Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee And Celiac


Noche22

Recommended Posts

Noche22 Rookie

I am 6 days into a gluten-free, WF, DF life....all.....but coffee. Well, I have been drinking gluten free, dairy free creamer or soy instead of milk.

But what about the coffee, espresso itself. What are you drinking? I am having a hard time not going for my morning drive to the local coffee stand.

Do I have to give up coffee???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Plain coffee, instant or beans, including decaf, is inherently gluten-free. Flavor added to coffee might possibly introduce gluten.

Coffee is hard on the stomach, and may cause trouble in the early stages of healing in celiac disease.

shopgirl Contributor

Dunkin Donuts French Vanilla

Noche22 Rookie

Plain coffee, instant or beans, including decaf, is inherently gluten-free. Flavor added to coffee might possibly introduce gluten.

Coffee is hard on the stomach, and may cause trouble in the early stages of healing in celiac disease.

I am trying hard not to drink coffee. Unfortunately I suffer chronic migraines to begin with. I am 6 days into gluten-free and am on day 5 of of migraine. The pasy 3 days no coffee. I am trying REALLY hard not to drink coffee, but my head is making it hard to not cave today. With three little girls running around, I am needing to go get a coffee today :(

Normally, I make my own mochas at home, we buy whole beans, grind them, etc. Do you think that would be the safest? Being SOOOO new at this I don't know what to do.

Noche22 Rookie

I bought the Silk Pure Vanilla Almond Milk the other day, I will try that instead. Thank you.

mushroom Proficient

Without knowing anything about your ongoing symptoms, I am hazarding a guess that your migraine could be due to gluten, either as a neurological symptom from it, or caused by withdrawal of it. Many people get migraines as a symptom and many more get them from withdrawal. (Gluten acts as an opioid to the brain and the withdrawal from it is often similar to drug withdrawall. If you can ride it out for a week or two you may find they go away (or not, depending on their etiology :rolleyes: )

Gemini Experienced

I am 6 days into a gluten-free, WF, DF life....all.....but coffee. Well, I have been drinking gluten free, dairy free creamer or soy instead of milk.

But what about the coffee, espresso itself. What are you drinking? I am having a hard time not going for my morning drive to the local coffee stand.

Do I have to give up coffee???

There is no reason to give up coffee unless it bothers your stomach. You also do not have to give up dairy....unless you find it bothers you. That would be pretty obvious after ingesting either. I can tolerate very small amounts of milk, like the amount used in a cup of coffee or tea. However, I cannot ingest large amounts or eat ice cream, etc. Everyone learns what their limits are, over time.

I tend to go to Starbucks because they are not a donut shop (less danger of being cc'd by wheat) and all of their employee's have a good command of the English language, unlike some other coffee businesses. I have never been glutened at Starbucks but tend to buy the same thing...soy chai latte. Either that or an ice coffee but I have never had a problem and I'm extremely sensitive to cc.

Why torture yourself when you may not have to? Concentrate on the gluten-free first and go enjoy a small cup of joe! You'll soon learn if it's a problem or not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Caffeine withdrawal can play a strong role in migraines so it is important to find out if you're caffeine sensitive. Some people metabolize their morning cup of coffee fast, and by the next morning they can have a caffeine withdrawal migraine. As you probably know, caffeine can also help lessen the pain in folks who don't have a caffeine sensitivity. You probably would have done better tapering off caffeine rather than going cold turkey but I agree you should try.

cassP Contributor

you know- coffee & tea can be hard on the stomach, but everyone is completely different. some people are so just fine on a couple of cups a day-

if it doesnt hurt you- it could be good- has a lot of antioxidants.

i personally have intestinal issues if i have more than 1 or 2 cups of either.

mushroom Proficient

Noche22, there seems to be some confusion amongst the posters about your coffee. As I understand it you have not given it up and wonder if you should. My answer to that question is that caffeine in and of itself should not be a problem unless you have a problem with caffeine (I do and drink decaf) or unless the acidity gets to. you My post was directed toward the fact that some people get migraines when they go through gluten withdrawal. I think it would be important not to confuse gluten withdrawal from caffeine withdrawal, which can also cause migraine-type headaches. I would suggest you go through the gluten withdrawal first, and then worry about whether coffee is a problem. Otherwise you can't distinguish your reactions. :)

NorthernElf Enthusiast

I hang on to my coffee - I love my coffee - but yeah, it can be hard on your intestinal tract, esp. if you are already down & out !

As for migraines, not sure if I get those but gluten gives me incredible headaches that Tylenol won't touch. Advil takes the edge off but doesn't get totally rid of it either. They are brutal - but coffee doesn't give me headaches unless I have too much (I would have to have a lot).

I've heard of gluten withdrawl too - maybe that's part of your issues. If I get glutened it seems like everything bothers me & it gets hard to pinpoint what "did it".

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.