Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Issues 4 Months After Going Gluten-Free


adab8ca

Recommended Posts

adab8ca Enthusiast

I am basically a neuro celiac, none or hardly any stomach issues. 4 months into it (gluten-free), I am developing crippling stomach pain, bloating, gas, diarrhea and all the symptoms that I have never had. My ribs hurt, I am a mess. What the HECK? I know lots of celiacs have other intolerances but Wouldn't they show up sooner? Some of my neuro symptoms are stabilizing if not better, but I am putting on weight and the supplements that I am taking seem to be working as Vit D, B and Iron are coming up slowly. I do not believe that I am eating any gluten, I am diligent and we are a very gluten light household (only gluten products are my husbands wraps for his sandwiches and some crackers that I wold never get my hands into). He most of the gluten-free stuff that I eat, so there is really no cross contamination potential in meals.

I have a Dr appt. on Monday (just a regular yearly checkup) and she and I have been thru the wringer this year trying to figure out what is wrong with me and I hate to tell her this (I love my GP). I actually bought some Lactaid to see if that would help the stomach pains, but we had butter chicken for dinner and I still have pain.

Anyone had new intolerances develop a while after going gluten-free?

Thanks for sharing, I feel so incredibly awful!

ada


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

are you eating a lot of "gluten free" treats/breads/substitutes, etc???? a lot of those starches and grains mess me up... i feel better keeping those substitutes to a very minute amount.

i got a gluten free brownie mix for xmas- and i just ate a few of them- horrific bloating and gas... just awful.

i personally have intestinal issues with corn, potato, excess grains or starches, legumes, excess fructose, excess dairy, excess coffee or tea. i think that's it.

hope you figure out your issues!!

BlaBarb Newbie

Ada

I am very much like you- Many neurologic issues- some have resolved since going gluten free, 7 months ago some are the same. But I am going crazy with the gastro issues. I still get bloated and pain after eating. I had a food allergy panel last week and it came back negative for the allergies that were tested. It is so frustrating. I am researching all the time to try to find answers. The brain fog makes it difficult for me to concentrate enough to comprehend what I read when I find information. I definately think I developed other intolerances since I have been gluten free- I have no idea how to find out what it is that is causing the issues. I can totally relate to feeling incredibly awful.

I wish I had some answers for you (and me)

SGWhiskers Collaborator

Yup! I had the same experience as you. I'm a neuro gal with 0 to minimal GI issues prior to diagnosis. I had also had food allergies tested for the big 8 allergens. From that, I knew to avoid egg and dairy. I don't know how long into the diet I was (at least months), I started to notice phases of bloating, GI pain, and loose stools. I couldn't figure it out. Eventually, I traced it back to almonds and walnuts and eventually all tree nuts even though I'm not allergic to them. I'm still figuring out peanuts. Some other foods got me as well. There was one coconut ice cream I decided must be cross contaminated, but lately another one has been causing GI symptoms without neuro symptoms, so I'm wondering about coconut. Since being pregnant and gaining weight a little faster than the doc wants, I've cut out fruit juice. Well yesterday and today, I chugged several glasses and now I'm super bloated with other GI stress. I'm wondering about fructose intolerance now.

I know that after I initially cleaned up my diet, I lost some of the minimal GI irritation I thought was just normal and when I reintroduce an irritant, it is really noticable now. I don't drink soda much and when I have some, my body is so used to being comfortable that the gas is really painful.

Maybe we are developing new intolerances. Maybe we are introducing new items into our diets (like lots of coconut and mountains of almonds). Maybe we just notice it more now. It's real and you are not alone. You could try a mini elimination diet or go all out if you want to figure it out.

good luck.

Real1 Newbie

Also a newbie at the gluten free thing with very minor GI issues before diagnosis. I also have several mild allergies to the primary culprits..wheat, corn, soy, nuts, strawberries. I have tried several of the gluten free products and flours and noticed I itch and have some increased stomach issues. I think Red Mill flour is the problem. Nonetheless..my new strategy is to stick with products/foods that are naturally gluten-free that my body is already accustom to. Some of these very expensive gluten-free products are made with stuff I have never heard of or eaten, which my system does not like at all. My GI symptoms on a regular diet where better than my new gluten-free diet..Go figure. Hope things work out for you..keep posting!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,923
    • Most Online (within 30 mins)
      7,748

    Amber Gumm
    Newest Member
    Amber Gumm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.