Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Results


TooManyHats

Recommended Posts

TooManyHats Rookie

I got all my results today.

The biopsy from the 2nd portion of the duodenum was negative, "duodenal mucosa showing normal villous architecture. No evidence of cryptitis or dysplasia."

Stomach body biopsy: Gastric mucosa showing mild reactive gastropathy. No evidence of intestinal metaplasia. Giemsa stain is negative for Heliobacter pylori like organisms.

Colon-Ascending biopsy: Focal, mild acute (active) colitis. No evidence of dysplasia.

Colon-transverse biopsy: Focal, mild acute (active) colitis. No evidence of dysplasia.

Colon-Rectum biopsy: Focal, mild acute (active)colitis. No evidence of dysplasia.

Iron % SAT 37 (normal 20-55%)

Anti-Endomysial <1:10 (normal <1:10)

TIBC 270 (normal 228-428)

Gliadin IGG, ABS <20 (normal <20)

Gliadin IgA, ABS <20 (normal <20)

Ranges for Gliadin and Transglutaminase Antibodies

IgA/IgA (Units) Interpretation

<20 Negative

ASSAY Information: Method ELISA (INOVA QUANT Lite)

New ranges effective 8/23/10

I have no idea what to make of this. I'm told I have colitis and the doctor wants to put me on Lialda, two 1.2 mg tabs x once per day. No mention of what the cause is. No mention of whether this is ulcerative colitis, lymphocytic colitis or collagenous colitis. In fact she told me that very often they don't know what causes this. I just don't understand and don't relish the thought of being on this medication for at least six months, which is what she told me. Has anyone else had results like this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TooManyHats Rookie

No one?

Skylark Collaborator

Not me, but you are one of the people who might benefit from Enterolab. As many folks know, I have issues with the validity of the fecal antibody tests there but they were specifically designed to pick up gluten-sensitive colitis. Fine was studying microscopic colitis and realized there were gluten-sensitive forms of the disease. I don't think you can get insurance to pay for Enterolab, but it might help you figure out what is going on.

cassP Contributor

i find it kind of annoying & vague- that they just list your antigliadin result as <20... instead of the actual number?

and i dont know what all of your tests are for like TIBC ?

anyways... i had Colitis in the 90s... the bloating lasted for about a week-> the doctors put me on some medicine and told me to stay away from fatty & greasy foods. ?? it flared up after a good week of eating late night garlic/cheese/spagetti EVERY NIGHT.

who knows what the cause was- as i know now that i am Celiac.

ive read that in addition to Celiac, gluten can trigger Colitis & Crohns too.

maybe you should look into Enterolab.. couldnt hurt.

my personal opinion is that 98% of these digestive issues are caused by food intolerance.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

    2. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748

    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.