Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Results


TooManyHats

Recommended Posts

TooManyHats Rookie

I got all my results today.

The biopsy from the 2nd portion of the duodenum was negative, "duodenal mucosa showing normal villous architecture. No evidence of cryptitis or dysplasia."

Stomach body biopsy: Gastric mucosa showing mild reactive gastropathy. No evidence of intestinal metaplasia. Giemsa stain is negative for Heliobacter pylori like organisms.

Colon-Ascending biopsy: Focal, mild acute (active) colitis. No evidence of dysplasia.

Colon-transverse biopsy: Focal, mild acute (active) colitis. No evidence of dysplasia.

Colon-Rectum biopsy: Focal, mild acute (active)colitis. No evidence of dysplasia.

Iron % SAT 37 (normal 20-55%)

Anti-Endomysial <1:10 (normal <1:10)

TIBC 270 (normal 228-428)

Gliadin IGG, ABS <20 (normal <20)

Gliadin IgA, ABS <20 (normal <20)

Ranges for Gliadin and Transglutaminase Antibodies

IgA/IgA (Units) Interpretation

<20 Negative

ASSAY Information: Method ELISA (INOVA QUANT Lite)

New ranges effective 8/23/10

I have no idea what to make of this. I'm told I have colitis and the doctor wants to put me on Lialda, two 1.2 mg tabs x once per day. No mention of what the cause is. No mention of whether this is ulcerative colitis, lymphocytic colitis or collagenous colitis. In fact she told me that very often they don't know what causes this. I just don't understand and don't relish the thought of being on this medication for at least six months, which is what she told me. Has anyone else had results like this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TooManyHats Rookie

No one?

Skylark Collaborator

Not me, but you are one of the people who might benefit from Enterolab. As many folks know, I have issues with the validity of the fecal antibody tests there but they were specifically designed to pick up gluten-sensitive colitis. Fine was studying microscopic colitis and realized there were gluten-sensitive forms of the disease. I don't think you can get insurance to pay for Enterolab, but it might help you figure out what is going on.

cassP Contributor

i find it kind of annoying & vague- that they just list your antigliadin result as <20... instead of the actual number?

and i dont know what all of your tests are for like TIBC ?

anyways... i had Colitis in the 90s... the bloating lasted for about a week-> the doctors put me on some medicine and told me to stay away from fatty & greasy foods. ?? it flared up after a good week of eating late night garlic/cheese/spagetti EVERY NIGHT.

who knows what the cause was- as i know now that i am Celiac.

ive read that in addition to Celiac, gluten can trigger Colitis & Crohns too.

maybe you should look into Enterolab.. couldnt hurt.

my personal opinion is that 98% of these digestive issues are caused by food intolerance.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748

    LizzieE
    Newest Member
    LizzieE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.