Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie In Need Of Advice


wildcatboy

Recommended Posts

wildcatboy Newbie

Hello everyone. It seems I have now become a member of a community I consider a double edged sword. I am happy to have traced the origin of some of my issues, but un-happy to be giving up some of my favorite foods.

I have had digestive issues for roughly 7-8 years. My mom claims I have never had issues with going to the bathroom, since I was little...but the last 8 years have been harder than the previous 20. I am 28 and like I said have always seems to have a slight 'urgency' to get to a restroom. In high school/college this symptom seemed to magnify. <insert beer drinking> :( Now that I am am in the work world its a down right nuance. I have been to my family doctor and 2 years ago a digestive 'specialist' diagnosed me with IBS. Terrific, right?...well no matter how bland of food I ate, I was still running to the restroom. He had me try a dairy free diet, he prescribed me all kinds of expensive drugs...no dice.

Which brings me to 2011. With the turn of the new year I decided enough was enough. I had my suspicions related to Gluten, but the doctor assured me that was not it. Well, I took matter into my own hands and as of January 2nd I have been as Gluten Free as possible. I will say it has not been perfect, but I have had leaps and bounds, more good days than bad. Where as before I was in a bathroom routine, of just dealing with loose stool and occasional migraines.

My question...its been 23 days now. I would say I have had 18 good days and 5 bad. Does this mean I am gluten intolerant? or is the change due to a diet change and nothing more? Are the 5 bad days due to my uneducated diet? I try but i'm sure, not perfect as I learn more every day.

Also, I have have noticed that milk may be cause some of these 'bad days'. Am I allergic to milk too? or is this just a sensitivity in the intestine as it heals?

Thanks in advance. This forum really is a wealth of knowledge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Hi wildcatboy, welcome to the forum.

Have you had any celiac testing?

A good test, though a Dr. might not diagnose you based on this, would be for you to be strictly gluten-free for three months and then do a gluten challenge by eating a normal gluten filled diet for several days and see if you have any reactions. Taking milk products out in the begining and adding them later is a good idea.

Also replacing your toaster, collander, wooden kitchen utensils, cutting boards, scratched teflon pans and re-seasoning cast iron pans would a good idea. Make sure to check your meds and supplements for gluten too.

It is a major learning curve but definately do-able.

GFinDC Veteran

Milk is a problem for lots of celiacs at the beginning of the gluten-free diet. You may be able to eat it successfully after you have healed for a few months. Ups and downs and GI issues are not rare at the start either. There are lots of ways to slip up and eat gluten or get a little cc (cross-contamination) by accident. Eating mostly whole foods instead of processed foods will make it simpler to avoid gluten. Be careful of spice blends and vitamins and meds that may have gluten or dairy in them. You might want to try taking out soy also if your symptoms don't resolve after a few months on a whole foods diet.

wildcatboy Newbie

I always read people on this forum referring to 'healing'.

Is there a time period it takes for your to heal or it does it vary widely depending on the person and the severity of the G-intolerance?

Also, if I suspect milk, does that mean I need to remove all dairy from my diet? I.E. cheeses, and dairy?

GFinDC Veteran

Healing time does vary by the person. How well you manage your gluten-free diet has a huge impact on the healing time.

I suggest removing all dairy for a few weeks and see if it makes any difference. If you don't find any difference then it is probably not an issue for you.

mushroom Proficient

Well, I would disagree with gluten-free to the extent that lactose intolerance and casein intolerance are different issues and involve different enzymes. Lactose is most concentrated in milk, cream and ice cream. If you remove those and improve, but not entirely, you can try removing cheese and yogurt too, but most of us don't have to go the whole nine yards with all dairy, just the lactose because the enzyme to digest that is made in the small intestine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,909
    • Most Online (within 30 mins)
      7,748

    Hmart
    Newest Member
    Hmart
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.