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Self-diagnosis - Is It Cd? Please Help


kati

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kati Newbie

I stumbled onto this forum and was hoping someone might be able to help me self-diagnose. I have been to a couple of different holistic Docs who tested me and said I was allergic to wheat, barley, corn, etc etc. Anyway, I suffered through a 2 year long bout of gas, gurling tummy, stomach pains and loose bm's... it cleared up for a while once I went ot an allergist who told me to avoid the wheat and stuff... anyway in November my stomach problems came back with a vengence... and it has been constant since then - just terrible. I do not want a diagnosis mentioning any "disease" on my medical records as we are really close to completing an international adoption and that would look bad on our medical reports... so I picked up a magazine in Sprouts on Saturday and it described exactly what I was going through.... so I guess what I am looking for is confirmation of sorts that this could be the answer to my problems.... any advice, information etc would be great.. thanks


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angel-jd1 Community Regular

This website along with the message board has a plethora of information. You might want to try looking on the site and searching the message board for the great information.

-Jessica :rolleyes:

SadiesMomma Apprentice

What sorts of things are you allergic to?

I too am allergic to corn, wheat, dairy, soy, nuts, eggs.. you name it its probably on my forbidden list.

Were all here to help... The site is wonderful and can help you learn a LOT about Celiac. Good luck. and congrats on the new soon to be kiddo in your lives!

kati Newbie

SadiesMomma - I sound like you.... I am allergic to bananas, potatoes, corn (in any form) pectin, brocolli, cauliflower, buckwheat, wheat, soy, dairy, and the list goes on...... in reality I seriously think I have celiac disease, apparently my Mother said we were all allergic to milk when we were kids (all 6 of her kids) grrr she only told me this on Sunday.... I still eat bannana's and some of the veggies, even though the allergist told me that I am allergic to them, its just that there is a limit to not eating... lol... I am going to avoid gluten from now on, and dairy of course.. "rice milk is my friend" I will see how it goes.... I am fairly certain that I can control my "IBS" like symptoms this way....

Thanks for the congrats on the kiddies...

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    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
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