Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Results


TooManyHats

Recommended Posts

TooManyHats Rookie

I got all my results today.

The biopsy from the 2nd portion of the duodenum was negative, "duodenal mucosa showing normal villous architecture. No evidence of cryptitis or dysplasia."

Stomach body biopsy: Gastric mucosa showing mild reactive gastropathy. No evidence of intestinal metaplasia. Giemsa stain is negative for Heliobacter pylori like organisms.

Colon-Ascending biopsy: Focal, mild acute (active) colitis. No evidence of dysplasia.

Colon-transverse biopsy: Focal, mild acute (active) colitis. No evidence of dysplasia.

Colon-Rectum biopsy: Focal, mild acute (active)colitis. No evidence of dysplasia.

Iron % SAT 37 (normal 20-55%)

Anti-Endomysial <1:10 (normal <1:10)

TIBC 270 (normal 228-428)

Gliadin IGG, ABS <20 (normal <20)

Gliadin IgA, ABS <20 (normal <20)

Ranges for Gliadin and Transglutaminase Antibodies

IgA/IgA (Units) Interpretation

<20 Negative

ASSAY Information: Method ELISA (INOVA QUANT Lite)

New ranges effective 8/23/10

I have no idea what to make of this. I'm told I have colitis and the doctor wants to put me on Lialda, two 1.2 mg tabs x once per day. No mention of what the cause is. No mention of whether this is ulcerative colitis, lymphocytic colitis or collagenous colitis. In fact she told me that very often they don't know what causes this. I just don't understand and don't relish the thought of being on this medication for at least six months, which is what she told me. Has anyone else had results like this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TooManyHats Rookie

No one?

Skylark Collaborator

Not me, but you are one of the people who might benefit from Enterolab. As many folks know, I have issues with the validity of the fecal antibody tests there but they were specifically designed to pick up gluten-sensitive colitis. Fine was studying microscopic colitis and realized there were gluten-sensitive forms of the disease. I don't think you can get insurance to pay for Enterolab, but it might help you figure out what is going on.

cassP Contributor

i find it kind of annoying & vague- that they just list your antigliadin result as <20... instead of the actual number?

and i dont know what all of your tests are for like TIBC ?

anyways... i had Colitis in the 90s... the bloating lasted for about a week-> the doctors put me on some medicine and told me to stay away from fatty & greasy foods. ?? it flared up after a good week of eating late night garlic/cheese/spagetti EVERY NIGHT.

who knows what the cause was- as i know now that i am Celiac.

ive read that in addition to Celiac, gluten can trigger Colitis & Crohns too.

maybe you should look into Enterolab.. couldnt hurt.

my personal opinion is that 98% of these digestive issues are caused by food intolerance.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,426
    • Most Online (within 30 mins)
      7,748

    AnythingForHim
    Newest Member
    AnythingForHim
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Click on the image to make it larger.  Maybe doesn't work on phone browser,  That was from 2021. Absolutely, they should be tested, The point is you have symptoms that the doctors don't understand and malabsorption may be the cause.   Not trying to.  But much of your rant includes refeferences that may indicate multiple nutritional deficiencies.     Some countries also have tax incentives and financial aid for Celiacs.   Celiac disease is recognized as a disability under the ADA because it substantially limits major life activities like eating and digestive function. Protections require reasonable accommodations in public accommodations, including schools (504 plans), colleges, and hospitals. These often include providing safe, gluten-free food, though they do not force restaurants to provide it.  As far as your recovery, eat gluten free.  Get healthier now and worry about diagnosis later.  Many here on the forum have gone ten or more years looking for a diagnosis, with many doctors and many misdiagnosis along the way. It really doesn't matter why, but you cannot eat  gluten.  That is what is important.  With gluten out of the way, maybe the doctors can make sense of your remaining symptoms.  If you need the ADA, then a medical diagnosis is the way to go.  Meantime you are delaying your recovery from whichever celiac disease or NCGS and the inevitable step one of Gluten Free Diet. tWe come to share experiences and maybe it will help someone. In reality, I don't care.  By the way I have stopped 6 medications Against Medical Advice because they did not do their job and the side effects were crippling. This is a lifelong fight for your life.  Pick you battles carefully.  Assume the worst, celiac disease, and deal with it.  Denial is not just a river in Egypt. Pleased to meet you, too.  
    • catnapt
      I can't read any of this... the print is too small and it looks like all you eat is milk, cereal cookies and some fruit..?   and some coffee?   
    • catnapt
      fortunately you don't need to understand anything that doesn't directly affect you.  🤗 you earlier assumed I was deficient in nutrients and minerals due to celiac malabsorption but...... now it doesn't matter? because why? it might mess up your deficiency argument?  if you don't know the difference between having actual celiac disease and NCGS....!!!! correct me if I'm wrong but actual celiac disease causes actual physical damage to your body and increases your risk of certain cancers... just as a start. I have an identical twin sister- IF I have celiac disease, chances are she may too. I have a daughter and other first degree relatives... you also get ADA protections with an actual celiac diagnosis.  but again, not your decision to make  nor to understand. but to suggest that there is no valid reason to find out for sure is incomprehensible on a board dedicated to celiac disease. if you ask me but you didn't so- nevermind.   don't worry though, another member has declared that in her expert opinion based on who knows what- that I don't have celiac!!!  but instead I am "full of beans" and probably killing myself for eating such scary things, I don't know.   if you think you can diagnose me off one single biomarker and a hunch of some sort...based on your history and some research study that you think is relevant- um, well, Glad to meet you, Dr McCoy aka Bones. 🫠 I did not know this was a place where strangers want to play doctor  I am hoping to hear from other members who are not so quick to make judgements and... stuff, let's just leave it at that... perhaps there aren't any.  time will tell I guess                    
    • Wheatwacked
    • Wheatwacked
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.