Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dexa Bone Scan


Mama Melissa

Recommended Posts

Mama Melissa Enthusiast

Hey just wanted to know if any celiacs out there have ever gotten this bone scan test and what happened if you did have osteoporosis?? how do they treat it??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Test is easy no prep needed. I do have osteoporosis and they tried to push meds on me. I declined as I don't consider them safe and some research does state they are not good for celiacs. My doctor advised getting adaquate calcium and vitamin D and weight bearing excercise. You may want to see a recent thread on Fosamax and read all you can about those drugs before you agree to take them.

Mama Melissa Enthusiast

thank you raven

mushroom Proficient

My Vit. D was very low and I suffered a compression fracture in my spine from a fall injury, so all the docs assumed I had osteoporosis. I said I wanted another DEXA scan before making that assumption (I had had a screening scan 4 years or so before that said my bones were great), and guess what, my bones were still great :D But I still take lots of D and calcium....

sb2178 Enthusiast

magnesium, vitamin K, and a diet that is high in fruit and veg (7+ servings per day) are also bone protective. Sufficient protein helpful, excessive protein harmful.

It's a very easy test-- you really just have to be wearing no metal or dense plastic and it takes (usually) between 5 and 11 minutes for a full body and less for a part like hip or spine.

cahill Collaborator

I am 54 years old .

I had my latest DEXA scan this past summer and it showed osteoporosis in my spine.

My doc IMMEDIATELY started trying to push Boniva on me.

I declined to go that route. I am taking supplements and doing weigh bearing exercises.And will closely watch the progress of the osteoporosis to decided wither or not to add drugs like Boniva.

Tina B Apprentice

Hey just wanted to know if any celiacs out there have ever gotten this bone scan test and what happened if you did have osteoporosis?? how do they treat it??

normally it is done at age 50 but my gyn ordered mine at age 45 because of the celiac. The initial showed osteopenia which is the beginnings of osteoporosis. The follow up 2 years later showed no change which is good. I had added weight bearing exercise (treadmill, eliptical) and weight training as well as calcium with magnesium. The reason for doing it earlier was to see if I would need something like Fosamax or Boniva earlier than expected.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

I've had several. I was dx'd with osteoporosis and osteopenia at 34, and it kept getting worse every year, even with reclast injections. Once I was dx'd celiac, I am sure to take my calcium and D religiously and exercise 5 times a week. My most recent (first post diagnosis) dexa scan showed "dramatic improvement," with no drugs. Doc was astonished and said keep it up!

The test takes like 5 minutes. You just lay there (with no metal) and then you're done. Easiest test ever!

  • 1 month later...
ILoveflowers74 Newbie

I also (like mushroom) compression fractured my spine at 28 yrs old....that's when I got my first scan . Dx osteopenia... Was told to take calcium and d for a year and repeat the scan I even added weight bearing exercise I was jacked lol. However my 1 yr follow up was worse . I couldn't understand it . I mentioned to the doc that it seemed like I wasn't absorbing it... Cuz I was taking it. It just kinda was forgotten about until now with my suspecting celiac . My most recent scan which was the first in 4 years was worse still. Currently doing the gluten challenge . Can't wait to be able to absorb and try to save my bones I'm 37 now time is running out ? I have no doubt that I'm a celiac . I just need my dx for backup. ... So I can go back to being gluten-free and begin recovery again... I cannot wait.

Good luck with your scan. It's very Easy you'll see. :)

shopgirl Contributor

My scan was clean thankfully. I spent my life drinking enough milk to choke a cow so I'm guessing that helped. Like the others said, it's easy: you just lie on the table for a few minutes while they scan you. I got to listen to the tech tell me about her weekend plans (visiting her grandchildren and finishing a knitting project, if you're interested).

My mother (non-Celiac) showed osteopenia but she declined all the drugs they pushed on her and has maintained her levels for the past five years by taking Vitamin D and eating a healthy diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748

    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.