 year old daughter had a positive biopsy (showing damage, but minimally so far) and showing ulcerations along her esophagus. She has now been gluten free for 2-3 months. She has recently started complaining of leg cramps again and now has had two serious bouts of acid reflux. She has never complained about acid reflux symptoms before so the ulcerations were very surprising.

I was assuming the ulcerations were caused by acid reflux which was being caused by gluten.

Is it possible that you can be gluten free and still have acid reflux or am I missing some gluten in her food intake somewhere and that is what is causing her acid reflux? I'm so confused.

Can anyone help?


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YoloGx Rookie

Its likely she is allergic or intolerant of some other foods she is eating/drinking/exposed to. You might do well going on an elimination diet. Have her eat very simple food at first. If she still has a problem, change the diet to where she does not have a problem. Avoid the common allergens. A cave man or paleo diet might help. In some cases salicylic acid can be the culprit, or simple allergies to milk, soy, corn, etc. etc. Sugar (and the like) is often a big no no. Try plain stevia instead as a sweetener. Cooked food is usually easier to digest than raw. Keep a food journal, note how she feels before and after eating, as well as the next day. If you can take her pulse, that is even better. Note it down in the journal. If it varies a lot, that is a huge clue. Just add one food at a time if possible. Good luck!

WheatChef Apprentice

I second the paleo diet recommendation, carbohydrates are much more common culprits of acid reflux than gluten.

rustycat Rookie

I can get acid reflux from a combination of gluten-free grains and eggs. In fact, I'm having a bit right now due to a dinner that had gluten free pizza (with egg in the crust). It usually only happens when I have a significant amount, like a pizza.

I try not to eat grains every day, just every few days - that usually helps. Today, I had already had some grain based gluten free bakery items earlier, so it was all too much.

tarnalberry Community Regular

Plenty of people with no gluten problems have acid reflux. Some physical things can cause it, and some dietary things. One of the biggest culprits, for many people, is dairy. Have you tried eliminating dairy or other foods?

dilettantesteph Collaborator

My son continued to have acid reflux problems until we eliminated processed corn from his diet. He still does fine with corn on the cob. Also with corn that I sort and wash. I believe that he was having cc problems with the processed grains.

quincy Contributor

My son continued to have acid reflux problems until we eliminated processed corn from his diet. He still does fine with corn on the cob. Also with corn that I sort and wash. I believe that he was having cc problems with the processed grains.

Good posts. Before diagnosis, my first symptoms several years ago was acid reflux, especially from bread and oatmeal. After being on prescribed prilosec for several years, I was able to slowly ween myself off of it as I went gluten free and my symptoms began to subside. I then thought I could eat any gluten-free item and I would be fine. Wrong. I started eating gluten-free bread and after several weeks of having bread every day, I noticed that the reflux started up again. I take a tums regular strength. or my doctor recommended zantac 75 in the evening before dinner if I am feeling my stomach is too acidic.


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cap6 Enthusiast

I have been on prilosec for the past year. I have tried to wean off of it and am ok for a couple of days then it feels like pure acid is being poured down me. I eat almost all pure foods. I just figure that I will give it to my 1 year mark & try weaning again. Maybe it just takes time to heal everything?

YoloGx Rookie

Going off grains for a while might be a good idea for those having acid reflux. I think for those who tend to get allergies (not just celiac) its a good idea to rotate one's diet, especially if one eats grains. You can actually make a lot of breads/muffins etc. with ground up almonds or sunflower seeds (assuming you aren't allergic). Eggs help hold them together more easily, however if this is also a culprit, alternative things like flax seed and tapioca flour or xanthum gum etc. can be used instead.

I can't tolerate milk either--except for the 24 hour yogurt (i.e., home made yogurt cultured 24 hours to get rid of all the lactose).

Some also like my friend Graeme are casein intolerant so they can't tolerate milk at all -- or they can perhaps use goat milk instead (the casein molecules are different).

Emotions too perhaps may need to be addressed. Being under a lot of stress can aggravate one's allergies. Meditating, walking, swimming, doing art, playing or listening to music -- whatever, really helps. These activities actually release chemicals that soothe one's brain and one's belly... It helps too to practice being positive, especially important to a child in a household--though of course its important to most everyone.

Bea

AndrewNYC Explorer

My 6 year old daughter had a positive biopsy (showing damage, but minimally so far) and showing ulcerations along her esophagus. She has now been gluten free for 2-3 months. She has recently started complaining of leg cramps again and now has had two serious bouts of acid reflux. She has never complained about acid reflux symptoms before so the ulcerations were very surprising.

I was assuming the ulcerations were caused by acid reflux which was being caused by gluten.

Is it possible that you can be gluten free and still have acid reflux or am I missing some gluten in her food intake somewhere and that is what is causing her acid reflux? I'm so confused.

Can anyone help?

get rid of all processed foods. Only sure fire way to get rid of reflux. The body won't reflux on purely natural food items.

quincy Contributor

get rid of all processed foods. Only sure fire way to get rid of reflux. The body won't reflux on purely natural food items.

very true. the more "whole" unprocessed foods you eat the better.

I would do the research on Prilosec and other drugs of its class. they are not intended for long term use and can cause b12 deficiency and bacteria overgrowth over time.

To ween off correctly consult your doctor. I basically had the time release pellets in a capsule. I would open the capsule and start off by removing a few of the pellets each day. Each week I would do a bit more until I was at half the amount of pellets. Then I stayed on half a dose for a week. Slowly you can introduce an otc product like zantac 75 or something similar. Basically if you go cold turkey with that medicine you will get the rebound effect of more acid than you would normally produce and tear up your stomach and esophagus. so be careful just stopping cold turkey.

hope that helps. I am not a doctor so do the research. Most traditional doctors give that stuff out like candy and they don't monitor your use of it or advise you to stop or modify your diet... sad but true I have found.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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