Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Burn And Glutened


kim307

Recommended Posts

kim307 Newbie

Hi,

I was diagnosed with Celiac four months ago. I have been really careful ever since my diagnosis. Prior to my diagnosis I had terrible "stomach burn" for months and months and horrible "d" of course. I went to the doc for heartburn, but he tested me for everything. After the blood tests and endoscopy, it was determined it was celiac.

My doctor told me the "stomach burn" was not from celiac, but I find this hard to believe. When I stopped eating gluten, the burn went away. However, now, for the first time in MONTHS...my stomach is on fire and I can't eat without having "d". Sometimes a burb helps relieve the burn a little. I also feel fatigued and totally out of it. Could this be "glutened"?

How can I make it stop!?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

I have gastritis and it makes my stomach burn. It has mostly gone away since I stopped eating gluten but will come back if I get CC.

GFinDC Veteran

You can try some peppermint tea or peppermint Altoids to relieve gas in the stomach. It helps you belch.

You can also try some Pepto Bismol to coat your intestine and possibly relieve some of the irritation if it is gluten.

You may also have a stomach ulcer. IF it doesn't clear up in a week after getting your diet right you could ask your doc to check for an ulcer.

If it is cross-contamination it should clear up by itself once you find and eliminate the cause.

kim307 Newbie

Thanks! Is a headache normal too? Ironically, I have my first appointment at the Celiac Disease Center at Columbia University on Thursday. The doctor that diagnosed me never really told me my biopsy results. He told me I had a hiatal (sp) hernia and Celiac. He cannot however explain anything to me. I can't wait to find someone who will really help me.

Skylark Collaborator

Yeah, I think you got glutened. :( Pepto Bismol helps me too. Did you start eating anything new or eating out somewhere different?

If you don't get a decent explanation from your doctor, feel free to ask questions here. A lot of us know a fair amount about celiac disease and other GI issues, having experienced them first-hand!

WheatChef Apprentice

Excessive carbohydrate consumption can also easily cause heartburn, no gluten required.

kim307 Newbie

Thanks everyone! The pepto did help to ease the burn a little. I can't wait to have a real doctor help me tomorrow. The doctor who diagnosed me was awful:( I will let you know what she says.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bridgetm Enthusiast

Excessive carbohydrate consumption can also easily cause heartburn, no gluten required.

That explains it! In the last 2-3 weeks, I've increased my carb and protein intake in an effort to gain back a few pounds (lost 25 initially with the diet change and then another rather unhealthy 20 followed) and to aid my post-op recovery (I had a knee arthroscopy last week. Walking with an immobilizer is a great full-body workout, FYI). My acid reflux had finally improved, but has worsened again in the last few weeks and has not relented even with Prilosec. I assumed it was just holiday stress, unavoidable minor CC at home and the after-effects of the surgery, but it hit me with a vengeance tonight (a couple swigs of Pepto have yet to kick in) and I was starting to wonder if I had missed something.

Since Sunday afternoon I have eaten one whole loaf of Ener-G's white rice bread and a whole package of rice cakes.

Obviously, it's about time I re-evaluate this plan.

MelindaLee Contributor

I had more heartburn once I went gluten-free, as I was eating more of the processed gluten-free foods. It did go away after a bit. I still get it back if I have gluten.

WheatChef Apprentice

That explains it! In the last 2-3 weeks, I've increased my carb and protein intake in an effort to gain back a few pounds (lost 25 initially with the diet change and then another rather unhealthy 20 followed) and to aid my post-op recovery (I had a knee arthroscopy last week. Walking with an immobilizer is a great full-body workout, FYI). My acid reflux had finally improved, but has worsened again in the last few weeks and has not relented even with Prilosec. I assumed it was just holiday stress, unavoidable minor CC at home and the after-effects of the surgery, but it hit me with a vengeance tonight (a couple swigs of Pepto have yet to kick in) and I was starting to wonder if I had missed something.

Since Sunday afternoon I have eaten one whole loaf of Ener-G's white rice bread and a whole package of rice cakes.

Obviously, it's about time I re-evaluate this plan.

Carbohydrates do quite a few bad things to your digestion including screwing with your stomach acid production which causes some big problems when you're eating anything that requires lots of stomach acids like say... anything besides carbohydrates. You could always try drinking some high quality heavy cream if you're looking at upping your calorie count some (assuming you tolerate dairy). I like to flavor it with some crushed herbs like stevia or tarragon or sometimes mix in a little fenugreek.

bridgetm Enthusiast

Carbohydrates do quite a few bad things to your digestion including screwing with your stomach acid production which causes some big problems when you're eating anything that requires lots of stomach acids like say... anything besides carbohydrates. You could always try drinking some high quality heavy cream if you're looking at upping your calorie count some (assuming you tolerate dairy). I like to flavor it with some crushed herbs like stevia or tarragon or sometimes mix in a little fenugreek.

I've been avoiding dairy, but I can now tolerate small amounts. My mom made fruit dip (Philly cream cheese and marshmallow) for a work event and it's an old favorite so I tried some. It didn't give me much of a problem. I even ate it two days in a row. I kept it minimal though-- I didn't eat it by the spoonful like I would have a few years ago-- so I am not sure how well I would handle something like heavy cream.

Thank you for the carb/stomach acid info though. Eating to gain weight is a new concept for me. I was always low-carb except for heavy workout/rehab days hoping to lose weight so I took the easy route and reversed that concept, never looked into its effect on my stomach.

Skylark Collaborator

I had a lot of trouble with a box of Ener-G crackers. There may be something in Ener-G that is hard on sensitive stomachs.

ravenwoodglass Mentor

I had a lot of trouble with a box of Ener-G crackers. There may be something in Ener-G that is hard on sensitive stomachs.

I did also. I thought they were CC'd or something, which they are not. Turned out to be the soy in them as I was eating them before I realized I had an issue with soy. I go with the Glutino crackers now.

I don't think the bread has soy though I could be wrong. I thought it close to eating styrofoam so was very happy to find Kinnickinnick and Grainless Baker.

bridgetm Enthusiast

I did also. I thought they were CC'd or something, which they are not. Turned out to be the soy in them as I was eating them before I realized I had an issue with soy. I go with the Glutino crackers now.

I don't think the bread has soy though I could be wrong. I thought it close to eating styrofoam so was very happy to find Kinnickinnick and Grainless Baker.

It is soy free, but I agree; It's like a sponge. It's the best I can find in Mankato when I'm at school. At home I stock up on Udi's but I don't have enough room in my dorm fridge to keep more than one loaf so it's usually gone pretty fast. And then I'm left with an Ener-G sponge sandwich.

Actually I do think it is harder on my stomach than Udi's, but that's been one of those compromises I've been forced to make out of convenience.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.